Foundation News

A statement from the GBS|CIDP Foundation regarding the COVID-19

Posted on March 6, 2020

The coronavirus COVID-19 situation is evolving rapidly. In the interest of concerns and questions that the Foundation is receiving regarding the spread of the coronavirus COVID-19, the GBS|CIDP Global Medical Advisory Boards offers the following statement: GBS, CIDP and variants will not put patients at any higher risk of contracting the COVID-19, but those who…

Work Continues for CSL Behring During the Pandemic

Posted on April 2, 2020

Patient groups praise U.S. guidelines that designate plasma centers, manufacturing sites as essential. See full article

Update on Home Infusion & Medicare During COVID-19 Pandemic

Posted on April 2, 2020

Earlier this week, the Center for Medicare and Medicaid Services (CMS) released new guidelines for the coverage of home infusion during the COVID-19 pandemic. The new guidelines allow for more flexibility for patients and their physicians to decide the best setting for ongoing treatments. Given your current situation, you may be able to access home…

#ItsMyTurn

Posted on April 1, 2020

In partnership with Immunoglobulin National Society, we encourage our community to join the #ItsMyTurn campaign. This campaign encourages people who are able, to take action that directly impacts the patients we serve, by donating plasma! How Do I Donate and Join the Campaign? Locate your nearest Plasma Donation Center Donate plasma. Take a picture or a…

NHC Webinar – Coronavirus Preparedness for People with Chronic Diseases, What Caregivers Need to Know

Posted on March 30, 2020

COVID-19 is causing significant concerns globally. Watch a recording of this March 27 Webinar produced by the National Health Council, for caregivers of patients with chronic diseases. The webinar discusses how caregivers can best avoid the illness and care for themselves while also helping those who are not well. https://nationalhealthcouncil.org/coronavirus-preparedness-for-people-with-chronic-diseases-what-do-caregivers-need-to-know/

Advocating for Plasma Donations and Home Infusion

Posted on March 24, 2020

The GBS|CIDP Foundation International recently led the American Plasma Users Coalition (APLUS) in creating a letter to federal and state agencies regarding two important topics to our community: plasma donations and home infusion. The Foundation and APLUS want to make sure that lawmakers are aware that plasma collection centers are considered “essential” according to the…