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Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

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Open post by gbscidpfoundation with ID 17990034362799005

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

#WhyBehindYourWeakness #NeuromuscularAwarness #PatientAdvocacy #ANF #LONDC #LONDs

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

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Open post by gbscidpfoundation with ID 18121942342665785

Join us THIS Saturday at the Philadelphia Walk & Roll and be part of something bigger.

Together, we Walk & Roll to raise awareness for GBS, CIDP, and MMN and support research that helps move us toward better treatments and brighter futures.

Bring your energy, invite your friends and family, and help us make an impact.

We’ll see you in Philly this Saturday—let’s make awareness impossible to miss.

Register by clicking the link in our bio.
#guillainbarresyndrome #CIDP #philadelphiaevents #nonprofit #multifocalmotorneuropathy #raredisease #rarediseaseawareness #abcnews #phillynews

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year`s #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

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Open post by gbscidpfoundation with ID 18011277368716955

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year's #ECRD26 conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and @patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

This #WorldBicycleDay, we’re celebrating Miles for GBS and honoring his GBS journey as he takes on Mount Ventoux in France around August 24, 2026—an “epic” 26 km (16.2-mile) climb to raise awareness for GBS and support the GBS Patient Assistance Fund.

Like so many living with GBS, Miles knows recovery is rarely a straight path.

“You can only do it one day at a time,” he said. “And some days, you need to stop and rest.”

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Open post by gbscidpfoundation with ID 18100978129874026

This #WorldBicycleDay, we’re celebrating Miles for GBS and honoring his GBS journey as he takes on Mount Ventoux in France around August 24, 2026—an “epic” 26 km (16.2-mile) climb to raise awareness for GBS and support the GBS Patient Assistance Fund.

Like so many living with GBS, Miles knows recovery is rarely a straight path.

“You can only do it one day at a time,” he said. “And some days, you need to stop and rest.”

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