CIDP Disease Burden — Results of a US Nationwide Patient Survey

Posted on March 12, 2019

In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…

Clovis, CA Walk & Roll Chair in the News

Posted on March 5, 2019

On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and Article

New GBS|CIDP Patient Registry Launching on Rare Disease Day!

Posted on February 13, 2019

This Rare Disease Day (February 28), the GBS|CIDP Foundation will be launching an online Patient Registry for patients with GBS|CIDP or variants of the condition

GMAB Member Elected President of NY State Neurological Society

Posted on February 13, 2019

We would like to congratulate Gil I. Wolfe, MD, dedicated member of our Global Medical Advisory board for his election as president of the New York State Neurological Society (NYSNS). He assumed the presidency following the society’s annual graduate medical education conference held in New York City on Jan. 5. Read Full Article

In Response to NY Times article, “What is the Blood of a Poor Person Worth?”

Posted on February 5, 2019

Imagine the shock and helplessness of seeing your child’s body suddenly growing weak, clumsy, and unable to walk, or even stand; the fear that they may never live a normal life, or even survive this terrifying, disabling disorder.