An update from Chelsey Fix, Advocacy Manager 17 Days = 100 Advocates! We are officially halfway through GBS|CIDP Awareness Month, and I am THRILLED to share with you that 100 members of the GBS|CIDP community have written a letter to their Members of Congress! That is 100 times that Senators and Representatives had a chance…Read More about GBS|CIDP Awareness Month Going Strong!
May is GBS|CIDP Awareness Month, and we are getting ready to celebrate all month long! I can’t help but wonder where 2019 has gone, but that thought is overshadowed by my excitement for our 2019 Awareness Month Plans – Government Advocacy. If we haven’t met yet, I should probably introduce myself. My name is…Read More about Awareness Month is All About Advocacy
Be your own best advocate. Did you know that Medicare part B can restrict your location of care for your IVig treatments? Or that each year, your voice can influence Congress on important issues such as funding the National Institutes of Health’s research into GBS and CIDP? Whether you are a patient, caregiver, friend, or…Read More about May is GBS|CIDP Awareness Month
This May, GBS|CIDP Awareness Month, the Foundation will be fighting the good fight and enlisting patients and their caregivers to support our advocacy efforts throughout the month and beyond. But, perhaps advocacy is not the right fit for you, or you are unable to participate in our advocacy initiatives this year – not to worry,…Read More about 10 Easy Ways to Raise Awareness for GBS|CIDP & make a BIG Difference!
Teach One. Be One. Be a Champion for Rare Disease. February 28, 2018 will be the eleventh international Rare Disease Day. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities. This year the GBS|CIDP Foundation is encouraging you to join the cause and TEACH someone about GBS,…Read More about GBS|CIDP Foundation Launches Rare Disease Day Campaign