Foundation News


FDA Warning for Guillain–Barre Syndrome and the Johnson & Johnson COVID-19 Vaccine

A Statement from the Foundation Global Medical Advisory Board The Washington Post and New York Times published on July 12, 2021 articles of a report by the FDA regarding cases of purported GBS after receiving the Johnson and Johnson COVID 19 vaccine.  Approximately 100 reports of suspected GBS were experienced by 12.8 million subjects who…

Read More about FDA Warning for Guillain–Barre Syndrome and the Johnson & Johnson COVID-19 Vaccine

In response to CBP preventing Mexican nationals from donating blood plasma

June 30, 2020 By Lisa Butler, Executive Director GBS|CIDP Foundation International Imagine the shock and helplessness of seeing your child’s body suddenly growing weak, clumsy, and unable to walk, or even stand; the fear that they may never live a normal life, or even survive this terrifying, disabling disorder.  Imagine being greeted with the puzzlement…

Read More about In response to CBP preventing Mexican nationals from donating blood plasma

An Update from the International Guillain-Barre Study (IGOS) by Dr. Bart Jacobs

The IGOS-1000 cohort has now been tested for the main preceding infections and is currentlytested for antibodies extensively. We have also recently finalized a study in IGOS on theassociation between GBS and SARS-CoV-2 during the first 3 months of the pandemic. In myview this study shows the importance of having an ongoing global prospective study…

Read More about An Update from the International Guillain-Barre Study (IGOS) by Dr. Bart Jacobs

NEW Bill in Congress Aims to Help Improve Access to Home Infusion IVIG for CIDP and MMN Patients, HR 3808

As a result of the community coming together this year, the Foundation is proud to share the wonderful news that our Congressional champions, led by Congressman Earl Blumenauer, Congressman G.K. Butterfield, and Congressman Chris Smith, have introduced a new bill that aims to help improve coverage of home infusion of IVIG for CIDP and MMN…

Read More about NEW Bill in Congress Aims to Help Improve Access to Home Infusion IVIG for CIDP and MMN Patients, HR 3808