Research News

  • Evidera Steroid Survey for CIDP Patients
    We are sharing this research opportunity on behalf of Evidera, an independent healthcare research company, on a study examining side effects associated with steroid medications. Evidera’s team is hoping to gain more insight into these side effects and how they impact one’s quality of life by conducting one-on-one interviews with individuals with CIDP, who have…
  • Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) – Patients and Family Members – Research Opportunity
    LaGrippe Research, a market research firm specializing in healthcare, is inviting individuals diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), as well as family members who help support/care for a loved one diagnosed with CIDP, to participate in their research study. This will be an in-person usability study, and those who qualify will be invited to…
  • How You Can Manage Fatigue
    Submitted by Dr. Gareth Parry, Global Medical Advisory Board Member and GBS Support Group NZ Trust An online activity-focused coaching programme helps reduce fatigue in people after Guillain-Barré Syndrome 60-80% of people with Guillain-Barré Syndrome (GBS) report persistent fatigue which significantly limits everyday functioning despite good recovery of strength. Dr Suzie Mudge who is a…
  • Research Article: Pathogenesis of GBS based on mice strains
    Development of a major histocompatibility complex class II conditional knockout mouse to study cell-specific and time-dependent adaptive immune responses in peripheral nerves Published by: Eroboghene E. Ubogu MD, Jeremy A. Conner BS, Yimin Wang PhD, Dinesh Yadav PhD, Thomas L. Saunders PhD Read the research article here: https://onlinelibrary.wiley.com/doi/10.1002/mus.28193
  • Inspiring the Next Generation of Research at the GBS|CIDP Foundation International Patient Symposium  
    As part of the 2023 International Patient Symposium, the Foundation was thrilled to welcome seven young medical professionals – ranging from those in their residency to those finishing their Ph.D. – to join the conference and learn from our Global Medical Advisory Board and from the patient community. These young professionals attended sessions, facilitated Q&A’s,…
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