Goal To encourage GBS|CIDP community members to participate in a meeting with the federal Representatives and Senators in their local “home” offices to Raise awareness of GBS, CIDP, and variants Ask for support of HR 2905 They’re Comin’ Home! Get involved in Advocacy this August when your Representative and Senators are in their HOME town!…Read More about 3 Ways to Advocate during August Advocacy Month
By Chelsey Fix, Advocacy Manager It’s been over 20 years since Schoolhouse Rock released its last video, which makes me think that we all need a refresher on the process by which a bill becomes a law! As a throwback, enjoy everyone’s favorite Schoolhouse Rock civics lesson by clicking here. As a recap, that I…Read More about How A Bill Becomes A Law (in the US)
By Chelsey Fix, Advocacy Manager This May, the GBS|CIDP community took Awareness Month to a whole new level! Patients and caregivers were encouraged to be their own best advocate by joining a congressional letter writing campaign (perhaps you read about it on our lively social media channels?!). As the last day of GBS|CIDP awareness month…Read More about We Have The Best Advocates!
On May 22, Congressman Blumenauer, of Oregon, recognized the Month of May as GBS|CIDP AWARENESS Month and introduced the Medicare IVIG Access Enhancement Act to the House of Representatives. Read full script here Additionally, Congressman Holding of North Carolina also introduced the Medicare IVIG Access Enhancement Act on May 23rd. Read full script here. Download…Read More about Congress Recognizes the month of May as GBS|CIDP Awareness Month
An update from Chelsey Fix, Advocacy Manager 17 Days = 100 Advocates! We are officially halfway through GBS|CIDP Awareness Month, and I am THRILLED to share with you that 100 members of the GBS|CIDP community have written a letter to their Members of Congress! That is 100 times that Senators and Representatives had a chance…Read More about GBS|CIDP Awareness Month Going Strong!