Patient Stories


My hero is my late husband, Joey. When my legs suddenly stopped working in December 2011, we thought it was simply extreme weakness due to my recent illness so I was never hospitalized. Joey was working in retail management which in December meant 10-14 hour shifts, 5-6 days a week. He now had to take on all of the responsibilities at home as well as taking care of me. Not once did he complain.

In the months and years later, as I regained my mobility Joey would challenge me to do things that I didn’t think were possible – such as using my cane to help me step off a curb. I’d be scared but knew that if he was with me, I’d be okay.

Until he passed away unexpectedly in July 2016 at the age of 38, he was my protector and biggest cheerleader. Now, he’s my guardian angel and I will forever consider him my hero as I continue through my 2nd decade with GBS … and beyond.