Rare Disease Day: February 29, 2024
About Rare Disease Day
Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is a patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. In 2009, Rare Disease Day became a global event when The National Organization for Rare Disorders (NORD) officially sponsored the celebration in the United States.
GET INVOLVED!
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. This year the GBS|CIDP Foundation International has dedicated its efforts to raising awareness for Multifocal Motor Neuropathy (MMN). Show you “care for rare” by giving a shout-out to the MMN community! Below are some ways a GBS, CIDP, and MMN patient, friend, or family member can show they “care for rare.”
Share, share, and share some more!
- Share your story. We want the world to know about our rare community and how they can help us. Don’t forget to tag the Foundation.
- Learn more about Be the Bridge.
- Add a little flare to your social media page by sharing the Rare Disease Day graphics. Download them here.