Announcing Date & Location for 2020 Symposium!
Mark your calendars! We are delighted to announce that the 16th GBS|CIDP International Patient Symposium will be held October 1-3, 2020 at the Hilton Mark Alexandria, Virginia! Stay tuned for more details and information in 2019, and beyond.
Announcing Date & Location for 2020 Symposium!
Mark your calendars! We are delighted to announce that the 16th GBS|CIDP International Patient Symposium will be held October 1-3, 2020 at the Hilton Mark Alexandria, Virginia! Stay tuned for more details and information in 2019, and beyond.
CIDP Patient, Lynn Rogers, Running in Chicago Marathon!
For Rogers, this year has been filled with pain and triumph, a year of repetitive setbacks and remarkable progress. In August 2017, Rogers was paralyzed by a rare autoimmune condition, known as CIDP. Her first steps — at first with the assist of a harness — came a month later. Read more in Chicago Tribune….
Improving the Recognition of GBS and CIDP in the Hospital Setting: Live Program
LIVE PROGRAM Designed for healthcare professionals. Earn AMA PRA Category 1 Credit™. Date: Tuesday, September 25, 2018 Time: 12:00 PM – 1:00 PM EST Join our experts for a one-hour, live webinar as they discuss how to manage patients with immune-mediated neuropathies such as GBS and CIDP. Learning Objectives Recognize signs and symptoms that may suggest…
Subcutaneous Immunoglobulin: A Newly Approved Treatment Option for CIDP
David Saperstein, MD Co-Director GBS/CIDP Center of Excellence Phoenix Neurological Associates Phoenix, AZ Intravenous immunoglobulin (IVIg) is one of the main therapies used to treat CIDP. This therapy can be very effective but there are drawbacks. Some people experience headaches related to the intravenous infusions. Some people have difficulty with IV access. Also, the need…
Dr. Ken Gorson Discusses GBS on LiveScience.com
Dr. Ken Gorson, Chairman of GBS|CIDP Foundation’s Global Medical Advisory Board, featured on LiveScience.com this week: Guillain-Barre Syndrome: Causes, Symptoms & Treatments. Read the full article
2018 Symposium – NEW SESSION!
We are happy to announce that Dr. Julie Rowin will be joining our prestigious line-up of speakers for our 2018 Symposium! Dr. Rowin is Board Certified in Neurology and Neuromuscular Medicine from the American Board of Psychiatry and Neurology. She also holds diplomate status with the American Board of Integrative and Holistic Medicine. She is…
Breaking News in Dallas, TX – Travis Frederick of Dallas Cowboys diagnosed with GBS
In response to the breaking news in Dallas this morning regarding Travis Frederick of the Dallas Cowboys, and his recent Guillain-Barré Syndrome diagnosis, the GBS|CIDP Foundation International issues the following statements, for those seeking clarity and more information.
Special Symposium Discount Extended to September 1, 2018!
Join Us! November 1-3 2018! Symposium 2018 will feature a wide array of presentations and workshops led by our best medical professionals, and will offer a unique opportunity for those affected by GBS, CIDP, and variants to meet with other patients and families from around the world. Register Now
Vaccines and Guillain Barre Syndrome 2018
Infections and vaccines have been hypothesized to play a role in triggering the development of GBS. However, in this report, Vaccines and Guillain-Barre syndrome, it is shown that an association between vaccine administration and GBS has never been proven for most of debated vaccines, although it cannot be definitively excluded.
2018 Research Grant Finalists Announced
We are pleased to announce our 2018 Research Grant Awardees.
Virtual Patient Education: Understanding CIDP for Patients and Caregivers
Please join us for a free online webinar educational patient program, hosted by Ken Gorson, MD. Panelists also include Executive Director Lisa Butler, Infusion Nurse Amy Clarke, and a patient from the CIDP community.
Infusion Nurse Joins 2018 Symposium Team of Presenters
Infusion nurse, Amy Clarke will be joining our roster of 2018 Symposium presenters with a brand new session, All About Infusion. She will be discussing the infusion process from A to Z, and is happy answer all of your questions. You will leave the Symposium feeling informed and comfortable with treatment options, plans and procedures,…
Attention Researchers! GBS Deemed Eligible for Research Studies through Department of Defense Peer Review
In March 2018 Congress passed an omnibus bill that finalized Fiscal Year 2018 appropriations. Guillain-Barré Syndrome was again listed as a condition eligible for study! Now is the time to begin applications for available grants. Below is more detailed information regarding applications and possible awards.
A Life and Legacy Dedicated to Research
On June 10, 2018 the GBS|CIDP Foundation International will be holding its 5th Annual New Jersey Walk & Roll. The event will be chaired by local resident, and Foundation volunteer, Susan Salzmann. Recently we had the pleasure of sitting down with Susan as she shared the complex story of her husband’s personal journey with CIDP….