GBS|CIDP Awareness Month This May! 110 Years. 110 Stories. 110 Reasons to Raise Awareness for GBS and CIDP. This May, join us in recognizing a major milestone in our community, the 110th anniversary of Guillain-Barré syndrome (GBS). This will be celebrated during GBS|CIDP Awareness Month by listening to stories and sharing them to help raise much-needed…
Join us for a refresher in the basics for GBS and CIDP; we will cover the diagnosis, treatment, and long-term outcomes for both conditions through a conversation with Dr. Ken Gorson, a former chair of the Foundation’s Global Medical Advisory Board. This webinar will be for educational purposes only and will not be troubleshooting individual…
The FORWARD STUDY The FORWARD STUDY is an open-label study in North America and Europe. The study has been reviewed and approved for ethics and safety. All patients will receive Tanruprubart. The purpose of this study is to better understand Tanruprubart’s effects by collecting information such as: What is Tanruprubart? Tanruprubart (ANX005) is an investigational…
Emnergize CIDP Clinical Trial The Emnergize study is designed to evaluate how the investigational study drug* may work (also known as efficacy) and how safe it is for the use in adults living with CIDP. This study will evaluate the clinical study drug compared to a placebo. *The investigational study drug, empasiprubart, is not approved…
Sharing news as we wrap up our MMN awareness month regarding the research of Professor Simon Rinaldi and Dr. Nicolas Dubuisson, and celebrating a major new $600,000 grant, the Foundation is honored to have helped support their progress in their fight against inflammatory neuropathies. Learn more here.
At GBS|CIDP Foundation International, we recognize the power of unity and awareness in the fight against rare diseases. On Rare Disease Day, we stand with our global community to shine a light on Guillain-Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related neuropathies. This day is a vital reminder that…
Meet our new Program Manager, Sandra Bermudez Join us in welcoming Sandra Bermudez to the Foundation team! Driven by a deep passion for helping others live fuller and more joyful lives, Sandra Bermúdez is a Psychologist, Health Coach, MBSR-certified practitioner, and a member of the International Association for Health Coaches. She gently guides individuals in developing…
This speaker series will highlight the mission and impact behind our Foundation-funded grants program, exploring why we invest in research and how research funding drives progress for patients and families affected by rare and immune-mediated neurological conditions such as GBS, CIDP and MMN. The session will showcase how targeted research funding advances scientific discovery, improves…
2026 Multifocal Motor Neuropathy (MMN) Awareness Month It is Multifocal Motor Neuropathy (MMN) Awareness Month, a time to shine a spotlight on Multifocal Motor Neuropathy (MMN) and rally support for those affected by this rare, chronic condition. The GBS|CIDP Foundation International invites you to participate and make a difference! Throughout the month, we’re offering opportunities…
Looking for a knowledgeable expert to guide your physical therapy journey with GBS, CIDP or MMN? We are delighted to introduce a 6-Part Balance & Strength series produced by members of the Foundation’s Interdisciplinary Health Committee and patients from the community. These simple exercises, instructed by Physical Therapist, Maria Harris & Occupational Therapist, Kathleen Rocca…
Inspire Research, working with a pharmaceutical company, is conducting a research survey tobetter understand the experiences of people living with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) who currently use immunoglobulin (IG) therapy If you qualify, you will be invited to complete a one-time online survey that takes about 20–30minutes. You may first be asked a few brief…
Join us for an in-depth review of the current treatment landscape for GBS,CIDP, and MMN with Dr. Jeffrey Allen, Neurologist and Chairman of the GBS|CIDP Foundation International Global Medical Advisory Board. This session will explore established therapies, emerging treatment options, and the latest advances in clinical research. Attendees will gain a clearer understanding of how…
NEW! Coffee Chat Young Adult Virtual Series By: Jocelyn Delgado, OT Student & CIDP Patient This virtual Young Adult Series will be held on Zoom and hosted by Jocelyn Delgado. Navigating young adulthood with GBS or CIDP brings unique challenges, from relationships and work transitions to managing energy, symptoms, and everyday routines. This new six-week…
Living with CIDP: Matthew’s Patient Journey and an Overview of an IVIg Treatment Option for Adults with CIDP This program is sponsored by Pfizer, Inc. Now Available to Watch On Demand Join Chelsey Fix, Director of Research and Advocacy from the GBS|CIDP Foundation International, a neurologist, and a person living with CIDP for the online…
Going into the GBS|CIDP Foundation International’s 2025 Symposium in Denver, I was prepared for a lot. Fellow staff members and patients told me about how inspiring it was, and how much fun I would have interacting with our community in person. Coming back, I can happily say that all of this came true and more….
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