Honor Your Hero this MAY for GBS|CIDP Awareness Month 30,000 MEMBERS = 30,000 HEROIC STORIES TO TELL Whether you are a caregiver, friend, family member or patient, this May, GBS|CIDP Awareness month, we are asking that you send us your “Honor Your Hero” story to be shared with our community, and far beyond. Sharing your…Read More about May is GBS|CIDP Awareness Month – Honor Your Hero!
On June 10, 2018 the GBS|CIDP Foundation International will be holding its 5th Annual New Jersey Walk & Roll. The event will be chaired by local resident, and Foundation volunteer, Susan Salzmann. Recently we had the pleasure of sitting down with Susan as she shared the complex story of her husband’s personal journey with CIDP….Read More about A Life and Legacy Dedicated to Research
The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 35th Anniversary Celebration presenting the Rare Impact Awards.Read More about Founder Estelle Benson Named 2018 NORD Honoree for Abbey S. Meyers Leadership Award
The Food and Drug Administration granted marketing clearance Friday for Hizentra, a treatment for chronic inflammatory demyelinating polyneuropathy (CIDP) developed by CSL Behring. Lisa Butler, executive director of the GBS/CIDP Foundation International, said “The approval of Hizentra offers patients who were once burdened by traveling to the infusion center or hospital the flexibility to self-administer their treatment at…Read More about FDA approves CSL Behring treatment for CIDP
The GBS|CIDP Walk & Roll program is a great opportunity to raise awareness, build a local support network, and get involved with GBS|CIDP community. This year we are pleased to announce that funds raised through the Walk & Roll program will be used to support research studies focused on the treatment and diagnosis for GBS|CIDP…Read More about Where Do Walk Donations Go? Research!
The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 10 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted an exciting Walk & Roll fundraising event with a record-breaking 300 walkers in attendance! Thus far the event has raised over $6,500 (and counting) to support…Read More about Clovis Walk & Roll Breaks Record!