Foundation News

August Advocacy

Every year, Congressional Members take the month of August to spend time in their State or District to learn more about the issues that matter most to the people they represent. This is a great chance to connect with the local office – every Member has at least one office in their State or District…

Read More

Living with Multifocal Motor Neuropathy

The World of MMN: Living with Multifocal Motor Neuropathy The GBS|CIDP Foundation International, in collaboration with NeuroCareLive, is pleased to promote an interactive patient educational event highlighting Multifocal Motor Neuropathy (MMN). In this program, you will learn more about recognizing and coping with the condition of MMN, from both Dr. Jeffrey Allen and Jen, a…

Read More

2022 GBS|CIDP Awareness Month

May is GBS|CIDP Awareness Month May is GBS|CIDP Awareness Month around the world!  This year we spreading awareness and support through new and innovative programming, including the Be the Bridge Awareness Campaign directed to Healthcare Professionals. Additionally we are launching a New Advocacy Training series, and an Ask the Expert Presentation, you will not want…

Read More

Sanofi Clinical Trial – CIDP Patients

 A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Sanofi is currently recruiting patients to evaluate effectiveness and safety of a new investigational medicine called “SAR445088” for the treatment of CIDP. SAR445088 is a monoclonal antibody with a new mechanism of action as it targets the complement system directly. All…

Read More

Social Media Ask the Experts

What we learned from January, Social Media Ask the Experts On January 20, 2022, the GBS|CIDP Foundation International sat down with Hannah Joya and Melody Olander for Episode 13 of our Ask the Experts Series, “Let’s Get Social,” to discuss their involvement in the GBS, CIDP community and specifically the role that social media plays…

Read More

Announcing 2022 Benson Fellowship Awardee

Announcing 2022 Benson Fellowship Awardee, Elba Pascual Goñi MD, PhD The Benson Fellowship is a three-year fellowship that provides an opportunity for scientists to engage in peripheral nerve of study. The Fellowship provides funds of up to $150,000 for three years, but only one Benson fellowship is awarded every three year period. We are pleased…

Read More

Press Release: February is Multifocal Motor Neuropathy (MMN) Awareness Month

[CONSHOHOCKEN, PA] — GBS|CIDP Foundation International, January 24, 2022 February is Multifocal Motor Neuropathy Awareness (MMN) Month. The GBS|CIDP Foundation International will bring focus, research funding, and ways to for patients and caregivers to raise awareness locally as well as connect with others in the MMN worldwide community. An international grassroots fundraising campaign will also…

Read More

GMAB Statement on Vaccine Boosters and the GBS|CIDP Community

This statement is provided by the GBS|CIDP Foundation Global Medical Advisory Board.  We also encourage you to contact your healthcare provider about whether it would be a good idea for you to have a third COVID19 vaccine dose. There has been much discussion about third shots or “booster shots” of certain COVID19 vaccines for individuals…

Read More

Live Webinar! Living with Multifocal Neuropathy (MMN)

Live Webinar! Living with Multifocal Neuropathy (MMN) February 24th, 2022 1:00PM – 2:00PM EST Program Description: The GBS|CIDP Foundation International, in collaboration with PlatformQ, is pleased to announce a LIVE program highlighting Multifocal Motor Neuropathy (MMN), sponsored by Takeda. In this program, you will learn more about recognizing and coping with the condition of MMN,…

Read More

February, Multifocal Motor Neuropathy(MMN) Awareness Month

February is Multifocal Motor Neuropathy(MMN) Awareness Month MMN (Multifocal Motor Neuropathy) is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system. Typically, MMN is slowly progressive, resulting in asymmetrical weakness of a patient’s limbs. The clinical course of MMN is chronically progressive without remission and the…

Read More

Pfizer-BioNTech COVID-19 Vaccine for children ages 5 through 11 years

On October 29, 2021, the U.S. Food and Drug Administration authorized the emergency use of the Pfizer-BioNTech COVID-19 Vaccine for the prevention of COVID-19 to include children ages 5 through 11 years.  The vaccine was studied in approximately 3,100 children aged 5 through 11, without reported serious side effects. No cases of myocarditis occurred during…

Read More

Global Medical Advisory Board (GMAB) Statement on Vaccines

COVID19 vaccines are different from flu vaccines. We are not seeing evidence that COVID19 vaccines are more likely to cause GBS, even in individuals who have had GBS brought on by other vaccines. Therefore, we do not see prior GBS as a reason not to get a COVID19 vaccine. 

Read More

16th Biennial Patient Symposium

Join us on October 20-22, 2022 in sunny Ponte Vedra, Florida!  The Sawgrass Marriott Golf Resort & Spa will be our home for the weekend! With extraordinary amenities and a terrific location, Sawgrass Marriott Golf Resort & Spa offers an unforgettable destination for work and play. You’ll find our hotel in Ponte Vedra Beach, just…

Read More

Pagination