Community Connections offers both virtual and in-person opportunities to connect with healthcare professionals, inspiring thought leaders, legislators, and industry leaders who are giving voice to our patients, and, of course, with other patients and caregivers themselves. The Community Connections program is a monthly mix of supportive ZOOM coffee chats, Ask the Expert Webinars, and local chapter meetings that are either in-person or virtual. Please see our schedule below.
We look forward to meeting you soon!
2023 Community Connections Schedule
Ask the Experts LIVE Webinars
- March 30th at 2 pm ET: Managing Reimbursement – Insurance and Financial Assistance Information with Alicia Lawrence LMSW from National Organization of Rare Disorders (NORD) – This webinar will be a discussion about common insurance issues and to learn about financial assistance resources that may be available to you. Register now!
- April: Mental Health, Visualization, and Bouncing Back
- May: All About the Foundation
- June: How to Advocate for Yourself as a Patient
- July: Getting Creative with Adaptive Devices
- August: Research Updates & Clinical Trials 101
- September: Immune System and Vaccines
- October: How to know if IG is working for me
- November: Meet a Physical Therapist with GBS, CIDP, and MMN expertise
- December: Managing Pain and Fatigue
Zoom Coffee Chats
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All About the Virtual Summit
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Different Ways to Volunteer with the Foundation Coffee Chat
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Finding Your Happy Place After Diagnosis Coffee Chat
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Travel Tips and Tricks Coffee Chat
Local Chapter Meetings
Chapter meetings provide a place for patients, family members, caregivers, and others interested to share information and provide support for each other. Come share your experiences, meet old friends, make news ones, and hear from experts in a range of fields involved with the treatment of GBS, CIDP and MMN.
Visit the Chapter Meeting page to find a local chapter meeting near you!
2023 International Symposium, Washington, D.C.
Join us on October 5-7 in Washington, D.C! Our 2023 in-person symposium is a three-day event consisting of expert panels, presentations, and interactive workshops led by our Global Medical Advisory Board physicians and related professionals. Our event will kick off with a welcome reception followed by two full days of sessions. The Symposium will end on Saturday night with a closing reception celebration!
2023 Virtual Summit
The Virtual Summit is a FREE, and easy-access one-day event, featuring the very best practices for navigating the journey through GBS, CIDP, MMN, or variant conditions. Topics are presented by a world-renown team of medical and wellness professionals, specializing in healthcare for rare neurologic conditions. Find out more information here.
