Voice of the Patient Summit

Externally-Led Patient Focused Drug Development Meeting on CIDP

Friday, March 25, 2022


The GBS|CIDP Foundation International is leading the effort to characterize the patient journey and bring the patient voice into the drug development process. We will continue to utilize a patient-reported information registry and robust support and education programming to accurately describe the patient experience that also encourages self-advocacy in both clinical and research settings. The Foundation hopes that an externally-led Patient Focused Drug Development meeting will elevate the CIDP patient voice and increase understanding of patients’ preferences when it comes to tolerable side effects, most hindering symptoms of CIDP, and a better understanding of the progressive disability associated with poorly managed CIDP. Ultimately, the Foundation aims to bring the patient voice into the drug development process.

Join us on Friday, March 25th, 2022 for the Virtual Voice of the Patient Summit. All times listed reflect Eastern Standard Time Zone (EST).

Voice of the Patient Report

Agenda

Learn More about EL-PFDD Meetings


Meet the Patient Panel

Diagnosis and Current Treatment for CIDP
Everyday Burden of CIDP
Patient Centered Trial Design
Potential Future of CIDP Treatment

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