By Chelsey Fix, Advocacy Manager This May, the GBS|CIDP community took Awareness Month to a whole new level! Patients and caregivers were encouraged to be their own best advocate by joining a congressional letter writing campaign (perhaps you read about it on our lively social media channels?!). As the last day of GBS|CIDP awareness month…Read More about We Have The Best Advocates!
On May 22, Congressman Blumenauer, of Oregon, recognized the Month of May as GBS|CIDP AWARENESS Month and introduced the Medicare IVIG Access Enhancement Act to the House of Representatives. Read full script here Additionally, Congressman Holding of North Carolina also introduced the Medicare IVIG Access Enhancement Act on May 23rd. Read full script here. Download…Read More about Congress Recognizes the month of May as GBS|CIDP Awareness Month
Please join us in welcoming Nancy DiSalvo to the GBS|CIDP Board of Directors! ARead More about Nancy DiSalvo Elected to GBS|CIDP Board of Directors
An update from Chelsey Fix, Advocacy Manager 17 Days = 100 Advocates! We are officially halfway through GBS|CIDP Awareness Month, and I am THRILLED to share with you that 100 members of the GBS|CIDP community have written a letter to their Members of Congress! That is 100 times that Senators and Representatives had a chance…Read More about GBS|CIDP Awareness Month Going Strong!
An article published in Brain Journal, September 25, 2018, regarding research findings of the International Guillain Barre Outcome Survey (IGOS), partially supported by GBS|CIDP Foundation International, received the “Editor’s Choice.” Findings of IGOS are significant to the GBS community as noted in the abstract summary of articleRead More about Dr. Bart Jacobs, Vice Chairman of GMAB, and co-authors, “Editor’s Choice,” Brain Journal