Payment Assistance Options
Paying for GBS, CIDP & MMN therapies can be costly, confusing and complicated. Fortunately, there are a variety of assistance programs that may be able to help. Here’s a few steps to point you in the right direction.
Manufacturer Copay Assistance Programs
Option 1: Ask your doctor or pharmacy for the name of your IVIg prescription. Look below for your IVIg prescription then call the company and ask for someone to speak with in regards to a medical assistance program. You will need to explain your medical and financial situation. These programs are primarily for those with commercial insurance and not for those with Medicare or Medicaid. Eligibility may be based on your type of insurance as well as your income.
Gamunex-C (GRIFOLS Product)
· 888-694-2686 · Grifols Gamunex-C Connexions Program: Provides the uninsured or underinsured the access to therapy that they need which may include copayment assistance, deductibles, and free drugs. (For CIDP patients only)
Gammagard, HYQVIA (TAKEDA Product)
· 888-229-8379
· Takeda’s Patient Assistance Program: You may qualify for this program if you 1. Have a current prescription for a Takeda hematology product 2. Do not have insurance or have a lapse in insurance coverage 3. Meet financial eligibility guidelines
· May cover 100% of out of pocket costs or provide free drug.
Hizentra (CSL SUB Q Product)
· 877-355-4447
· CSL Behring Patient assistance program: uninsured/underinsured patients only. If you qualify, eligible for free product for one year. Also has a copay support program.
Privigen (CSL IVIG Product)
· 877-355-4447
· No copay assistance if fully insured.
· CSL Behring Patient assistance program: uninsured/underinsured patients only. If you qualify, eligible for free product for one year. Also has a copay support program.
Gammaked (Kedrion Product)
· 1-855-353-7466 Ext. 4
· The Kedrion Biopharma Customer Service team is available to help patients, families, and healthcare professionals with verifying insurance coverage and benefits for GAMMAKED, helping to obtain prior authorizations and with claim denials.
Panzyga (Pfizer Product)
· 1-866-642-7606
· https://panzyga.pfizerpro.com/support/co-pay-program-for-patients
· May receive reduction in out of pocket costs.
Contact the Provider of Your Home Infusions
The home infusion company may be able to help. Speak with your infusion nurse about their company’s options. You can also speak with the clinical case manager for advice. They cannot legally offer you financial assistance unless you ask.
Assistance Programs
CIDP:
The Assistance Fund (TAF) CIDP Financial Assistance Program – NEW!
· You may qualify if you:
- Diagnosed with the CIDP
- Prescribed an FDA-approved treatment for the disease
- Gamunex-C (Grifols)
- Hizentra (CSL Behring)
- Privigen (CSL Behring)
- Panzyga (Pfizer)
- Gammaked (Kedrion)
- HyQvia (Takeda)
- Gammagard (Takeda)
- Have prescription coverage for the prescribed treatment
- Meet financial eligibility criteria based upon household income and size
- If approved, may also receive insurance premium reimbursement and qualify for transportation assistance.
To apply:
- tel: (855) 530-2242 Please Click Here for More Information.
- The program is currently closed, we highly recommend joining the waitlist. Make sure you receive a pin# and regularly check your status. You also must re-apply at the start of each calendar year to remain on the waitlist.
The PAN Foundation Chronic Inflammatory Demyelinating Polyneuropathy Fund:
Patients may receive up to $9,500 in financial assistance. To qualify, patients must:
- Be receiving treatment for CIDP
- Have Medicare health insurance covering the qualifying medication or product
- Be taking a medication or product listed on PAN’s covered medications list
- Have a household income at or below 400% of the federal poverty level
- Reside and receive treatment in the United States or U.S. territories (U.S. citizenship is not required)
To apply: Please Click Here for More Information.
GBS:
NORD – Guillain-Barre Syndrome (GBS) Emergency Relief Program **New Assistance Program**
This program is designed to help patients who:
- Have a confirmed diagnosis of GBS within 12-months of application to the program.
- Are a United State citizen or US resident of six (6) months or greater with evidence of residency e.g.: a utility bill, school enrollment showing the patient’s name and address.
- Meet the program’s financial eligibility criteria.
- Please Click Here for more information.
MMN:
Takeda Assistance Program for MMN patients.
Accessia has a financial assistance program for MMN patients. Click here to complete the screener to see if you qualify (the screener is located at the bottom of the page).
NORD’s Multifocal Motor Neuropathy Patient Assistance Program – offers eligible individuals diagnosed with MMN financial support to pay for out-of-pocket healthcare costs directly related to the care and treatment of this diagnosis.
To apply:
Contact info for NORD’s MMN Program:
Phone: 203-263-9484
Email: MMN@rarediseases.org
Other Programs and Organizations
Please note that not all of these resources are available for our international patients. Your local liaison may know of some more relevant resources.
- Accessia Health: Pro-Bono Attorneys to help with Social Security disability applications and appeals. Call (800) 366-7741 to speak with an attorney.
- NORD Rare Care: NORD provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, respite grants, and travel assistance for clinical trials or consultation with disease specialists.
- Good Days: Exists to pay the prohibitively costly insurance co-pays of life-extending and life-saving treatments for people otherwise unable to afford those treatments. Further, to offer patients and families additional financial help, emotional support, and guidance to the best available information and support for each specific disease state. https://www.mygooddays.org/contact-us (877) 968-7233
- Patient Advocate Foundation: Helps patients with access to care, maintenance of employment and preservation of their finances https://www.patientadvocate.org/or www.copays.org (800) 532-5274
- National Organization of Social Security Claimants (NOSSCR): The National Organization of Social Security Claimants’ Representatives is to advocate for improvements in Social Security disability programs and to ensure that individuals with disabilities applying for Social Security Disability and SSI benefits have access to highly qualified representation and receive fair decisions. https://www.nosscr.org/ (201) 567-4228
- HealthWell Foundation: Assists patients living with chronic diseases with copays, deductibles, premiums, and out-of-pocket expenses. https://www.healthwellfoundation.org/ (800) 675-8416
- Patient Access Network Foundation (PAN)– has their own disease funds and transportation grants www.panfoundation.org 1-866-316-7263
- Fundfinder-a free website that helps you track more than 200 patient assistance funds from 9 different charitable organizations. https://fundfinder.panfoundation.org/
- Infusion Access Foundation-Resource search engine for copay cards, patient assistance, and other helpful services: https://resources.infusionaccessfoundation.org/
Charity Care or Hardship Programs
Most health care systems or hospital owned clinics and agencies do have a program which is based on your financial situation. Ask your specialty pharmacy or provider of your medications. You will need to provide income and resource documentation. If approved, you may receive a full or partial grant to cover your out of pocket costs.
Religious or Local Community Organizations
Medical Fundraising
Get help raising money for medical bills and treatments through crowd funding.
Other Options for Discounted Medications:
Additional Resources
Insurance Resources
Medicare– Medicare is health insurance for people 65 or older. You may be eligible to get Medicare earlier if you have a disability, End-Stage Renal Disease (ESRD), or ALS (also called Lou Gehrig’s disease). To apply for Medicare, learn about the different types, find providers, search for Medigap, Advantage, and part D plans, visit: www.medicare.gov
- State Health Insurance Assistance Programs, (SHIP): local, in depth, unbiased Medicare counseling and assistance for recipients and their caregivers. To find your local office: www.shiphelp.org
- If you qualify for Medicare and Medicaid, there’s a good chance you qualify for a health plan that may offer more benefits – and may save you money. Don’t miss out on benefits you may qualify for.
Medicaid-Medicaid provides health insurance to eligible low-income adults, children, pregnant women, elderly adults and people with disabilities. Medicaid is administered by states, according to federal requirements. The program is funded jointly by states and the federal government. To apply for Medicaid, visit www.medicaid.gov or your local county assistance office.
Affordable care act coverage, also known as “Marketplace” insurance-Open enrollment begins November 1st and ends January 15th of each year. Special enrollment periods may be available if you have a qualifying life event. Depending on your income, you may qualify for subsidies and cost sharing. To apply visit: www.healthcare.gov or your state’s marketplace website.
Public benefits: www.benefits.gov; search by specific benefit or by your state
- Includes SNAP (food stamps), LIHEAP (heating and cooling assistance), TANF (temporary cash assistance for families), GA (temporary cash assistance for individuals), WIC (Women, infants, and children’s benefits), unemployment, school lunch assistance, day care program, and Head Start. www.ssa.gov; apply for SSI, SSDI, check the status of eligibility for benefits.
Medicare/Medicaid, Complimentary Benefits Review
If you qualify for Medicare and Medicaid, there’s a good chance you qualify for a health plan that may offer more benefits – and may save you money. Don’t miss out on benefits you may qualify for.
YourLife (an Ignitist Inc brand) in partnership with the GBS|CIDP Foundation, is offering a free benefits review for patients living with GBS, CIDP, MMN & related conditions.
Call today to speak with a licensed agent who can help find a plan that fits your health needs.
Monday-Saturday 9am-5pm EST – 1-855-607-2526
