How are you raising awareness for the rare community… this Rare Disease Day? (February 28, 2023)
About Rare Disease Day
Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders (NORD) became the official sponsor of the celebration in the United States.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. This year the GBS|CIDP Foundation International has dedicated its efforts to raising awareness for Multifocal Motor Neuropathy (MMN). Show you “care for rare” by giving a shout-out to the MMN community! Below are some ways as a GBS, CIDP, and MMN patient, friend, or family member can show they “care for rare.”
Share, share, and share some more!
- Share your story and the importance of donating plasma! We want the world to know about our rare community and how they can help us. Don’t forget to tag the Foundation.
- Share the “Did You Know?” MMN graphics to your social community. You can download them here.
- Add a little flare to your social media page by sharing the Rare Disease Day graphics. Download them here.