Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19
Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19
What is Convalescent Plasma?
By Dr. David Saperstein Antibodies (also known as immunoglobulins) play an important role in health and illness. Many of you regularly receive intravenous immunoglobulin (IVIG) to treat your autoimmune disease. Flooding a person’s system with antibodies from normal, healthy individuals can reverse problems caused by abnormally overactive immune systems. However, providing antibodies that fight a specific infection can…
Join us for Virtual Ask the Experts
As we have postponed spring chapter meetings, fundraising walks and activities, and in the theme of “working together in new and innovative ways,” we have developed a virtual “Ask the Expert” educational series featuring medical experts from the Foundation’s Global Medical Advisory Board. Our educational series will be pre-recorded, and hosted by members of the…
Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy
Partnership brings together world-leading plasma companies to focus on developing and delivering a hyperimmune immunoglobulin in the global fight against COVID-19.
Work Continues for CSL Behring During the Pandemic
Patient groups praise U.S. guidelines that designate plasma centers, manufacturing sites as essential. See full article
Update on Home Infusion & Medicare During COVID-19 Pandemic
Earlier this week, the Center for Medicare and Medicaid Services (CMS) released new guidelines for the coverage of home infusion during the COVID-19 pandemic. The new guidelines allow for more flexibility for patients and their physicians to decide the best setting for ongoing treatments. Given your current situation, you may be able to access home…
#ItsMyTurn
In partnership with Immunoglobulin National Society, we encourage our community to join the #ItsMyTurn campaign. This campaign encourages people who are able, to take action that directly impacts the patients we serve, by donating plasma! How Do I Donate and Join the Campaign? Locate your nearest Plasma Donation Center Donate plasma. Take a picture or a…
NHC Webinar – Coronavirus Preparedness for People with Chronic Diseases, What Caregivers Need to Know
COVID-19 is causing significant concerns globally. Watch a recording of this March 27 Webinar produced by the National Health Council, for caregivers of patients with chronic diseases. The webinar discusses how caregivers can best avoid the illness and care for themselves while also helping those who are not well. https://nationalhealthcouncil.org/coronavirus-preparedness-for-people-with-chronic-diseases-what-do-caregivers-need-to-know/
Advocating for Plasma Donations and Home Infusion
The GBS|CIDP Foundation International recently led the American Plasma Users Coalition (APLUS) in creating a letter to federal and state agencies regarding two important topics to our community: plasma donations and home infusion. The Foundation and APLUS want to make sure that lawmakers are aware that plasma collection centers are considered “essential” according to the…
COVID-19 FAQ from GBS|CIDP & Variant Community
Informing our GBS|CIDP Foundation community is our top priority. This week we have received a number of questions regarding COVID-19 through email, phone calls, and our social media channels. Two of the primary concerns are addressed below. The answers are provided by the GBS|CIDP Foundation International Global Medical Advisory Board. As we continue to navigate…
Update on Coronavirus (COVID-19) – March 19th
Dear GBS|CIDP Community, We know that this is a challenging time for everyone as the news of the pandemic is evolving each day. Please know we are here for you and the GBS|CIDP Foundation International is committed to addressing your concerns as accurately and efficiently as possible. A number of our members have reached out…
Advocacy from Home in Spring, 2020
There is no doubt that we are currently living in a time that is unprecedented! I hope that we all find ways to stay safe, comfortable, and optimistic during the COVID-19 pandemic that is happening across the world. We at the Foundation are thinking of you all! Here in the US, we are seeing that…
Ask Your Senators to Keep GBS on the DOD PRMRP
One of the cornerstones of our legislative efforts is securing funds for more research into Guillain-Barre Syndrome. The Department of Defense (DOD) maintains a Peer-Reviewed Medical Research Program (PRMRP) that funds research exclusive to topics or medical conditions on a list created by a committee in the Senate. Help us keep GBS on the list…
NHC Webinar – Coronavirus Preparedness for People with Chronic Diseases Webinar
COVID-19 is causing significant concerns globally. Watch a recording of this March 13 Webinar produced by the National Health Council, for patients with chronic diseases. The webinar discusses how patients can best avoid the illness, and what to do if they feel sick. Watch Webinar here or visit NHC website for more information.
A Statement from Executive Director, Lisa Butler, with regard to COVID-19 and Planning Ahead
We are all in this together, and the GBS|CIDP Foundation International will make every effort to keep our community informed and updated.