Foundation News

Dr. Jeffrey Allen, New Global Medical Board Chairman

Please join us as we recognize Dr. Peter Donofrio, MD for all of his hard work and dedication as chairman of our Global Medical Advisory Board. As Peter steps down, we welcome Dr. Jeffrey Allen, MD as the new Chairman. Congratulations Jeff! We are honored to have your leadership and vision! Jeffrey Allen, MD is an Associate Professor in the Department of Neurology…

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A one-year Research Update from the 2022 Benson Fellowship Awardee

A one-year Research Update from the 2022 Benson Fellowship Awardee, Elba Pascual-Goñi MD, PhD.   Our 2022 Benson Fellow, Dr. Pascual-Goñi, carries out patient care and translational research tasks in the field of inflammatory neuropathies in the Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau (Barcelona). She is responsible for…

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May Awareness Proclamation

The Foundation’s Regional Directors, Merrilyn Macurak and Rick Forney are raising awareness in Virginia and Conway, South Carolina! See the official “Proclamation.” Way to go Rick and Merrilyn!

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Understanding the Patient Experience with CIDP

Understanding the Patient Experience with CIDP Global Patients is working with Clarivate (a research consultancy) looking for adults in the US who are diagnosed with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center

Validation of Skin Biopsy to Detect Nerve Demyelination in the Diagnosis and Treatment of CIDP at Vanderbilt University Medical Center We are doing this study to learn if a novel test using skin biopsy of the finger could prove to bea better diagnostic test for chronic inflammatory demyelinating polyneuropathy (CIDP) than the current test. We…

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Eight Greats….for GBS CIDP AWARENESS MONTH THIS MAY!

Eight Greats….for GBS CIDP AWARENESS MONTH THIS MAY! There are plenty of ways to raise awareness! The most important thing to remember is that most successful awareness raising activities begin with commitment, passion, and enthusiasm – the critical “keys to success” of any awareness raising activity. Here are 8 GREAT IDEAS to get the creative…

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Rare Disease Day 2023

How are you raising awareness for the rare community… this Rare Disease Day? (February 28, 2023) About Rare Disease Day Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders…

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New Center of Excellence in Denton, Texas

New Center of Excellence in Denton, Texas Our Global Medical Advisory Board has set standards for what they consider to be excellent medical centers for the diagnosis and treatment of GBS and CIDP, MMN and related neuropathies. Based on levels of expertise, available treatments, facilities, and research capabilities, the COE’s are the medical centers that…

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Pamela Franks Transitions to New Role at the Foundation

Pamela Franks Transitions to New Role at the Foundation Please join us in congratulating Pamela Franks, as she transitions from Foundation Walk & Roll Manager to her new role as Manager of Volunteer Engagement.  Through the challenges of the past 3 years, Pamela has played a critical role in our Walk & Roll program, enthusiastically…

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Children with rapid-onset paralysis: is it GBS?

Children with rapid-onset paralysis: is it GBS? by Patricia Blomkwist An interesting article* was published in the “European Journal of Neurology” about a study in children. Prof. Bart Jacobs (Erasmus Medical Center, Rotterdam, The Netherlands) was one of the authors. He wondered why, contrary to expectations, some children diagnosed with GBS did not recover well….

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From Diagnosis to Treatment: Patient-centered Care with the New CIDP Guidelines

From Diagnosis to Treatment: Patient-centered Care with the New CIDP Guidelines Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is frequently misdiagnosed as other neurological conditions. New guidelines were recently released to help clinicians identify symptoms earlier and provide the best course of treatment. We invite you to join an expert panel of neurologists and representatives from the…

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Propionate Exerts Neuroprotective and Neuroregenerative Effects in the Peripheral Nervous System

Propionate Exerts Neuroprotective and Neuroregenerative Effects in the Peripheral Nervous System A  recent study from Ruhr-University Bochum, Germany, was able to demonstrate that the short-chain fatty acid, propionate, has a protective and regenerative effect on the peripheral nervous system in cell culture and in animal experiments. Dr. Thomas Grüter who headed the cell culture and…

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2023 International Regional Meetings

2023 Barcelona, Vienna, and Copenhagen Regional Meetings Join us this March for an EU Regional Meeting Near you! Have you, or a loved one, recently been diagnosed with Guillain-Barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) or Multifocal Motor Neuropathy (MMN)? Or, perhaps you have been coping for some time but would like more information…

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Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP

Strength to Move Forward – Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP Sponsored by Pfizer Inc. Available on Demand – Full Program Strength to Move Forward – Discussion on Healthy Lifestyle and a Treatment Option for Adults with CIDP, an educational event produced by the GBS|CIDP Foundation International in collaboration…

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You Have CIDP…Now What?

You Have CIDP…Now What? Join GBS|CIDP and NeuroCareLive for a new online patient education: “You Have CIDP…Now What?”  A panel of CIDP experts and patients discuss CIDP symptoms, tests used to confirm diagnoses, best practices to select treatment, and tips on how to talk with doctors about your care. Panelists explain current treatment options for…

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Pagination