UnitedHealthcare dropping four immunoglobulin products from formulary
UnitedHealthcare (UHC), a private insurance company that provides health insurance to more than 25 million Americans nationwide, will be dropping four immunoglobulin (Ig) products from its formulary on October 1, 2023: Asceniv, Cuvitru, Cutaquig, and Panzyga. These formulary changes will affect individual UnitedHealthcare plans (i.e., those obtained through a marketplace) except in Massachusetts, Nevada, and New York. It is…
Volunteer spreads awareness in local hospitals
There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play an active role in our community by raising awareness of GBS, CIDP, MMN, and the Foundation resources. Ray Lopez, Boca Raton Liaison, has made it his mission to visit local hospitals and share…
Honorary INC Plenary Lecture Awarded to GBS|CIDP Foundation International
The Peripheral Nerve Society (PNS) is an international non-profit organization of scientists, physicians, and other healthcare providers working together to investigate and treat diseases of the peripheral nervous system. An Honorary INC Plenary Lecture Award was given to the GBS|CIDP Foundation by the Inflammatory Neuropathy Consortium at the PNS conference in Copenhagen. Peripheral Nerve Society…
Dr. Jeffrey Allen, New Global Medical Board Chairman
Please join us as we recognize Dr. Peter Donofrio, MD for all of his hard work and dedication as chairman of our Global Medical Advisory Board. As Peter steps down, we welcome Dr. Jeffrey Allen, MD as the new Chairman. Congratulations Jeff! We are honored to have your leadership and vision! Jeffrey Allen, MD is an Associate Professor in the Department of Neurology…
Understanding the Patient Experience with CIDP
Understanding the Patient Experience with CIDP Global Patients is working with Clarivate (a research consultancy) looking for adults in the US who are diagnosed with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center
Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center We are doing this study to learn if a novel test using skin biopsy of the finger could prove to bea better diagnostic test for chronic inflammatory demyelinating polyneuropathy (CIDP) than the current test. We…
Eight Greats….for GBS CIDP AWARENESS MONTH THIS MAY!
Eight Greats….for GBS CIDP AWARENESS MONTH THIS MAY! There are plenty of ways to raise awareness! The most important thing to remember is that most successful awareness raising activities begin with commitment, passion, and enthusiasm – the critical “keys to success” of any awareness raising activity. Here are 8 GREAT IDEAS to get the creative…
Rare Disease Day 2023
How are you raising awareness for the rare community… this Rare Disease Day? (February 28, 2023) About Rare Disease Day Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders…
New Center of Excellence in Denton, Texas
New Center of Excellence in Denton, Texas Our Global Medical Advisory Board has set standards for what they consider to be excellent medical centers for the diagnosis and treatment of GBS and CIDP, MMN and related neuropathies. Based on levels of expertise, available treatments, facilities, and research capabilities, the COE’s are the medical centers that…
Pamela Franks Transitions to New Role at the Foundation
Pamela Franks Transitions to New Role at the Foundation Please join us in congratulating Pamela Franks, as she transitions from Foundation Walk & Roll Manager to her new role as Manager of Volunteer Engagement. Through the challenges of the past 3 years, Pamela has played a critical role in our Walk & Roll program, enthusiastically…
Children with rapid-onset paralysis: is it GBS?
Children with rapid-onset paralysis: is it GBS? by Patricia Blomkwist An interesting article* was published in the “European Journal of Neurology” about a study in children. Prof. Bart Jacobs (Erasmus Medical Center, Rotterdam, The Netherlands) was one of the authors. He wondered why, contrary to expectations, some children diagnosed with GBS did not recover well….
From Diagnosis to Treatment: Patient-centered Care with the New CIDP Guidelines
From Diagnosis to Treatment: Patient-centered Care with the New CIDP Guidelines Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is frequently misdiagnosed as other neurological conditions. New guidelines were recently released to help clinicians identify symptoms earlier and provide the best course of treatment. We invite you to join an expert panel of neurologists and representatives from the…
Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP
Strength to Move Forward – Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP Sponsored by Pfizer Inc. Available on Demand – Full Program Strength to Move Forward – Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP, an educational event produced by the GBS|CIDP Foundation International in collaboration…
You Have CIDP…Now What?
You Have CIDP…Now What? Join GBS|CIDP and NeuroCareLive for a new online patient education: “You Have CIDP…Now What?” A panel of CIDP experts and patients discuss CIDP symptoms, tests used to confirm diagnoses, best practices to select treatment, and tips on how to talk with doctors about your care. Panelists explain current treatment options for…
National Health Council Board of Directors
Congratulations Lisa! On December 6, 2022, Executive Director, Lisa Butler was elected to the National Health Council Board of Directors. Congratulations Lisa! She is pictured here with incoming Chairman of the NHC Board, Kenneth Mendez.