GBS

A Rare & Life-Changing Disorder

If you—or someone in your life—has been recently diagnosed with GBS, you probably have a lot of questions. And there’s a lot of information out there on the web to sort through. That’s why we continually work to consolidate the best of that information here.

One of our goals is to help those touched by these disorders to have immediate and easy-to-process information that provides not only accurate answers, but hope. Below is a good place to start.

Recently Diagnosed with GBS

If you have been recently diagnosed with GBS you probably have a lot of questions. Fortunately, we are here to help.

All about GBS

There’s a lot to learn about GBS. What causes it? How is it diagnosed & treated? What are the implications long-term? It’s all here.

Loved One or Friend with GBS

Nothing feels as helpless as not being able to stop the pain of someone you love. When one person in your family is sick so is the whole family. There’s help.

Connect for Support

Support is just a call, an email or a social media action away. Use your preferred method of communication to reach out to members of our community.

Healthcare Professionals

Increasing awareness of GBS & CIDP starts with those in the medical profession. Whether doctor, nurse or physical therapist, we’ve got the information you need.

In the News

It is sometimes difficult to find current news on GBS & CIDP. We keep an eye on what’s happening & gather it for you. If you find something noteworthy, shoot it over to us to consider.

Community Events

Check out events that might be happening close by. Remember to mark your calendar for the upcoming GBS/CIDP 5K & Miracle Mile on Mother’s Day weekend & the 12th International Symposium later in October.

GBS/CIDP

  • Centers of Excellence

    Expert diagnosis & management of inflammatory neuropathies is critical to our patients. This is what our medical advisory board members had in mind when setting up the new Centers of Excellence program. A year later, we continue to add healthcare facilities providing exactly that.
    View Centers of Excellence

  • Connect With Us

  • Topics of Interest

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    Upcoming Special Events

    The GBS/CIDP Foundation of Canada is hosting the Canadian Eastern Conference in Halifax, Nova Scotia. This is your chance to learn about all aspects of GBS, CIDP and its variants from initial diagnosis to treatment and rehabilitation. Be sure to check our Community Events page for upcoming chapter meetings in a city near you.


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    CSL Behring Announces Trial for CIDP Patients

    CSL Behring has announced that the first patient has been enrolled in the PATH study, an international clinical trial designed to evaluate the efficacy, safety, and tolerability of two different doses of subcutaneous immunoglobulin (SCIg), compared with placebo, in maintenance treatment of chronic inflammatory demyelinating polyneuropathy (CIDP).


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    May is GBS/CIDP Awareness Month

    During the month of May, in an effort to increase awareness in each of our communities, we encourage everyone to organize activities that highlight GBS, CIDP and their variants. Throughout the world, individuals and groups have organized fundraising events such as walks, runs, bake sales, fashion shows, cocktail receptions, and art shows.
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