The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 9 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted yet another exciting Walk & Roll fundraising event with a record-breaking 320 walkers in attendance! Thus far the event has raised $10,356…
Read More about Clovis Walk & Roll Breaks its Own Record!
In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…
Read More about CIDP Disease Burden — Results of a US Nationwide Patient Survey
On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and Article
Read More about Clovis, CA Walk & Roll Chair in the News
This Rare Disease Day (February 28), the GBS|CIDP Foundation will be launching an online Patient Registry for patients with GBS|CIDP or variants of the condition
Read More about New GBS|CIDP Patient Registry Launching on Rare Disease Day!We would like to congratulate Gil I. Wolfe, MD, dedicated member of our Global Medical Advisory board for his election as president of the New York State Neurological Society (NYSNS). He assumed the presidency following the society’s annual graduate medical education conference held in New York City on Jan. 5. Read Full Article
Read More about GMAB Member Elected President of NY State Neurological Society