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Newly diagnosed with CIDP from back in June as I’m learning to navigate CIDP on a day-to-day basis with monthly infusions. My days are filled with a lot of progress but still lots of symptoms. Everyday is something new. Back in June, I was sick and then a couple weeks later started losing feeling throughout…
Between Fire and Favor: Surviving Guillain-Barré Syndrome I am from Kenya. My symptoms began on July 10th, 2022. I started experiencing strange weakness and tingling sensations in my body. Over the next few days, these symptoms worsened rapidly. After a frustrating and confusing period of uncertainty, I was finally diagnosed with Guillain-Barré Syndrome (GBS) on…
In 2018, I was 44 years old, I had been working in construction. Strong, healthy, and just starting a new career as a site manager at the company where I had been employed for 18 years. It started with a strange feeling in my left foot. As if I were wearing a thick sock. Later,…
My name is Melissa, a Kenyan girl who came across GBS, in June 2024. It started as a normal flu, then numbness and weakness came in on my legs and hands. I was admitted at MP. Shah Hospital on a Friday and by and by Saturday I was unable to move and my sense of…
On the morning of April 30, 2016, I had difficulty getting out of bed. My legs were very heavy. The first time I tried, I fell. My wife had to help me up. I felt “weird” all day and later that day, I fell again but this time, I was knocked unconscious and was taken…
From Wheelchair to the Peaks of the Caucasus: A Journey of Resilience Felix Wachter, a 28-year-old doctor from Lauf, Germany, has always been passionate about running, skiing, and mountaineering. From a young age, skiing was a source of joy for him, and he eventually became a ski instructor after finishing high school. Along with his…
I ask myself, “my journey is on it’s thirteenth year now”? Eleven of those years, I’ve been away. When I acquired MMN and symptoms began in 2012 and 2013, I had to quit my job. Socializing, I heard “your arms are getting skinny”. “Your calves, where did they go old man”? “You lost your shooters…
In November 2024, during my senior year of college at Baylor University, I was diagnosed with Guillain-Barré Syndrome (GBS). I was a healthy and active 21-year-old and captain of the Baylor Songleaders Dance Team.It started on the evening of October 29, 2024. While watching TV with friends, my leg suddenly swelled from hip to foot….
My name is John Navarro, and I was diagnosed with Multifocal Motor Neuropathy (MMN) in February 2024, becoming Gibraltar’s only known patient with this rare neurological condition. MMN is a chronic, progressive illness that affects the nerves controlling muscle movement, causing weakness and fatigue. Like many others with rare diseases, my journey to diagnosis was…
I just turned 50 and had my first grandson born, my parents drove from Oregon to see their great grandson, when they arrived at our home I was excited to see them, when I went out to greet them I feel to my knees, I thought I just tripped, by the next morning I couldn’t…
My name is Elizabeth Sandbothe and when I was 23 years old, in 2021, I was diagnosed with Guillain-Barre Syndrome (GBS) with a variant of Miller Fisher Syndrome (MFS) while I was playing professional volleyball overseas in Germany, and within days it took my entire body and the game from me. The damage to my nerves was substantial. I…
After experiencing severe weakness in my lower extremities for several years, I sought out a diagnosis for my continuing decline after feeling that my mobility issues were impacting my lifestyle. My early symptoms were: difficulty climbing stairs, getting up from the floor, being unable to get up from a stooped position, and frequently falling (due…
My name is Eli, and I was diagnosed with CIDP in July 2021. In June of that year, I fell outside for an unknown reason. Over the next few weeks leading into July, I fell nine times and lost the use of my arms and hands. Since this was during Covid, it took a while…
I am Lucy Valcheva, 36, from Bulgaria. In April 2023, the worst and the best thing happened in my life. You are probably horrified and thinking, how can Guillain Barre be good? I was in a very dark place before getting sick, totally stuck in a routine and on autopilot with little joy in my…
I’m Clarissa, 24 years old. At the time of my GBS diagnosis, I was 23 and had been working as an educator in a nursery for two years. I’m also a lifeguard and a swimming instructor, and I am currently pursuing a master’s degree in the design and coordination of educational services. I’ve always been…
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