Honor Your Hero Stories

MAY is GBS|CIDP Awareness Month.

Meet our 2018 Heroes! We’ll be posting stories throughout Awareness Month (May), so stay tuned!

Sharing your story is the most meaningful way to raise awareness and inspire GBS|CIDP patients around the world. Thank you for sharing your stories of courage, hope and unconditional love.


My Wife, Best Friend & Hero By John Harchar

My Wife, Best Friend & Hero

By John Harchar My hero is my wife and best friend, Ann. She was stricken down with an unknown disease on May 2, 2011. After one month in multiple hospitals, she was diagnosed with the Miller Fisher variant of GBS. At that time, she was paralyzed from the neck down, mostly blind, had difficulty breathing...
Overwhelmed with Gratitude By Brian O’Connell Image

Overwhelmed with Gratitude

By Brian O’Connell May 23, 1998, I was preparing for my last cross country commute, ending an era that started six years before, when I was hired into my dream job, as a pilot for a major US airline. With a three year layoff, two years of a coast to coast commute and the hardships...
A GBS Hero from the Peace Corps by John Pielemeier

A GBS Hero from the Peace Corps

By John Pielemeier It was Christmas Eve, 1967, and I was a Peace Corps Volunteer in Katiola, a small town upcountry in the Ivory Coast. I began to feel ticklish sensations running up and down my legs. I instinctively knew something was seriously amiss and got up in the middle of the night to find...
Making Lemonade from Lemons By Julie Zarou

Making Lemonade from Lemons

By Julie Zarou My son Taylor was diagnosed with Guillain-Barré Syndrome (GBS) in June of 2016. At the time he was 7 years old and school was about to end for the year. He was so excited for summer to begin. He was hospitalized for 3 weeks and misdiagnosed with acute lyme disease and post-strep...
My Daughter and GBS Hero By Diann Mayweather

My Daughter and GBS Hero

By Diann Mayweather Her name is Dr. Diana Nicole Mayweather, a Ph.D. Chemistry graduate from Northwestern University in Evanston, Illinois. Diana is my daughter and this is her journey with GBS through my eyes. I would like to start with some background information on Diana. She lived in Chicago, Illinois until graduation from Northwestern (June...
My seven year old son is my HERO By Felicia Jones

My seven year old son is my HERO

By Felicia Jones It was around Halloween of 2017 when we noticed Benjamin was more fatigued, cranky and just not acting himself. He would sleep as soon as he came home from school and was complaining of aches and pains, mainly located in his legs. Originally we thought the clumsiness and leg pain was a...
My Hero and Caregiver By Arthur Gause

My Hero and Caregiver

By Arthur Gause My ‘Honor Your Hero’ story is about my wife Dee. She is my caregiver. By the time I was diagnosed with CIDP in 2015, I was wheelchair-bound. Getting an appointment with a Neurologist was a challenge. It took 5-6 months after onset of the symptoms to see one. Because of her hard...
I Will Try for Cheerleading Again! By Nancy Mallard

I Will Tryout for Cheerleading Again!

By Nancy Mallard At the age of 14, and just starting her freshman year in high school, our daughter Rachel came down with GBS. October of 2015 is a time that will always be etched in my mind. She was on a ventilator for 3 weeks, spent a month in MUSC Children’s Hospital, a month...
Life is Good By Robert Neuenschwander

Life is Good

By Robert Neuenschwander My hero is my wife, Kathleen, who has also been my caretaker. CIDP hit me in September of 2013 and within two and a half months I was almost totally paralyzed. I could move my head and neck but nothing else. Kathy got a lift and slings and every morning got me...
“It’s Only Rare Until It’s You” By Kenneth Curitore

“It’s Only Rare Until It’s You”

By Kenneth Curitore My hero is my partner Raymond Lopez. Raymond is a 1988 GBS survivor who following his long 10 month recovery, regained control of his life and in doing so today recognizes the importance by example of helping fellow GBS/CIDP survivors. Through his dedication and work as a liaison for GBS/CIDP Foundation International...
My Hero, Husband and Soulmate By Linda Pulver

My Hero, Husband and Soulmate

By Linda Pulver My hero is more than a hero he is my angel, soul mate, my husband, Russell Barber. On January 2, 2004 just after turning 60, I started having GBS symptoms. By January 7, I was in an ambulance being transported from Hornell, NY to Strong Memorial Hospital in Rochester, NY. That was...
My Husband is my Greatest Cheerleader By Laura Finley

My Husband is my Greatest Cheerleader

By Laura Finley My hero is my husband, Michael. I was diagnosed with GBS in May of 2017. We live an active lifestyle and I was an avid runner training for a marathon when I became suddenly ill. I am a RN by profession and I knew something was terribly wrong with me. I went...
Mom will always be my Hero By Christine Robinson

Mom will always be my Hero

By Christine Robinson My story goes back to 1965, when I was 5 years old. I am told I walked up to my mother and she was talking to her mother and asked, “Is Christine’s face supposed to be different on one side?” That observation lead me to being hospitalized for what they thought was...
A True Fighter! Honor Your Hero - Ileana Yau

A True Fighter!

By Ileana Yau On July 17, 2013 I wrote to the GBS Foundation requesting information as my father was diagnosed with GBS at 87 years of age. Today I am writing to “Honor Your Hero” as my father has fought and recovered very well! He made enormous efforts to recover and he did everything he...
My Wife, Caregiver and GBS Hero - Jim Yadlon

My Wife, Caregiver and GBS Hero

By Jim Yadlon My name is Jim Yadlon and I am Recovered GBS patient. My battle with GBS was a long time ago, 1973-74. But one never forgets the gist of time with GBS even though I have forgotten some of the smaller details. One important detail that I will never forget is the love...
My Dad is My Hero - Chelsea Ray

My Dad is My Hero

By Chelsea Ray My Hero is my Dad. He is a hard working police officer and Christian man. He has always been by my side supporting me and taking care of me whether it’s driving me to the doctor, picking up my medications, or helping me with anything else that I need. When I was...