Foundation News

Patient and Caregiver Preferences on CIDP Treatment

Patient and Caregiver Preferences on CIDP Treatment A research team is looking for patients and their caregivers to participate in an online survey about experiences with CIDP and preferences for CIDP treatments. Your perspectives will help improve the understanding of patients’ and caregivers’ preferences and inform the development of future potential CIDP treatments. If you…

Read More

CIDP Patient Perspectives on IG Treatment

CIDP Patient Perspectives on IG Treatment A research team is looking for participants for a market research study on treatments for Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). If you currently receive immunoglobulin (or Ig) therapy for CIDP, you might be a good fit for this study. Help others with CIDP by participating in this important research….

Read More

Share Your Experience with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

Share Your Experience with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Pinpoint Patient Recruiting, a market research recruitment company, is looking to speak with people who have been diagnosed with chronic inflammatory demyelinating polyneuropathy (CIDP) to participate in a 60-minute telephone interview about their experience. If you live in the US and have been diagnosed with CIDP,…

Read More

Adaptive Devices, New Patient-Reported Product List

Adaptive Devices, New Patient-Reported Product List LIFE with Peripheral Neuropathy just got a little easier… Our Adaptive devices table at this year’s Symposium was a huge hit, thanks to the great efforts of  volunteers Julie Bell and Emma Bao! But it doesn’t end there, we have published a list of unique items that are used to…

Read More

Self-Care for Caregivers: What? Why? How?

Self-Care for Caregivers: What? Why? How? On our website, the Foundation reminds GBS|CIDP caregivers that no one can prepare you for the challenges you will face.  Though this journey is stressful, there are things you can do to help you manage.  One of the most important is taking care of yourself.  What is self-care?  …

Read More

State Advocacy Works!

State Advocacy Works! Thanks to the collective advocacy of many groups over many months, Massachusetts Governor Charlie Baker signed a bill into law that restricts the practice of Step Therapy. Step therapy is when patients are required to try using cheaper drugs in their recovery before “stepping up” to pricier meds. The new law requires…

Read More

GBS CIDP Foundation International Earns Coveted 4-Star Rating From Charity Navigator

Conshohocken, PA (June 2022) – GBS|CIDP Foundation International’s strong financial health and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator.  This is the 11th consecutive time that GBS|CIDP Foundation International has earned this top distinction. Since 2002, using objective analysis, Charity Navigator has awarded only…

Read More

August Advocacy

Every year, Congressional Members take the month of August to spend time in their State or District to learn more about the issues that matter most to the people they represent. This is a great chance to connect with the local office – every Member has at least one office in their State or District…

Read More

Living with Multifocal Motor Neuropathy

The World of MMN: Living with Multifocal Motor Neuropathy The GBS|CIDP Foundation International, in collaboration with NeuroCareLive, is pleased to promote an interactive patient educational event highlighting Multifocal Motor Neuropathy (MMN). In this program, you will learn more about recognizing and coping with the condition of MMN, from both Dr. Jeffrey Allen and Jen, a…

Read More

2022 GBS|CIDP Awareness Month

May is GBS|CIDP Awareness Month May is GBS|CIDP Awareness Month around the world!  This year we spreading awareness and support through new and innovative programming, including the Be the Bridge Awareness Campaign directed to Healthcare Professionals. Additionally we are launching a New Advocacy Training series, and an Ask the Expert Presentation, you will not want…

Read More

Sanofi Clinical Trial – CIDP Patients

 A Phase 2 clinical study in adult patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Sanofi is currently recruiting patients to evaluate effectiveness and safety of a new investigational medicine called “SAR445088” for the treatment of CIDP. SAR445088 is a monoclonal antibody with a new mechanism of action as it targets the complement system directly. All…

Read More

Social Media Ask the Experts

What we learned from January, Social Media Ask the Experts On January 20, 2022, the GBS|CIDP Foundation International sat down with Hannah Joya and Melody Olander for Episode 13 of our Ask the Experts Series, “Let’s Get Social,” to discuss their involvement in the GBS, CIDP community and specifically the role that social media plays…

Read More

Announcing 2022 Benson Fellowship Awardee

Announcing 2022 Benson Fellowship Awardee, Elba Pascual Goñi MD, PhD The Benson Fellowship is a three-year fellowship that provides an opportunity for scientists to engage in peripheral nerve of study. The Fellowship provides funds of up to $150,000 for three years, but only one Benson fellowship is awarded every three year period. We are pleased…

Read More

Pagination