Get Involved: Volunteer with the Foundation
The Foundation always welcomes new volunteers! If you’ve been affected by GBS, CIDP, or a variant, then you understand how important it is to have access to information and support. Our volunteers are key members of the Foundation team, and are invaluable in helping the Foundation support patients and their families. There are a variety of ways for you to get involved, and we are happy to work with you to find a role that best suits your interests.
With rare diseases, it’s easy to feel alone, but the Foundation is committed to building an inclusive community of patients, caregivers, family members, and medical professionals who are all united in support of our members. As many of you know from experience, having someone to talk to who understands what you are going through makes a world of difference. Our team of Liaisons and Points of Contact–who are all either survivors/patients themselves or caregivers–are here to speak with patients and their families and possibly even visit with them.
Additionally, our Liaisons conduct semi-annual chapter meetings in over 100 locations across the United States! These chapter meetings bring together the GBS|CIDP community and profile a wide-range of educational speakers.
If you are interested in volunteering for patient support, please fill out the form at the end of the page.*
The Foundation is committed to improving the lives of GBS|CIDP patients by advocating for political reforms that benefit our patients. To learn more about advocacy with the Foundation, please visit our Advocacy Page and contact us (firstname.lastname@example.org).
Each year, the Foundation hosts a variety of fundraising events including our signature “Walk and Roll” event. Please visit our Fundraising Page to learn more about our Walk and Roll event and other fundraising opportunities.
*While we appreciate all inquiries, please understand that we are limited in the number of volunteers we can accommodate.