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As Rare Disease Day is approaching, CSL Behring is in touch with leaders of patient advocacy groups to explain why rare conditions deserve attention and recognition as a global health concern. Click here to read what Lisa Butler, the Executive Director of GBS|CIDP Foundation, and other nonprofits have to say.
Having any disease can be frightening but having a rare disease is not only traumatic and scary, but also isolating. You can feel as if no one in the world would ever understand what you might be going through. For better awareness, more accessible support, and better treatments, we must all play our role and lift up these communities so they may also be in the light and know that they are cared for and that they matter.
Lisa Butler, Executive Director