The GBS | CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected by Guillain-Barre’ syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions through a commitment to support, education, research and advocacy.
Our Vision
Every person affected by GBS, CIDP, MMN, or related syndromes will have access to early and accurate diagnosis, appropriate treatment, and knowledgeable support services.
Our Mission
We improve the quality of life for individuals and families affected by GBS, CIDP, MMN, and related conditions. Our unwavering commitment to the patients we serve is built on four pillars: support, education, research and advocacy.
- We support patients by nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide them with critical, timely, and accurate information;
- We educate doctors, clinicians, patients and caregivers to increase awareness and understanding;
- We fund research through grants, establishing fellowships and other appropriate avenues to identify the causes of and discover treatments;
- We advocate at the federal, state, and grassroots levels to educate policymakers and help them make informed decisions that benefit our patient community.
2024-2026 Strategic Plan
- Diversify Revenue: Over the next three years, continue to diversify revenue with a specific focus on government grants and private foundations.
- Research Portfolio: Within three years, the Foundation will have key relationships and strategic programs, including with relevant government agencies, that advance and secure the future of GBS, CIDP, and MMN research and care with current and future medical professionals.
- Patient and Caregiver Support: Identify and respond to both patient and caregiver unmet needs through support and education utilizing additional diverse resources and technology platforms
- Global Expansion: Establish the Foundation’s global presence in the European Union (EU), Asia-Pacific, and Latin/South America through the use of strategic consultants, volunteer engagement, and shared and translated resources.
- Diversity, Equity, and Inclusion: Over the next three years, the Foundation will be intentional in reflecting the community we serve and understanding their DEI needs, especially those of the under-supported communities, resulting in better access to information, resources, diagnosis, and treatment.
