Advocacy News

Advocacy is when a person or a group of people communicates with a government official or their staff to influence bills and laws that reflect the needs, wishes, or wants of a certain community. Learn All About Advocacy.

August Update on Advocacy

By Chelsey Fix Advocacy at Home, Current Cosponsors, and State of the States August heat is baking creativity here at the Foundation, which means that I’ve been looking towards the future and thinking about how we can continue to advocate together on all issues that matter to the GBS|CIDP Patient Community. But before we go…

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We Have The Best Advocates!

By Chelsey Fix, Advocacy Manager This May, the GBS|CIDP community took Awareness Month to a whole new level! Patients and caregivers were encouraged to be their own best advocate by joining a congressional letter writing campaign (perhaps you read about it on our lively social media channels?!).  As the last day of GBS|CIDP awareness month…

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Congress Recognizes the month of May as GBS|CIDP Awareness Month

On May 22, Congressman Blumenauer, of Oregon, recognized the Month of May as GBS|CIDP AWARENESS Month and introduced the Medicare IVIG Access Enhancement Act to the House of Representatives. Read full script here Additionally, Congressman Holding of North Carolina also introduced the Medicare IVIG Access Enhancement Act on May 23rd. Read full script here. Download…

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