Foundation Co-hosts Open House with Bryn Mawr Rehab
In July of 2023, the Foundation co-hosted an Open House with Bryn Mawr Rehabilitation Hospital in Malvern, PA. GBS and CIDP patients in attendance received a guided tour of the facility from the PT and OT’s, as well as a demonstration of adaptive devices and recreational therapies. The feedback from our community has been very…
Volunteer spreads awareness in local hospitals
There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play an active role in our community by raising awareness of GBS, CIDP, MMN, and the Foundation resources. Ray Lopez, Boca Raton Liaison, has made it his mission to visit local hospitals and share…
Taking Volunteering to the Next Level
Taking Volunteering to the Next Level The Foundation volunteers are taking volunteering to a whole new level! Don’t miss a chance to tune into what our current volunteers are doing in the community. There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play…
Research Poster Opportunity for GBS, CIDP, MMN Patient Symposium
We Invite You to Participate! As valued members of our medical community, we would like to inform you and your colleagues in training, residents, and fellows of a special opportunity to participate in the 2023 GBS|CIDP Foundation Patient Symposium, October 5-7 in Alexandria, VA. Poster Request Drs. Jeffrey Allen and Bart Jacobs, as Chair and…
Statement regarding GBS alert in Peru
Statement regarding GBS alert in Peru July 10, 2023 The Foundation and its Global Medical Advisory Board are aware that Peru has issued a statement of emergency due to an increase in cases of Guillain Barre Syndrome. Please know we are here for you and the GBS|CIDP Foundation International is committed to addressing your concerns…
Honorary INC Plenary Lecture Awarded to GBS|CIDP Foundation International
The Peripheral Nerve Society (PNS) is an international non-profit organization of scientists, physicians, and other healthcare providers working together to investigate and treat diseases of the peripheral nervous system. An Honorary INC Plenary Lecture Award was given to the GBS|CIDP Foundation by the Inflammatory Neuropathy Consortium at the PNS conference in Copenhagen. Peripheral Nerve Society…
Dr. Jeffrey Allen, New Global Medical Board Chairman
Please join us as we recognize Dr. Peter Donofrio, MD for all of his hard work and dedication as chairman of our Global Medical Advisory Board. As Peter steps down, we welcome Dr. Jeffrey Allen, MD as the new Chairman. Congratulations Jeff! We are honored to have your leadership and vision! Jeffrey Allen, MD is an Associate Professor in the Department of Neurology…
A one-year Research Update from the 2022 Benson Fellowship Awardee
A one-year Research Update from the 2022 Benson Fellowship Awardee, Elba Pascual-Goñi MD, PhD. Our 2022 Benson Fellow, Dr. Pascual-Goñi, carries out patient care and translational research tasks in the field of inflammatory neuropathies in the Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau (Barcelona). She is responsible for…
May Awareness Proclamation
The Foundation’s Regional Directors, Merrilyn Macurak and Rick Forney are raising awareness in Virginia and Conway, South Carolina! See the official “Proclamation.” Way to go Rick and Merrilyn!
Understanding the Patient Experience with CIDP
Understanding the Patient Experience with CIDP Global Patients is working with Clarivate (a research consultancy) looking for adults in the US who are diagnosed with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center
Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center We are doing this study to learn if a novel test using skin biopsy of the finger could prove to bea better diagnostic test for chronic inflammatory demyelinating polyneuropathy (CIDP) than the current test. We…
Rare Disease Day 2023
How are you raising awareness for the rare community… this Rare Disease Day? (February 28, 2023) About Rare Disease Day Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders…
New Center of Excellence in Denton, Texas
New Center of Excellence in Denton, Texas Our Global Medical Advisory Board has set standards for what they consider to be excellent medical centers for the diagnosis and treatment of GBS and CIDP, MMN and related neuropathies. Based on levels of expertise, available treatments, facilities, and research capabilities, the COE’s are the medical centers that…
Pamela Franks Transitions to New Role at the Foundation
Pamela Franks Transitions to New Role at the Foundation Please join us in congratulating Pamela Franks, as she transitions from Foundation Walk & Roll Manager to her new role as Manager of Volunteer Engagement. Through the challenges of the past 3 years, Pamela has played a critical role in our Walk & Roll program, enthusiastically…
Children with rapid-onset paralysis: is it GBS?
Children with rapid-onset paralysis: is it GBS? by Patricia Blomkwist An interesting article* was published in the “European Journal of Neurology” about a study in children. Prof. Bart Jacobs (Erasmus Medical Center, Rotterdam, The Netherlands) was one of the authors. He wondered why, contrary to expectations, some children diagnosed with GBS did not recover well….