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On August 24, Miles for GBS , his wife, and several close friends will travel to France as he takes on Mount Ventoux in honor of his GBS journey. Through this climb, he hopes to raise funds and awareness to help ensure that others affected by GBS have access to the care, resources, and support they need on their own road to recovery. The funds he raises will provide financial assistance for patients diagnosed with GBS to ensure they have access to the care, resources, and support they need on their own road to recovery.

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

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Open post by gbscidpfoundation with ID 17965039742938807

On August 24, Miles for GBS , his wife, and several close friends will travel to France as he takes on Mount Ventoux in honor of his GBS journey. Through this climb, he hopes to raise funds and awareness to help ensure that others affected by GBS have access to the care, resources, and support they need on their own road to recovery. The funds he raises will provide financial assistance for patients diagnosed with GBS to ensure they have access to the care, resources, and support they need on their own road to recovery.

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

The GBS|CIDP Foundation International is proud to share that novel consensus key terms for managing CIDP have been published in Neurology® — helping create a shared language between patients and healthcare professionals.

For years, terms like response to treatment, relapse, and remission have been interpreted differently across care and research settings. Through our Leadership Collaborative, patients and global experts came together to define these terms and move toward more consistent care, stronger communication, and improved readiness for future clinical research.

This work reflects what’s possible when patient voices and medical expertise lead together.

Learn more about the Leadership Collaborative and how this initiative is shaping the future of care by clicking the link in our bio.

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Open post by gbscidpfoundation with ID 18323840011278001

The GBS|CIDP Foundation International is proud to share that novel consensus key terms for managing CIDP have been published in Neurology® — helping create a shared language between patients and healthcare professionals.

For years, terms like response to treatment, relapse, and remission have been interpreted differently across care and research settings. Through our Leadership Collaborative, patients and global experts came together to define these terms and move toward more consistent care, stronger communication, and improved readiness for future clinical research.

This work reflects what’s possible when patient voices and medical expertise lead together.

Learn more about the Leadership Collaborative and how this initiative is shaping the future of care by clicking the link in our bio.

GBS|CIDP Foundation International is excited to share the first edition of the GBS|CIDP Global Update, our new bi-annual newsletter that highlights the incredible work happening around the world. Inside, you’ll discover stories of impact, regional initiatives, global partnerships, and the inspiring individuals helping ensure that no one walks this journey alone.

Check out the first edition of the GBS|CIDP Global Update below and see the impact our global community is making around the world!

https://www.gbs-cidp.org/wp-content/uploads/2026/06/Summer-Global-Newsletter.pdf

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Open post by gbscidpfoundation with ID 18092432606022713

GBS|CIDP Foundation International is excited to share the first edition of the GBS|CIDP Global Update, our new bi-annual newsletter that highlights the incredible work happening around the world. Inside, you’ll discover stories of impact, regional initiatives, global partnerships, and the inspiring individuals helping ensure that no one walks this journey alone.

Check out the first edition of the GBS|CIDP Global Update below and see the impact our global community is making around the world!

https://www.gbs-cidp.org/wp-content/uploads/2026/06/Summer-Global-Newsletter.pdf

Highlights from the Peripheral Nerve Society (PNS) meeting in Maastricht, Netherlands.

From connecting with attendees at the GBS|CIDP Foundation booth, to bringing together past, current, and new GMAB members, to Nancy and Richard presenting priorities on the main stage as part of the Inflammatory Neuropathy Consortium—it was a valuable time spent advancing collaboration and elevating the patient voice.

#peripheralnervesociety #PNS #cidpwarrior #cidpawareness #guillainbarresurvivor #guillainbarresyndrome #multifocalmotorneuropathy #guillainbarré

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Open post by gbscidpfoundation with ID 18013723178900746

Highlights from the Peripheral Nerve Society (PNS) meeting in Maastricht, Netherlands.

From connecting with attendees at the GBS|CIDP Foundation booth, to bringing together past, current, and new GMAB members, to Nancy and Richard presenting priorities on the main stage as part of the Inflammatory Neuropathy Consortium—it was a valuable time spent advancing collaboration and elevating the patient voice.

#peripheralnervesociety #PNS #cidpwarrior #cidpawareness #guillainbarresurvivor #guillainbarresyndrome #multifocalmotorneuropathy #guillainbarré

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