Foundation News

Welcome to Fall Advocacy

Congressional Recess officially ended on September 9th, and the Northeast is already seeing leaves fall from the trees (no color change, yet). Now that Washington, D.C. is back to being fully operational, we have a lot of great things to report on! Check out our highlights below, and stay up to date with all things…

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August Update on Advocacy

By Chelsey Fix Advocacy at Home, Current Cosponsors, and State of the States August heat is baking creativity here at the Foundation, which means that I’ve been looking towards the future and thinking about how we can continue to advocate together on all issues that matter to the GBS|CIDP Patient Community. But before we go…

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Announcing 2019 GBS|CIDP Research Grant Awardee, Ruth Huizinga, PhD, Assistant Professor, Department of Immunology, Erasmus MC, University Medical Center, Rotterdam, The Netherlands

Please join us in congratulating, 2019 GBS|CIDP Research Grant Recipient, Ruth Huizinga, PhD, Assistant professor, Department of Immunology, Erasmus MC, University Medical Center, Rotterdam, The Netherlands. Project Title: Identification and characterization of circulating plasmablasts that produce anti-ganglioside antibodies in patients with Guillain-Barré syndrome. Synopsis: Antibodies (Abs) to gangliosides play a key role in the pathogenesis…

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3 Ways to Advocate during August Advocacy Month

Goal To encourage GBS|CIDP community members to participate in a meeting with the federal Representatives and Senators in their local “home” offices to Raise awareness of GBS, CIDP, and variants Ask for support of HR 2905 They’re Comin’ Home! Get involved in Advocacy this August when your Representative and Senators are in their HOME town!…

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How A Bill Becomes A Law (in the US)

By Chelsey Fix, Advocacy Manager It’s been over 20 years since Schoolhouse Rock released its last video, which makes me think that we all need a refresher on the process by which a bill becomes a law! As a throwback, enjoy everyone’s favorite Schoolhouse Rock civics lesson by clicking here. As a recap, that I…

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Breathe

Our breath sustains us. It not only supplies our cells with life-giving oxygen; the mechanical act of breathing itself is intimately connected to our body’s basic physiology.  With every breath in our heart rate increases and with every breath out it slows.

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Mindful Breathing Exercises

Breath, well-being and energy are intrinsically connected. Mindful breathing can be performed anywhere and anytime. It’s all about bringing yourself to the present moment and focusing on a slower deeper belly breath.

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We Have The Best Advocates!

By Chelsey Fix, Advocacy Manager This May, the GBS|CIDP community took Awareness Month to a whole new level! Patients and caregivers were encouraged to be their own best advocate by joining a congressional letter writing campaign (perhaps you read about it on our lively social media channels?!).  As the last day of GBS|CIDP awareness month…

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Pagination