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Benson Clinical Research Fellowship
Claire Bergstrom Johnson My decision to apply for the Benson Fellowship stems from my commitment…
Advocating Locally with the Foundation
There's a persistent idea in advocacy that the work happens in Washington, that unless you've…
The NAVIGATE-CIDP Study
The NAVIGATE-CIDP Study, sponsored by argenx and supported by PicnicHealth, is designed to better understand…
Speaker Series: Understanding Vaccines and GBS, CIDP & MMN
Vaccines can be an important topic of discussion for individuals living with GBS, CIDP, MMN,…
Claire, Recipient of the Benson Research Fellowship: One Step Closer to a Cure
For Dr. Claire Bergstrom Johnson, becoming a scientist wasn't just a career choice—it was personal. When her…
Julie Bell’s Clinical Trial Journey: Why She’d Participate Again
In rare disease communities like ours, progress in drug development is often slow, in part…
