Patient Stories

My Husband, My Hero

My husband is my hero. This illness has taken a lot away from me. When I was unable to stand he was my legs, when I was unable to bathe myself,  he bathed me.  I still struggle with basic daily living activities and he is by my side helping with tasks such as getting dressed, brushing my hair, and cooking. He’s pushed me through airports and carried me into doctors’ appointments while continuing to be supportive every step of the way. I constantly apologize and he constantly reassures me that he loves me and that he would do this for the rest of his life as long as he is doing it with me. My husband is just as passionate as I am about advocating for our community. He’s gone with me to meet with senators, the mayor, the governor, and volunteers at our local walk and rolls and chapter meetings. I am very fortunate to have him.