Executive Director

Lisa Butler

Lisa Butler

Lisa Butler officially joined the Foundation staff in December, 2013. She first learned of the Foundation in 1992 when her father-in-law was diagnosed with GBS. Ten years later, Lisa’s son, Stuart, was diagnosed with GBS. Following Stuart’s recovery, Lisa became the parent Liaison for the Foundation for “parents with children diagnosed with GBS”.

Lisa maintains a BA in English in addition to having a ten-year career in marketing and event planning for  nonprofits. Prior to assuming her position as Executive Director, in 2015, Lisa managed the Foundation’s marketing and development programs. She was recently recognized by Patient Services, Inc. (PSI) with the 2016 Extraordinary Support Award.

Lisa, and her husband Tom – a mergers and acquisitions specialist – have one college-aged son and two sons in high school. They most enjoy spending time at their sons’ many athletic activities.

 

Founder

Estelle Benson

Estelle Benson

Estelle Benson graduated from Temple University in Philadelphia with a BS degree in Education. A member of Pi Mu Honor Society, she also received the American Association of University Women Award for Outstanding Service to Temple. In 1978 Estelle earned a Master of Arts degree in School Administration from Villanova University. After teaching for over three decades, Estelle retired as a school administrator from the School District of Philadelphia. She became a co-founder of the Guillain-Barre Syndrome Foundation International in 1980 after her husband, Robert, was stricken with the condition. She is the Founder of the organization and serves on the Board of the National Organization for Rare Disorders.

Estelle is past president of the board of the Esther Boyer College of Music at Temple University, a member of the Sounding Board, the Conwell Society and a member of the General Alumni Board of Directors of the University. She received the “Certificate of Honor” award from Temple University in 2000 and the Founder’s Award from the Graduate Alumni Society of the Arts and Sciences at Villanova University in 2003. She has two married sons and four grandchildren.

Chief Financial Officer

Camille Yee

Camille Yee

Camille Yee is responsible for the Foundations day-to-day financial affairs, including budgeting, accounting and auditing. Camille also oversees the Foundation’s patient, contributor and professional database. She joined the GBS family in 1992 as a part-time bookkeeper. In her 22 years with GBS, Camille developed and implemented all of the controls and policies now being used by the Finance Department of the Foundation. Most of Camille’s professional career has been with non-profit agencies, starting as a paralegal with the Legal Aid Society of New York. While at Legal Aid, Camille managed the family law unit of their Chelsea branch and was an early advocate for safe-house shelters for battered women in Manhattan. A native New Yorker, Camille relocated in 1979 to Philadelphia to marry Henry Yee. Also in 1979, Camille began her own office services firm to provide bookkeeping and administrative services to non-profit agencies and small businesses. Camille and Henry have two grown children, Hank and Jennifer.

Director of Development & Marketing

Rick Yanchuleff

Rick Yanchuleff began his career in consumer advertising as a graphic designer/art director. After 15 years in corporate medical marketing, he shifted his career into non-profit marketing and development serving the blind and vision impaired; marginalized Christians in the Middle East and North Africa; women experiencing crisis-pregnancy; survivors of sex trafficking and sexual exploitation; and presently, individuals suffering from rare auto-immune deficiencies.

Rick’s career history aligns with his personal goal of improving the quality of life for others.

He holds a degree from Pennsylvania College of Art and Design, Lancaster, PA; a BA in communications from Lebanon Valley College, Annville, PA; and an MA in advertising from Syracuse University, Syracuse, NY.

Rick resides in Lancaster County, PA, has three married children–Ryan, Jason, and Kate–and enjoys spending time with his wife, Marilyn, and their six grandchildren. He also enjoys baseball and driving their Miata on the weekends.

Community Events Coordinator

Kelly McCoy

Kelly McCoy

Kelly McCoy joined the foundation in August of 2015. She attended West Chester University and worked in corporate financial marketing until being diagnosed with CIDP in the spring of 2014. Once able to manage the disease and return to the workforce she sought the opportunity to offer assistance to those also affected by CIDP. In joining the Foundation she hopes to become an integral member of the team and contribute to their day to day operation. She also looks very forward to connecting with patients and providing a first-hand resource and means of support for those living with CIDP as well as their loved ones.

Kelly currently resides in Conshohocken, PA and enjoys the outdoors, sports, cooking and enjoying time with friends and family.

 

 

Walk & Roll Coordinator

Jessica McManus

Jessica McManus started with the foundation in January 2016 as the Walk & Roll Coordinator. She has a BA in Business Administration from the University of Hartford and has worked for the past six years in marketing and events for the legal services industry. Jessica brings her experience in volunteer work and event management to her role and is excited to help bring the Walk and Roll program to life while raising awareness of GBS-CIDP. She looks forward to connecting with patients and families affected with GBS & CIDP.

As a Philadelphia native, Jessica enjoys spending time with her family and friends, and can most often be found staying active, practicing yoga, and baking.

 

Special Projects Coordinator

Lori Basiege

Lori Basiege

Lori Basiege has extensive experience with both administrative support and GBS. Lori contracted GBS at the age of 19 during her freshman year at Penn State University, and has since made a full recovery. She enjoys the simple things in life, like sitting under a tree and reading a good book.

Lori lives with her husband and son–and Samson the family cat.

 

 

 

Database Coordinator

Marie Torrence

Marie Torrence

Marie Torrence began working for the Foundation in March, 2013. After retiring from 28 years in the banking field, Marie wanted a new challenge. In her 18 months at the Foundation, has worked to insure the accuracy of our database and manage any contributions. Marie works closely with our CFO on insuring our reconciliation is consistent. Being able to interact with the rest of the staff and our supporters is just one of the many reasons Marie enjoys her work.

As a Pennsylvania native, Marie enjoys reading and spending time with her family. Marie and her husband Bill have 3 daughters and 8 grandchildren.

Administrative Assistant

Kristen Mazzone

Kristen Mazzone joined the Foundation in June of 2016 after working as a registrar for 11 years in post-secondary education. With her experience in solving student issues and database input, she was able to take on the role of being the “first responder” for all patient inquiries – both domestic and international.

Kristen enjoys reading and spending time with her husband, Greg and their 2 cats and dog, Barley.

 

 

 

 

Community Engagement Coordinator

Yvonne Smith

Yvonne Smith is an industrious and cultivated professional. She has a degree in Public Relations and Government and Public Policy. While in college she studied sustainability abroad, founded a tutoring program for a title one school. She is a member of the Pi Sigma Alpha and the Phi Theta Kappa Honor Society and was Vice President of Leadership.

Yvonne has worked in the health insurance industry, secondary education system, and social programs in the United States; these experiences have endowed Yvonne with the great opportunity to work with individuals from a variety of backgrounds. With Yvonne’s education and experience, she is well prepared to lead all liaisons/volunteers and make a profound impact. She is excited to be a part of the foundation and actively supports the foundation in continuing to achieve success and its mission.