Argenx announced that the U.S. Food and Drug Administration (FDA) has approved VYVGART Hytrulo for treating adult patients with chronic inflammatory demyelinating polyneuropathy (CIDP). For more information on this new treatment, click here.
Questions you should consider asking at your next doctor’s appointment! Download the PDF here.
In honor of GBS|CIDP Awareness Month, Michael Ring, GBS patient, shares his story with News12 The Bronx.
Ecotherapy Ecotherapy integrates nature-based activities and ecological awareness into therapeutic practices, aiming to enhance mental health by fostering a connection with the environment, whereas regular talk therapy primarily involves verbal discussions in a clinical setting to address psychological issues. The information above was sourced from the Getting Well Outdoors Wellness Webinar. You can find the…
Speaker Series – Episode 6 Summary In this episode of our Speaker Series, we dive into the world of treatments for GBS, CIDP, and MMN as well as understanding them from Dr. Saperstein, a neurologist on our Global Medical Advisory Board. GBS CIDP MMN Anti-Mag Waiting for FDA Approval Relevant Resources Treatment guidelines – https://www.gbs-cidp.org/gbscidp-guidelines-for-treatment-and-diagnosis/…
Speaker Series – Episode 5 Summary In this episode of our Speaker Series, we dive into the world of navigating your health care journey with steps to take, how coverage works, and understanding levels of care with Health Navigator, Amy Stein. Amy is a Licensed Clinical Social Worker and has over 25 years of experience…
Speaker Series – Episode 4 Summary In this episode of our Speaker Series, Dr. Linda Bluestein, a board-certified anesthesiologist, integrative pain medicine physician, former ballet dancer, and expert in hyper-mobility disorders, who shares her experience and expertise on pain and pain management through the acronym MENS PMMS. Resources Treatment guidelines – https://www.gbs-cidp.org/gbscidp-guidelines-for-treatment-and-diagnosis/ Treatments & Access…
Speaker Series – Episode 3 Summary In this episode of our Speaker Series, we dive into conversations that patient should have with their doctor from three MMN patients, Pam Stoikopoulos, Richard Sparry, and Clive Phillips. Resources Website Information – What is MMN? Speaker Series Episode – What is MMN? Centers of Excellence – Center for…
Speaker Series – Episode 2 Summary In this episode of our Speaker Series, we talked with Dr. Karissa Gable from Duke University about variants of GBS and CIDP, mimics, its symptoms, and how each are treated. Resources Treatment guidelines – https://www.gbs-cidp.org/gbscidp-guidelines-for-treatment-and-diagnosis/ Treatments & Access page – https://www.gbs-cidp.org/treatments-access/ Centers of Excellence – https://www.gbs-cidp.org/support/centers-of-excellence/ Doctor to Doctor…
Speaker Series – Episode 1 Summary In this episode of our Speaker Series, we discuss what MMN is with Dr. Michal Vytopil from Beth Israel Lahey Health and Brenda Perales, an MMN patient and volunteer, who share their expertise on the clinical course, diagnosis and progression of MMN, and available treatments and resources for patients….
“For nearly 30 years there has been quite literally no advancement in treatments for GBS. This research update, including the participation of two of the founding fathers of our global medical advisor board, offers incredible promise and hope for the GBS community.” –Lisa Butler, Executive Director, GBS|CIDP Foundation International Check back often as we will…
Inspiring stories of resilience remind us of the human spirit’s strength. One such story is that of a Brooklyn man, Michael Ring, diagnosed with GBS who defied the odds to return to his passion for running. Michael was featured on News 12 The Bronx, showcasing his incredible journey from the early stages of his diagnosis…
2024 Hill Day Written by Ellie Herman, Advocacy Coordinator To kick off the first day of GBS|CIDP Awareness month, the Foundation went to Capitol Hill with over 30 volunteers consisting of patients, care partners, health care professionals, and many of our staff. Prior to Hill Day, volunteers participated in a compelling storytelling webinar series to…
Early Detection and Diagnosis of CIDP Discover firsthand insights from CIDP patient and Foundation staff Kelly McCoy, alongside GMAB members Chafic Karam, MD and Jeff Allen, MD, as they share their experiences in this informative article. Early detection is crucial in managing CIDP, and their stories shed light on the importance of timely diagnosis. Let’s…
Navigating Financial Assistance and Insurance: Your Comprehensive Guide Managing the financial aspects of chronic conditions like Guillain-Barré Syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) can be overwhelming. Our Financial Assistance and Insurance Resources portal at the GBS|CIDP Foundation International offers invaluable guidance to navigate this complex landscape with confidence. Understanding Your Coverage: Our portal…