COVID-19 Vaccines and the GBS|CIDP Community
The GBS|CIDP Foundation has received many questions about COVID-19 and its relationship to Guillain-Barré syndrome and CIDP.
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50 To Forward
This year, we are strengthening our advocacy efforts and putting out a call for a leader in each of the 50 states! These 50 leaders will help us push our goals FORWARD! Here is what we expect from our advocacy leaders: Be informed about all of our advocacy priorities, especially our policy priority of creating…
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May is GBS|CIDP Awareness Month
Share the Aware #GBSCIDPsharetheAWARE Although 2020 brought unprecedented challenges and changes, the world over, 2021 has provided an opportunity to refresh, reset and renew. We enter this year with new and innovative ways of connecting, an expansion of Foundation programs, and a newly inspired sense of hope for the year ahead. We hope you have found…
Read More about May is GBS|CIDP Awareness MonthInformation on Shingrix
The FDA is committed to safety and transparency for all Americans using any medicine. As a result of their commitment to safety and transparency, the FDA has decided to include GBS on information about the possible side effects of the Shingrix vaccine for shingles, given to older Americans. This safety warning ONLY applies to one…
Read More about Information on ShingrixCoping with School & Treatment Plan for GBS|CIDP
By Megan Kaump A diagnosis of GBS, CIDP, or variants is frightening and devastating for anyone, but when a child is diagnosed it adds a very different set of emotions and experiences. It is heart- breaking to see your child go through such challenges and there is the added component of how the child’s schooling…
Read More about Coping with School & Treatment Plan for GBS|CIDPHow Do We Care for the Caregiver?
How do we care for the caregiver? GBS, CIDP, and variants such as MMN, not only affect patients but can have a huge impact on the entire family. Primary caregivers are so focused on caring for the patient, and often barely have time to notice that their own lives have been turned upside (and sideways)…
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