In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…Read More about CIDP Disease Burden — Results of a US Nationwide Patient Survey
On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and ArticleRead More about Clovis, CA Walk & Roll Chair in the News
This Rare Disease Day (February 28), the GBS|CIDP Foundation will be launching an online Patient Registry for patients with GBS|CIDP or variants of the conditionRead More about New GBS|CIDP Patient Registry Launching on Rare Disease Day!
We would like to congratulate Gil I. Wolfe, MD, dedicated member of our Global Medical Advisory board for his election as president of the New York State Neurological Society (NYSNS). He assumed the presidency following the society’s annual graduate medical education conference held in New York City on Jan. 5. Read Full ArticleRead More about GMAB Member Elected President of NY State Neurological Society
Imagine the shock and helplessness of seeing your child’s body suddenly growing weak, clumsy, and unable to walk, or even stand; the fear that they may never live a normal life, or even survive this terrifying, disabling disorder.Read More about In Response to NY Times article, “What is the Blood of a Poor Person Worth?”