In the News | GBS|CIDP Foundation International
LONDC & ANF Launch “Why Behind Your Weakness” Campaign
We’re excited to announce that the Late-Onset Neuromuscular Disease Consortium (LONDC) and ANF launched the…
Global Collaboration Sparks Policy Change in Turkey
In early 2025, the Foundation’s International team was presented with an evolving situation in Turkey…
Novel Key Terms For Managing CIDP Published in Neurology Journal
CONSHOHOCKEN, PA — The GBS|CIDP Foundation International is thrilled to announce the publication of shared…
New funding boosts Oxford research into inflammatory neuropathies
Sharing news as we wrap up our MMN awareness month regarding the research of Professor…
Rare Disease Day
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight…
Riding Beyond Diagnosis: One Cyclist’s 2,000-Mile Journey with MMN
In 1993, Clive Phillips stood at the bottom of the Col du Télégraphe, a mountain pass…
Meet our new Program Manager – LATAM!
Meet our new Program Manager, Sandra Bermudez Join us in welcoming Sandra Bermudez to the…
2026 Multifocal Motor Neuropathy Awareness Month
Donate to MMN Research 2026 Multifocal Motor Neuropathy (MMN) Awareness Month Visit our apparel store…
Basic Movements for Balance & Strength
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or…
NEW! Coffee Chat Young Adult Series
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient…
Principles of Care for CIDP Workshops 2025: Summary and Next Steps
Principles of Care for CIDP Workshops 2025: Summary and Next Steps To learn more about…
Write a Letter to Help Protect ACA Tax Credits!
To write your Senator/Representative, please fill out the letter below including your name, condition/relationship to…
Reflecting on the Denver Symposium and Providing Greater Patient-Centered Care
Going into the GBS|CIDP Foundation International’s 2025 Symposium in Denver, I was prepared for a…
Through a Volunteer’s Eyes: The Heart of the 2025 Symposium
Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human…
From Paralysis to Pilgrimage: Walking the Camino de Santiago for Guillain-Barré Awareness
We’re proud to highlight Lucy, our volunteer from Bulgaria, whose story of resilience continues to…
NEW! Interdisciplinary Health Committee for GBS, CIDP, and MMN
In 2025, we established the Interdisciplinary Health Committee for GBS, CIDP, and MMN, a collaborative…
How To Prepare For a Successful Infusion
https://youtu.be/-mi0zumSTNE?si=8xcpN9r-vctzJAZb
Regional Conference in Melbourne, AU
We’re headed back to Australia! The GBS|CIDP Foundation International is excited to announce that we…
New York City Patient Meet-Up
New York City Patient Meet-Up Wonderful patient and caregiver support meeting in New York City…
From Problem to Promise: Charting a Better Path for CIDP Patients Worldwide
Principles of Care The Problem: A Patchwork of Care for a Complex Disease Chronic inflammatory…
Takeda Introduces Low IgA Immunoglobulin Therapy with GAMMAGARD LIQUID ERC
On June 30, 2025, Takeda announced that the U.S. Food and Drug Administration approved GAMMAGARD…
Nancy DiSalvo Interviewed in Rarity Life Magazine; GBS|CIDP Foundation Featured in Two Powerful Articles
We are proud to share that Nancy DiSalvo, Director of International Affairs at the GBS|CIDP…
Help Develop a meaningful MMN-Specific Measure
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is…
High School Student Reflects on Foundation Internship
Every May, the senior class at Germantown Academy is sent off to participate in what is…
Representing the GBS|CIDP Foundation International in Mexico City
This week, the GBS|CIDP Foundation International is proudly represented in Mexico City as we continue…
Empowering Voices on Capitol Hill: Hill Day 2025
On May 8th, the GBS|CIDP Foundation International proudly hosted our annual Hill Day, bringing together…
Neuro Nurse Coffee Chat Recap: An Afternoon of Connection and Compassion
On May 22nd, the GBS|CIDP Foundation International hosted a heartfelt and informative Neuro Nurse Coffee…
Bridging Communities at the Mount Sinai Spinal Cord Injury Research Fair
In a powerful full-circle moment, a CIDP patient and dedicated GBS|CIDP Foundation volunteer, Amanda, returned…
First GBS|CIDP Bench in Italy
We're kicking off awareness month worldwide! Our volunteer from South Africa joined Nancy DiSalvo, her…
Leadership Collaborative
The first biennial GBS|CIDP Foundation Leadership Collaborative convened in Boston! Every two years, the Foundation will bring…
From Paralysis to Purpose
From paralysis to purpose — Shane Sumlin’s inspiring journey through GBS is a powerful reminder…
Symposium Patient Scholarship
Patient Scholarship Application Now Closed! We’re excited to offer a limited number of Patient Scholarships…
Foundation at 2025 AANN Conference!
Thank you to the AANN (American Association of Neuroscience Nurses) for inviting us to share patient stories,…
Nancy DiSalvo Participates in Neuromuscluar Disease Day, Italy
On Saturday 22 March 2025 Neuromuscular Diseases Day, Director of International Affairs, Nancy DiSalvo represented…
The urgent need for better treatments for Guillain-Barré Syndrome
"Our family was profoundly affected by Guillain Barre Syndrome in 2001 and now I am humbled…
New Insights into Diagnosis, Treatment, and Disability in People Living with Guillain-Barre Syndrome
Publication: Practical Neurology (Wayne, PA) Headline: New Insights into Diagnosis, Treatment, and Disability in People Living with…
New Survey Offers Detailed View of Short- and Long-Term Burden of Guillain-Barré Syndrome
To read about this article, visit https://www.morningstar.com/news/pr-newswire/20250228ph29744/new-survey-offers-detailed-view-of-short-and-long-term-burden-of-guillain-barr-syndrome
Rare Disease Event in Agrigento, Italy
The beautiful city of Agrigento, Italy – nominated as the Italian City of Culture 2025…
Global Medical Advisory Board Responds to GBS Outbreak, India
GBS is a rare immune disorder that damages peripheral nerves (that is, nerves outside of the brain…
NEW! CIDP Financial Assistance Fund
CIDP Financial Assistance Fund NORD’s CIDP Patient Assistance Program offers eligible individuals diagnosed with CIDP…
Inaugural Bi-Annual Collaborative Workshop
The GBS|CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected…
Nature Reviews publishes an article on Guillain–Barré syndrome
To read the Nature Reviews article on Guillain–Barré syndrome, please click here.
Respiratory syncytial virus (RSV)
Respiratory syncytial virus (RSV) is a highly contagious virus that causes severe respiratory illness, leading…
Support for Our California Community Affected by the Wildfires
"To our family and friends in the community affected by the California wildfires, our hearts…
University of Kansas Neuromuscular Review Course – January 25th
University of Kansas Neuromuscular Review Course January 25, 2025, at the Bellagio Hotel in Las…
Foundation Holds Event at Local Rehabilitation Hospital
Bryn Mawr Rehab Foundation Event On September 24, 2024, Bryn Mawr Rehabilitation Hospital in Malvern,…
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event The…
The Big Get Together
The Big Get Together Article was written by: Claire Shaw, CIDP Patient and GAIN Community…
Meeting of GBS|CIDP Switzerland
Meeting of GBS|CIDP Switzerland University Hospital Balgrist at Zurich On October 26, 2024, around 50…
GBS patient share his story with the New York Post
Michael Ring, a determined GBS warrior who has turned his personal struggle into an inspiring…
The GBS|CIDP Foundation joins the Critical Medicines Alliance
The Critical Medicines Alliance The GBS|CIDP Foundation International recently joined the Critical Medicines Alliance, an initiative…
Understanding CIDP and How Immunoglobulin Treatment Works
Educational Webinar Now On-Demand! “What Happens in CIDP and How Does Immunoglobulin Treatment Work?” is…
Update on COVID-19 Vaccine
This statement is provided by the GBS|CIDP Foundation Global Medical Advisory Board. We also encourage…
CIDP Assistance Funds – Now Open for Enrollment!
CIDP Assistance Funds – Now Open for Enrollment! The GBS|CIDP Foundation International is excited to…
A Multicenter Prospective Longitudinal Study of Clinical Outcomes, Disease Course, Health-Related Quality of Life, and Health Care Resource Utilization in Adult Patients With Multifocal Motor Neuropathy
This prospective longitudinal study will follow participants with Multifocal Motor Neuropathy over time and collect…
Patient Listening Session on CIDP
On June 5th, 2024, the GBS|CIDP Foundation International organized a patient-led listening session on Chronic…
Celebrating 34 Years of the ADA with Ralph G. Neas
An Interview with Ralph G. Neas, GBS and CIDP Written by: Ellie Herman, Advocacy Coordinator…
GBS|CIDP Foundation Hosts a Virtual Summit
Back by popular demand, our 2024 Virtual Summit, on Friday, September 27th and Saturday, September…
Bipartisan Legislation to Increase Access to Plasma-Based Medicines
Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty…
Health-Related Online Survey
We are excited to invite you to participate in an important health-related online survey about…
Research Article: Pathogenesis of GBS based on mice strains
Development of a major histocompatibility complex class II conditional knockout mouse to study cell-specific and…
NEW! Multifocal Motor Neuropathy (MMN) Patient Assistance Program
Multifocal Motor Neuropathy (MMN) Patient Assistance Program NORD's Multifocal Motor Neuropathy Patient Assistance Program offers…
Argenx Announces FDA Approval of VYVGART Hytrulo for Chronic Inflammatory Demyelinating Polyneuropathy
Argenx announced that the U.S. Food and Drug Administration (FDA) has approved VYVGART Hytrulo for…
Questions to Ask Your Healthcare Provider
Questions to Ask Your Healthcare Provider When living with GBS|CIDP, MMN or a related condition,…
Born to run: Brooklyn man diagnosed with rare disease is back doing what he loves
In honor of GBS|CIDP Awareness Month, Michael Ring, GBS patient, shares his story with News12…
Getting Well Outdoors
Ecotherapy Ecotherapy integrates nature-based activities and ecological awareness into therapeutic practices, aiming to enhance mental…
Annexon Announces Positive Topline Results from Pivotal Phase 3 Trial for First-in-Class C1q Blocking Antibody ANX005 in Guillain-Barré Syndrome
“For nearly 30 years there has been quite literally no advancement in treatments for GBS.…
GBS Patient, Michael Ring, Interviews with Local TV Station
Inspiring stories of resilience remind us of the human spirit's strength. One such story is…
A Capitol Hill Kick-Off for GBS|CIDP Awareness Month
2024 Hill Day Written by Ellie Herman, Advocacy Coordinator To kick off the first day…
Early Detection and Diagnosis of CIDP
Early Detection and Diagnosis of CIDP Discover firsthand insights from CIDP patient and Foundation staff…
Navigating Financial Assistance and Insurance: Your Comprehensive Guide
Navigating Financial Assistance and Insurance: Your Comprehensive Guide Managing the financial aspects of chronic conditions…
First Annual Dr. Arthur Asbury Endowment Lecture
We are honored to announce the first annual Dr. Arthur Asbury Endowment Lecture, sponsored by…
Statement from GMAB, GBS in Mexico.
GBS is a rare immune disorder that damages peripheral nerves (that is, nerves outside of the brain…
Andrew Harris, GBS survivor, creates fundraising event in Maine
Andrew Harris, a GBS survivor, has combined his passion for beer with a desire to…
2024 MMN Research Grant Announcement
In 2022, the Foundation embarked on fundraising endeavors aimed at research dedicated to advancing treatments…
Applying for Social Security Disability Insurance
Applying for Social Security Disability Insurance Written by: Amy Stein, MSW, LCSW, Health Navigator During…
Executive Director, Lisa Butler discusses legislation, for patients on Medicare, with NHC
Executive Director, Lisa Butler discusses legislation, for patients on Medicare, with NHC. Full article here: https://nationalhealthcouncil.org/blog/guest-post-legislation-needed-to-improve-access-to-vital-treatment-for-medicare-rare-disease-patients/
Why Rare Conditions Deserve Attention and Recognition as a Global Health Concern
As Rare Disease Day is approaching, CSL Behring is in touch with leaders of patient…
Brenda, Making the Most of Now with her Rollator
Brenda Perales is a patient of Multifocal Motor Neuropathy (MMN) and has been associated with…
New England Disabled Sports – Adaptive Sports Opportunity
New England Disabled Sports (NEDS) is a nonprofit organization based in New Hampshire. They provide…
A Practical Guide to Identify Patients With Multifocal Motor Neuropathy, a Treatable Immune-Mediated Neuropathy
A Practical Guide to Identify Patients With Multifocal Motor Neuropathy, a Treatable Immune-Mediated Neuropathy Click…
FDA Has Approved New Treatment Options for CIDP Patients
FDA has approved both Takeda’s HYQVIA, a new maintenance therapy for patients with CIDP, and…
Breaking Down Barriers: Medicare Options for Infusion and Specialty Therapies
Palmetto Infusion Patient Advocate Chrissie Jenkins, LISW-CP, and Medicare Benefits Counselor and Pharmacist Jerilyn Arneson,…
[On Demand Webinar] Living With Multifocal Motor Neuropathy (MMN)? Why Your Participation in Trials Matters!
Now Available on Demand Join a neurologist, patient advocate and person with MMN for our…
Foundation Welcomes New International Affairs Director
New International Affairs Director Please join us in welcoming Nancy Di Salvo to the GBS|CIDP…
Takeda Receives Positive CHMP Opinion for HYQVIA® as Maintenance Therapy in Patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
TAKEDA receives positive CHMP opinion for HYQVIA® as maintenance therapy in patients with Chronic Inflammatory…
Call on Airlines to Respect People with Rare Conditions and their Medical Equipment
The GBS|CIDP Foundation International acknowledges the urgent need for airlines to respect and improve their…
GBS Patient Completes his 7th Marathon
Michael was diagnosed with GBS nine and a half years ago as he was getting…
Adults with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Family Caregivers Needed
Listed by: Interface Analysis Associates LLC Who is Eligible? Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) patients…
Inspiring the Next Generation of Research at the GBS|CIDP Foundation International Patient Symposium
As part of the 2023 International Patient Symposium, the Foundation was thrilled to welcome seven…
Plasma Awareness Event at Meredith College
Written by Ellie Herman, Advocacy Coordinator To recognize International Plasma Awareness Week and educate their…
UnitedHealthcare dropping four immunoglobulin products from formulary
UnitedHealthcare (UHC), a private insurance company that provides health insurance to more than 25 million Americans nationwide,…
September Hill Visit
In anticipation of the Foundation’s most recent iteration of our Medicare IVIG Access Enhancement Act…
Tips and Tricks for Traveling
The Coffee Chat, Tips and Tricks for Traveling, hosted by Foundation staff members Kelly McCoy…
Foundation Co-hosts Open House with Bryn Mawr Rehab
In July of 2023, the Foundation co-hosted an Open House with Bryn Mawr Rehabilitation Hospital…
Volunteer spreads awareness in local hospitals
There is no greater force than like-minds joining together for a common mission to change…
Taking Volunteering to the Next Level
Taking Volunteering to the Next Level The Foundation volunteers are taking volunteering to a whole…
Statement regarding GBS alert in Peru
Statement regarding GBS alert in Peru July 10, 2023 The Foundation and its Global Medical…
Honorary INC Plenary Lecture Awarded to GBS|CIDP Foundation International
The Peripheral Nerve Society (PNS) is an international non-profit organization of scientists, physicians, and other…
Community Finding Comfort with Rare Disorder
Rick Forney, the Mid-Atlantic Regional Director for the Roanoke Chapter and GBS patient, hosted a…