Foundation News

Tips and Tricks for Traveling

The Coffee Chat, Tips and Tricks for Traveling, hosted by Foundation staff members Kelly McCoy and Lori Besiege, offered valuable support on how to navigate the challenges that may arise while you are on a plane, train, or bus with a neurological condition that may cause mobility issues. Whether you are traveling to our International…

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ARDA Multifocal Motor Neuropathy Study Clinical Trial

ARDA Multifocal Motor Neuropathy Study The ARDA study is designed to assess the safety and effectiveness of the investigational study drug compared to a placebo for the treatment of adults living with MMN. Participants enrolled in the study will be randomly assigned by a computer to either receive the investigational drug or a placebo. Participants…

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International Guillain-Barré Syndrome Outcome Study (IGOS) Clinical Trial

International Guillain-Barré Syndrome Outcome Study (IGOS) The international GBS Outcome Study (IGOS) is the largest and longest prospective trial designed to collect extensive data from patients afflicted with GBS in a systematic manner. The aim is to collect information from patients by intensive international collaboration. All patients are followed at standard intervals from the earliest…

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CIDP Clinical Trial

Open-Label Phase 2 study with SAR445088, a Complement C1s inhibitor, in adults with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), sponsored by Sanofi This global multicenter study will evaluate the efficacy, safety and tolerability of SAR445088 in CIDP. SAR445088 (previously known as BIVV020) is an investigational monoclonal antibody that targets Complement C1s and has a subcutaneous route…

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Foundation Co-hosts Open House with Bryn Mawr Rehab

In July of 2023, the Foundation co-hosted an Open House with Bryn Mawr Rehabilitation Hospital in Malvern, PA.  GBS and CIDP patients in attendance received a guided tour of the facility from the PT and OT’s, as well as a demonstration of adaptive devices and recreational therapies. The feedback from our community has been very…

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Volunteer spreads awareness in local hospitals

There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play an active role in our community by raising awareness of GBS, CIDP, MMN, and the Foundation resources. Ray Lopez, Boca Raton Liaison, has made it his mission to visit local hospitals and share…

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Taking Volunteering to the Next Level

Taking Volunteering to the Next Level The Foundation volunteers are taking volunteering to a whole new level! Don’t miss a chance to tune into what our current volunteers are doing in the community. There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play…

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Research Poster Opportunity for GBS, CIDP, MMN Patient Symposium

We Invite You to Participate! As valued members of our medical community, we would like to inform you and your colleagues in training, residents, and fellows of a special opportunity to participate in the 2023 GBS|CIDP Foundation Patient Symposium, October 5-7 in Alexandria, VA. Poster Request Drs. Jeffrey Allen and Bart Jacobs, as Chair and…

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Statement regarding GBS alert in Peru

Statement regarding GBS alert in Peru July 10, 2023 The Foundation and its Global Medical Advisory Board are aware that Peru has issued a statement of emergency due to an increase in cases of Guillain Barre Syndrome. Please know we are here for you and the GBS|CIDP Foundation International is committed to addressing your concerns…

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Honorary INC Plenary Lecture Awarded to GBS|CIDP Foundation International

The Peripheral Nerve Society (PNS) is an international non-profit organization of scientists, physicians, and other healthcare providers working together to investigate and treat diseases of the peripheral nervous system. An Honorary INC Plenary Lecture Award was given to the GBS|CIDP Foundation by the Inflammatory Neuropathy Consortium at the PNS conference in Copenhagen. Peripheral Nerve Society…

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Dr. Jeffrey Allen, New Global Medical Board Chairman

Please join us as we recognize Dr. Peter Donofrio, MD for all of his hard work and dedication as chairman of our Global Medical Advisory Board. As Peter steps down, we welcome Dr. Jeffrey Allen, MD as the new Chairman. Congratulations Jeff! We are honored to have your leadership and vision! Jeffrey Allen, MD is an Associate Professor in the Department of Neurology…

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A one-year Research Update from the 2022 Benson Fellowship Awardee

A one-year Research Update from the 2022 Benson Fellowship Awardee, Elba Pascual-Goñi MD, PhD.   Our 2022 Benson Fellow, Dr. Pascual-Goñi, carries out patient care and translational research tasks in the field of inflammatory neuropathies in the Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau (Barcelona). She is responsible for…

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May Awareness Proclamation

The Foundation’s Regional Directors, Merrilyn Macurak and Rick Forney are raising awareness in Virginia and Conway, South Carolina! See the official “Proclamation.” Way to go Rick and Merrilyn!

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Understanding the Patient Experience with CIDP

Understanding the Patient Experience with CIDP Global Patients is working with Clarivate (a research consultancy) looking for adults in the US who are diagnosed with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center

Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center We are doing this study to learn if a novel test using skin biopsy of the finger could prove to bea better diagnostic test for chronic inflammatory demyelinating polyneuropathy (CIDP) than the current test. We…

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Pagination