2020 GBS|CIDP Foundation International Research Grants Announced!
Research grants are made possible through the benevolence of many sources, including the Helen S. Manheimer Research Fund, contributions from individuals who have been personally touched by GBS, CIDP, or variants, and by several commercial sources. Through the generosity of these contributors, to whom the Foundation is most grateful, we are able continue our Research…
Join 100 Fundraisers, this August, for the Raise Well 30-day Challenge!
On August 1, 2020, we will be launching the Raise Well 30-Day Wellness Challenge, a fundraising and wellness challenge open to everyone and anyone. Our goal is to reach 100 participants! We are encouraging fundraisers from around the globe to raise money for GBS|CIDP research, learn and share wellness tips, all while raising awareness for…
NEW! 2020 VIRTUAL SUMMIT – October 3, 2020, 10am-2pm (EST)
Although our in-person event has been postponed, our plan to offer extraordinary presentations, programs and opportunities to connect, has not! Please join us for our New (FREE) Virtual Summit 2020 on October 3rd, 2020! Mark your calendars for an inspiring LIVE and FREE online event featuring the very same medical & wellness experts that host…
2020 Symposium Update
We are working diligently to secure a new official date for the Fall of 2021. An Announcement will be made in the coming weeks with the new Symposium date. We are committed to hosting this event in its full capacity on our new date.
GBS|CIDP Foundation Announces New Chairman of GMAB
On June 1, 2020, Dr. Ken Gorson officially passed the leadership to Dr. Peter Donofrio as Chairman of our esteemed Global Medical Advisory Board (GMAB). We thank Dr. Gorson for his leadership and many contributions in the past three years including the leadership of the US International Guillain-Barre Syndrome Outcome (IGOS) program, the Zika Virus…
A Message of Support from the Foundation Team
In response to the tragic events this past week, we wanted to share the following thoughts with you, our treasured community. GBS, CIDP, MMN, and all the variants do not discriminate.
6 Strategies for Building Resilience During Times of Change
How do you respond to change? If you are interested in embracing change and growth, then consider these strategies for helping you to build resilience.
Results from CME Program: Differentiating GBS & CIDP in a Hospital Setting
Join us on May 28, 2020 for a panel discussion on Results from CME Program: Differentiating GBS & CIDP in a Hospital Setting.
Wrap Up With A Win – Awareness Month’s Advocacy Week Brings Legislative Victories
Our 2020 May Awareness Month went digital this year, but that did not stop nearly 100 advocates across the US from participating in virtual advocacy through the Advocacy Action Center. THANK YOU to everyone who took the time to create a letter for Members of Congress. Together, we make our voices heard by lawmakers and…
Questions about Multifocal Motor Neuropathy? Save the date!
On Wednesday, May 20, 2020, at 3 PM ET, head to NeuroCareLive to hear a conversation between medical specialists, advocates, and a patient who lives with MMN. Multifocal Motor Neuropathy (MMN) affects about 1-2 in every 100,000 individuals worldwide. When people develop MMN, their motor nerves are attacked by their immune system. This results in…
Live Webinar: Bee Needle Fear Friendly
Dr. Amy Baxter presents: Bee Needle Fear Friendly This program will present options to assess and reduce needle fear, pain, and vasovagal syncope with Ig therapy, including topical anesthetics, cognitive interventions, and Buzzy best practices. After this program, the participant will be able to: Describe how differences in pharmacology and physiology influence analgesic choices for Ig procedures Cite…
May is GBS|CIDP Awareness Month
May of 2020 has brought unprecedented challenges and changes, the world over. We hope you find comfort in knowing that the GBS|CIDP Foundation has made every effort to continue to Educate our patients in new and innovative ways.
Covid19, Ask the Expert
COVID-19 Ask the Experts with Dr. Ken Gorson, part of our educational series featuring medical experts from the Foundation’s Global Medical Advisory Board.
California – Advocates Needed
The GBS|CIDP Foundation International is calling for volunteers in California to reach out to Assembly Member Evan Low, the Chair of the Business and Professions Committee, to show support for Assembly Bill 2199. This bill in the California Government will help to improve the plasma collection process in the state and hopefully result in more…
The COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund from The National Organization of Rare Disorders
The National Organization of Rare Disorders (NORD) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the current pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs. The COVID-19 Critical Needs Non-Medical Assistance Fund provides eligible individuals impacted by the…