In 2025, we established the Interdisciplinary Health Committee for GBS, CIDP, and MMN, a collaborative team of healthcare professionals dedicated to providing comprehensive, patient-centered care for individuals diagnosed with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and Multifocal Motor Neuropathy (MMN). The purpose of this committee is to provide guidance and resources beyond clinical…
Recently, we visited the Capitol to raise awareness of our patient community living within the United States, and advocate for our bill H.R. 1143—the Medicare IVIG Access Enhancement Act of 2025. This act would amend Title XVIII of the United States Social Security Act to expand coverage of the in-home administration of intravenous immunoglobulin (IVIG)…
For US Audience Only A Study to Evaluate Safety, Tolerability, Pharmacometrics, and Efficacy of DNTH103 in Adultswith Multifocal Motor Neuropathy (MOMENTUM) What is this trial about? The MOMENTUM study is testing a new medicine called DNTH103 to see if it can help people withMMN (Multifocal Motor Neuropathy). What is MMN? This can cause: About the…
We’re headed back to Australia! The GBS|CIDP Foundation International is excited to announce that we are headed back to Australia for a Regional Conference in Melbourne! Our last regional gathering in Australia was held in Sydney in 2019, and we are thrilled to return and reconnect with patients, families, and medical professionals from across the…
In this episode, we focus on the role of physical therapy (PT) in the recovery and long-term management of Guillain Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related variants. The discussion explores how PT supports patients across different stages of care—fromstabilization in acute settings to restoring independence and fine-tuning…
New York City Patient Meet-Up Wonderful patient and caregiver support meeting in New York City this month! A huge thank you to our dedicated volunteer, Edward Gent, MMN patient, for his hard work in creating a meaningful day of connection and community. We are also deeply grateful to Dr. Brannagan, Dr. Lange, and Dr. Rosenthal for their time…
Your Voice Matters- Take part in our research! If you have chronic inflammatory demyelinating polyneuropathy (CIDP), you may be eligible to take part in our interview. RTI Health Solutions (RTI-HS), a non-profit research organization, is recruiting people to participate in an interview to help researchers understand the aspects of treatment that matter to patients with…
In this episode, we explore the complex journey of living with GBS, CIDP, or MMN alongside other autoimmune conditions. In our Speaker Series webinar featuring Dr. Maureen Su, she breaks down how the immune system functions, what happens when it goes off track, and why some individuals develop multiple autoimmune diagnoses. Dr. Su also shares…
Principles of Care The Problem: A Patchwork of Care for a Complex Disease Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare and complex neurological disorder that affects patients in Europe and across the globe. However, despite medical advancements, far too many individuals with CIDP experience long, uncertain diagnostic journeys, inconsistent treatment approaches, and fragmented care….
On June 30, 2025, Takeda announced that the U.S. Food and Drug Administration approved GAMMAGARD LIQUID ERC, a 10% ready-to-use liquid immunoglobulin therapy. The product is indicated as a replacement therapy for individuals aged two and older with primary immunodeficiency, and it can be administered either intravenously or subcutaneously. Because it’s ready-to-use, it removes the…
Claire Bergstrom Johnson My decision to apply for the Benson Fellowship stems from my commitment to advancing our understanding and treatment of inflammatory neuropathies. As a Clarendon Scholar nearing completion of my DPhil in Clinical Neurosciences at the University of Oxford, a significant achievement of my doctoral research has beenthe identification of unmutated autoreactive B…
We are proud to share that Nancy DiSalvo, Director of International Affairs at the GBS|CIDP Foundation International, was recently interviewed in Rarity Life magazine, a publication dedicated to elevating the voices of the rare disease community. Her interview, featured in the article “The Importance of Connection,” beautifully reflects the Foundation’s core belief: no one facing GBS, CIDP,…
CAPTIVATE: A Clinical Trial for Patients with CIDP What is this trial about? The CAPTIVATE study is testing a new medicine called DNTH103 to see if it can help people with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). What is CIDP? CIDP is a rare condition where your body’s defense system (immune system) mistakenly attacks the protective…
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is conducting research about the experience of living with MMN. We are looking for adults with MMN to help fine-tune an MMN-specific patient reported outcome measure (PRO) that can be used in clinical trials and clinical settings. The newly designed PRO…
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