On May 8th, the GBS|CIDP Foundation International proudly hosted our annual Hill Day, bringing together more than 20 passionate patients and advocates from across the country to empower their voices in support of the Medicare IVIG Access Enhancement Act. This vital piece of legislation would expand Medicare Part B coverage for in-home IVIG treatments for those living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Multifocal Motor Neuropathy (MMN).
Our advocates shared powerful personal stories and met with lawmakers to underscore the importance of access to critical, life-sustaining therapies in the comfort and safety of home. If passed, this bill would be a game-changer—ensuring that Medicare beneficiaries with CIDP and MMN receive the timely care they need, without unnecessary barriers. Together, we are making strides toward a future where no patient faces treatment delays or disruptions in their lives due to changes in coverage. Thank you to all who joined us in Washington, D.C. for our 2025 Hill Day, and continue to champion our mission of support, education, research, and advocacy.
For those looking to get more involved, later this week we will be launching our Grassroots Letter Writing feature, which will allow volunteers to reach out on behalf of the Foundation to their representatives. We are so excited to have this opportunity to demonstrate the breadth and diversity of patient experiences and use them to facilitate greater access to resources for patients who need them, and research on the conditions we serve.
For more information on advocacy, visit https://www.gbs-cidp.org/advocacy/
