Foundation News

Congress Recognizes the month of May as GBS|CIDP Awareness Month

Posted on May 24, 2019

On May 22, Congressman Blumenauer, of Oregon, recognized the Month of May as GBS|CIDP AWARENESS Month and introduced the Medicare IVIG Access Enhancement Act to the House of Representatives. Read full script here Additionally, Congressman Holding of North Carolina also introduced the Medicare IVIG Access Enhancement Act on May 23rd. Read full script here. Download…

Nancy DiSalvo Elected to GBS|CIDP Board of Directors

Posted on May 22, 2019

Please join us in welcoming Nancy DiSalvo to the GBS|CIDP Board of Directors! A

Clovis Walk & Roll Breaks its Own Record!

Posted on March 20, 2019

The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 9 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted yet another exciting Walk & Roll fundraising event with a record-breaking 320 walkers in attendance! Thus far the event has raised $10,356…

CIDP Disease Burden — Results of a US Nationwide Patient Survey

Posted on March 12, 2019

In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…

Clovis, CA Walk & Roll Chair in the News

Posted on March 5, 2019

On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and Article