Advocating Locally with the Foundation
There's a persistent idea in advocacy that the work happens in Washington, that unless you'veโฆ
GBS|CIDP Legislative Agenda 2026 | Advocacy Priorities
Support Robust Research Funding Currently, there is no cure for GBS, CIDP, or MMN. Patientsโฆ
Write a Letter to Help Protect ACA Tax Credits!
To write your Senator/Representative, please fill out the letter below including your name, condition/relationship toโฆ
Empowering Voices on Capitol Hill: Hill Day 2025
On May 8th, the GBS|CIDP Foundation International proudly hosted our annual Hill Day, bringing togetherโฆ
GBS|CIDP Foundation Advocacy Policy
Advocacy Policies The GBS|CIDP Foundation International is committed to advocating for policies that enhance theโฆ
GBS|CIDP Foundation Welcomes New Congress & Advocacy Opportunities
GBS|CIDP Foundation International Welcomes New Congress and New Administration, Additional Opportunities for Advocacy This month,โฆ
Celebrating 34 Years of the ADA with Ralph G. Neas
An Interview with Ralph G. Neas, GBS and CIDP Written by: Ellie Herman, Advocacy Coordinatorโฆ
A Capitol Hill Kick-Off for GBS|CIDP Awareness Month
2024 Hill Day Written by Ellie Herman, Advocacy Coordinator To kick off the first dayโฆ
Call on Airlines to Respect People with Rare Conditions and their Medical Equipment
The GBS|CIDP Foundation International acknowledges the urgent need for airlines to respect and improve theirโฆ
Plasma Awareness Event at Meredith Collegeย
Written by Ellie Herman, Advocacy Coordinator To recognize International Plasma Awareness Week and educate theirโฆ
UnitedHealthcare dropping four immunoglobulin products from formulary
UnitedHealthcare (UHC), a private insurance company that provides health insurance to more than 25 million Americans nationwide,โฆ
September Hill Visit
In anticipation of the Foundationโs most recent iteration of our Medicare IVIG Access Enhancement Actโฆ
Congress Recognizes the month of May as GBS|CIDP Awareness Month
On May 27, Congressman Garamendi, recognized the Month of May as GBS|CIDP AWARENESS Month andโฆ
GBS|CIDP Foundation International continues to work with FDA on GBS|CIDP patient concerns
After holding a GBS Patient Listening session with the FDA in the Summer of 2020,โฆ
Foundation Hosted Patient Listening Session on Guillain-Barre Syndrome with The FDA
On September 29, 2020, the GBS|CIDP Foundation International organized a patient-led listening session on Guillain-Barreโฆ
Medicare and Home Infusion IVIg: What You Need to Know
By: Chelsey Fix Medicare is confusing โ thatโs a fact! Add the confusing Medicare systemโฆ
GBS|CIDP Foundation International Becomes a Member of the National Health Council
In 2019, The GBS|CIDP Foundation International was honored with a membership to the National Healthโฆ
How A Bill Becomes A Law (in the US)
By Chelsey Fix, Advocacy Manager Itโs been over 20 years since Schoolhouse Rock released itsโฆ
Medicare IVIG Access Enhancement Act
Marketplace Access Project Applauds Bipartisan Letter from 181 Members of Congress Urging HHS to Protect Life-Saving Charitable Patient Assistance
Letter Introduced by Reps. Kevin Cramer (R-ND) & Doris Matsui (D-CA) Seeks to Protect Quarterโฆ