May is GBS|CIDP Awareness Month, and we are getting ready to celebrate all month long! I can’t help but wonder where 2019 has gone, but that thought is overshadowed by my excitement for our 2019 Awareness Month Plans – Government Advocacy. If we haven’t met yet, I should probably introduce myself. My name is…
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Be your own best advocate. Did you know that Medicare part B can restrict your location of care for your IVig treatments? Or that each year, your voice can influence Congress on important issues such as funding the National Institutes of Health’s research into GBS and CIDP? Whether you are a patient, caregiver, friend, or…
Read More about May is GBS|CIDP Awareness MonthThis May, GBS|CIDP Awareness Month, the Foundation will be fighting the good fight and enlisting patients and their caregivers to support our advocacy efforts throughout the month and beyond. But, perhaps advocacy is not the right fit for you, or you are unable to participate in our advocacy initiatives this year – not to worry,…
Read More about 10 Easy Ways to Raise Awareness for GBS|CIDP & make a BIG Difference!
The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 9 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted yet another exciting Walk & Roll fundraising event with a record-breaking 320 walkers in attendance! Thus far the event has raised $10,356…
Read More about Clovis Walk & Roll Breaks its Own Record!
In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…
Read More about CIDP Disease Burden — Results of a US Nationwide Patient Survey