Vitalize For US Audience Only What is the purpose of this study? We want to understand whether the study medicine can improve the symptoms of CIDP and their impact ondaily activities. You may be able to join the study if you meet these and other criteria: Are at least 18 years of age: The study…
Mobilize Clinical Trial for CIDP For US Audience Only What is the purpose of this study? We want to understand whether the study medicine can improve the symptoms of CIDP and their impact on daily activities. You may be able to join the study if you meet these and other criteria:Are at least 18 years…
Speaker Series – Episode 13 Summary In this Speaker Series episode, we talked with Ms. Kate Costello, a Licensed Nutrition Specialist, Mentor and Wellness coach, about nutrition and how to eat in the face of challenges with our conditions. Resources Learn more about our Patient Registry Explore other Speaker Series Summaries Join a community with…
Bryn Mawr Rehab Foundation Event On September 24, 2024, Bryn Mawr Rehabilitation Hospital in Malvern, PA hosted an Open House for our local patient community. Moderated by Maria Harris, DPT, PT with Main Line Health, the event showcased the state-of-the-art facility and their commitment to creating a comprehensive rehabilitation program for each patient. Attendees were…
University of Alabama at Birmingham (UAB) team joins the Birmingham Walk & Roll event The GBS|CIDP Foundation International team was honored to have the University of Alabama at Birmingham (UAB) team join us for the Birmingham Walk & Roll event. Thanks to Foundation staff member, Lori, for her pivotal role in connecting with Eroboghene Ubogu…
The Big Get Together Article was written by: Claire Shaw, CIDP Patient and GAIN Community Member When Rich asked me whether I wanted to say a few words today about the GBS and CIDP community, it made me wonder precisely how long I’ve been a member of the club that no one wants to be…
Meeting of GBS|CIDP Switzerland University Hospital Balgrist at Zurich On October 26, 2024, around 50 members of the GBS/CIDP Initiative Switzerland gathered at Balgrist University Hospital in Zurich for a valuable event focused on exchange and education. The day provided our members with the opportunity to deepen their knowledge about Guillain-Barré Syndrome (GBS) and Chronic…
Michael Ring, a determined GBS warrior who has turned his personal struggle into an inspiring journey of resilience. Diagnosed with Guillain-Barré Syndrome (GBS), he faced incredible physical challenges that could have ended his marathon dreams. But instead of giving up, he pushed through, reclaiming his strength step by step. Now, he’s sharing his story with…
Speaker Series – Episode 12 Summary In this Speaker Series episode, Dr. Jeffery Allen educates us about the current treatments for GBS, CIDP, and MMN as well as explain current trials and their findings. Dr. Allen is an associate professor of neurology at the University of Minnesota, adjunct faculty at Northwestern University, and the chairman…
The Critical Medicines Alliance The GBS|CIDP Foundation International recently joined the Critical Medicines Alliance, an initiative launched by the European Commission for the next 5 years. The objective of the Alliance is “to serve as a consultative body to identify priorities for action and propose solutions to strengthen the supply of critical medicines in the European Union,…
Speaker Series – Episode 11 Summary In this Speaker Series episode, we talked with Ms. Michele Dearing, a member of our board of directors and attorney in Washington, DC. Michele is a GBS survivor and currently lives with CIDP. She’s very active in many of our patient programs and advocacy initiatives. Disclaimer: The information provided…
We are sharing this research opportunity on behalf of Evidera, an independent healthcare research company, on a study examining side effects associated with steroid medications. Evidera’s team is hoping to gain more insight into these side effects and how they impact one’s quality of life by conducting one-on-one interviews with individuals with CIDP, who have…
LaGrippe Research, a market research firm specializing in healthcare, is inviting individuals diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), as well as family members who help support/care for a loved one diagnosed with CIDP, to participate in their research study. This will be an in-person usability study, and those who qualify will be invited to…
Speaker Series – Episode 10 Summary In this Speaker Series episode, we talked with Dr. Stojan Peric, a researcher and professor, at the University of Belgrade in Serbia and a neurologist at the Clinical Center of Serbia. Catch up on the conversation with Dr. Peric and learn what fatigue is, how it is triggered, and…
Educational Webinar Now On-Demand! “What Happens in CIDP and How Does Immunoglobulin Treatment Work?” is now available to watch anytime on-demand. Immunoglobulin (Ig) treatments are a type of therapy that doctors use to help people with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). It’s important for patients to know how these treatments work and to feel comfortable…