To read the Nature Reviews article on Guillain–Barré syndrome, please click here.
Respiratory syncytial virus (RSV) is a highly contagious virus that causes severe respiratory illness, leading to approximately 177,000 hospitalizations and 14,000 deaths annually among adults aged 65 and older [1]. Individuals with weakened immune systems are particularly at risk for severe complications from RSV [2]. RSV vaccines have proven to be highly effective in preventing…
“To our family and friends in the community affected by the California wildfires, our hearts and thoughts are with you during this devastating time. If you are living with GBS, CIDP, MMN, or variant conditions and are facing difficulties accessing medical treatment or need support, please do not hesitate to reach out to the Foundation….
Michael Ring, a determined GBS warrior who has turned his personal struggle into an inspiring journey of resilience. Diagnosed with Guillain-Barré Syndrome (GBS), he faced incredible physical challenges that could have ended his marathon dreams. But instead of giving up, he pushed through, reclaiming his strength step by step. Now, he’s sharing his story with…
Speaker Series – Episode 12 Summary In this Speaker Series episode, Dr. Jeffery Allen educates us about the current treatments for GBS, CIDP, and MMN as well as explain current trials and their findings. Dr. Allen is an associate professor of neurology at the University of Minnesota, adjunct faculty at Northwestern University, and the chairman…
The Critical Medicines Alliance The GBS|CIDP Foundation International recently joined the Critical Medicines Alliance, an initiative launched by the European Commission for the next 5 years. The objective of the Alliance is “to serve as a consultative body to identify priorities for action and propose solutions to strengthen the supply of critical medicines in the European Union,…
This statement is provided by the GBS|CIDP Foundation Global Medical Advisory Board. We also encourage you to contact your healthcare provider about whether it would be a good idea for you to have a COVID-19 vaccine. There has been much discussion about COVID-19 vaccines for individuals who are “immunocompromised.” GBS and CIDP and immune-mediated disorders….
CIDP Assistance Funds – Now Open for Enrollment! The GBS|CIDP Foundation International is excited to announce funding opportunities for individuals living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). A special thanks to the generous supporters of these funds. If you’re interested, please review the eligibility criteria below. We encourage you to apply even if these programs…
An Interview with Ralph G. Neas, GBS and CIDP Written by: Ellie Herman, Advocacy Coordinator Thirty-Four years ago, the Americans with Disabilities Act (ADA) was signed into law. We decided to celebrate the anniversary of this monumental piece of legislation by sitting down with Ralph G. Neas, a key civil rights leader in Washington, who…
Back by popular demand, our 2024 Virtual Summit, on Friday, September 27th and Saturday, September 28th, will feature a wide range of educational panels and presentations, as recorded at the 2023 Washington, DC Patient Symposium. The Virtual Summit is a FREE and easy-access one-day event, showcasing the best practices for navigating the journey through GBS,…
Argenx announced that the U.S. Food and Drug Administration (FDA) has approved VYVGART Hytrulo for treating adult patients with chronic inflammatory demyelinating polyneuropathy (CIDP). For more information on this new treatment, click here.
“For nearly 30 years there has been quite literally no advancement in treatments for GBS. This research update, including the participation of two of the founding fathers of our global medical advisor board, offers incredible promise and hope for the GBS community.” –Lisa Butler, Executive Director, GBS|CIDP Foundation International Check back often as we will…
Inspiring stories of resilience remind us of the human spirit’s strength. One such story is that of a Brooklyn man, Michael Ring, diagnosed with GBS who defied the odds to return to his passion for running. Michael was featured on News 12 The Bronx, showcasing his incredible journey from the early stages of his diagnosis…
Early Detection and Diagnosis of CIDP Discover firsthand insights from CIDP patient and Foundation staff Kelly McCoy, alongside GMAB members Chafic Karam, MD and Jeff Allen, MD, as they share their experiences in this informative article. Early detection is crucial in managing CIDP, and their stories shed light on the importance of timely diagnosis. Let’s…
Navigating Financial Assistance and Insurance: Your Comprehensive Guide Managing the financial aspects of chronic conditions like Guillain-Barré Syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) can be overwhelming. Our Financial Assistance and Insurance Resources portal at the GBS|CIDP Foundation International offers invaluable guidance to navigate this complex landscape with confidence. Understanding Your Coverage: Our portal…