Managing Insurance Reimbursement

Managing Reimbursement: Insurance and Financial Assistance Information

Watch our “Managing Reimbursement – Insurance and Financial Assistance Info” Ask the Expert webinar with expert Alicia Lawrence LMSW from the National Organization of Rare Disorders (NORD). This webinar will be a discussion about common insurance issues and to learn about financial assistance resources that may be available to you.

Additional Resources from the Webinar

Click here to view questions answered during the webinar.

For State Disability Benefits- NORD’s Rare Action Network – is to connect and empower a unified network of individuals and organizations with tools, training, and resources to become effective advocates for rare diseases through national and state based initiatives across the United States.

NORD’s State Report Card® NORD launched its State Report Card project with a goal of evaluating how effectively states are serving people with rare diseases.

Some medical conditions fall under Compassionate Allowance Compassionate Allowances are a way to quickly identify diseases and other medical conditions that, by definition, meet Social Security’s standards for disability benefits. These conditions primarily include certain cancers, adult brain disorders, and a some rare disorders. You can also request for a diagnosis to be added to the Compassionate Care List.

Step-by step how to apply for benefits. Toolkits for Children/ Adults


Your Medicare coverage choices:

You can get personalized health insurance counseling at no cost to you from your local State Health Insurance Assistance Program (SHIP).
State Health Insurance Assistance Program (SHIP).