Foundation News


Welcome, New Congress!

As we kicked off 2021 full of hope for the future, we also welcomed a new Congress to Capitol Hill. The 117th Congress first convened on January 3, 2021, and now that they are settled in, we believe it is time for the GBS|CIDP and variants community to reach out and introduce our Representative and…

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GBS|CIDP Foundation International continues to work with FDA on GBS|CIDP patient concerns

After holding a GBS Patient Listening session with the FDA in the Summer of 2020, the Foundation has continued to work with key leadership at the FDA to continue bringing the patient voice to their current work. The FDA holds a very special role in the US healthcare system. Their job is to review and…

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This March, challenge yourself to 31 days of wellness activities, while raising funds for GBS|CIDP research too!

On March 1, 2021, we will be launching the Raise Well 31-Day Wellness Challenge, a fundraising and wellness challenge open to everyone and anyone.  Our goal is to reach 100 participants! We are encouraging fundraisers from around the globe to raise money for GBS|CIDP research, learn and share wellness tips, all while raising awareness for…

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Rare Disease Day 2021

Rare Disease Day 2021

How will you Show You Care for Rare… this Rare Disease Day? (February 28, 2021) In 2020 the world’s attention turned to public health matters in light of the COVID-19 pandemic, however, there are still millions in the United States and around the globe living with rare diseases and accompanying life-altering issues that are largely…

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