Nancy DiSalvo Elected to GBS|CIDP Board of Directors
Please join us in welcoming Nancy DiSalvo to the GBS|CIDP Board of Directors! A
Medicare IVIG Access Enhancement Act
Dr. Bart Jacobs, Vice Chairman of GMAB, and co-authors, “Editor’s Choice,” Brain Journal
An article published in Brain Journal, September 25, 2018, regarding research findings of the International Guillain Barre Outcome Survey (IGOS), partially supported by GBS|CIDP Foundation International, received the “Editor’s Choice.” Findings of IGOS are significant to the GBS community as noted in the abstract summary of article
Awareness Month is All About Advocacy
May is GBS|CIDP Awareness Month, and we are getting ready to celebrate all month long! I can’t help but wonder where 2019 has gone, but that thought is overshadowed by my excitement for our 2019 Awareness Month Plans – Government Advocacy. If we haven’t met yet, I should probably introduce myself. My name is…
May is GBS|CIDP Awareness Month
Be your own best advocate. Did you know that Medicare part B can restrict your location of care for your IVig treatments? Or that each year, your voice can influence Congress on important issues such as funding the National Institutes of Health’s research into GBS and CIDP? Whether you are a patient, caregiver, friend, or…
Clovis Walk & Roll Breaks its Own Record!
The GBS|CIDP Foundation International is delighted to share this important Walk & Roll update! On March 9 at Dry Creek Park in Clovis, California, GBS volunteer and Clovis Walk Chairman, Robert Vasquez hosted yet another exciting Walk & Roll fundraising event with a record-breaking 320 walkers in attendance! Thus far the event has raised $10,356…
CIDP Disease Burden — Results of a US Nationwide Patient Survey
In 2017, a nationwide survey of US CIDP patients was conducted to assess the impact of disease-related disability and treatment on lifestyle and work activities. Approximately 3250 individuals aged ≥18 years, recruited by the GBS|CIDP Foundation and self-reported to have CIDP, were invited to complete an online survey; of these, 475 completed the survey and…
Clovis, CA Walk & Roll Chair in the News
On March 4, the Fresno BEE published “Rare illness left this Clovis man paralyzed. Now he’s helping others,” featuring GBS|CIDP Foundation’s volunteer, Rob Vasquez of Clovis, CA. The Clovis Walk & Roll, March 9, hosted by Rob, is the first of the 2019 Walk & Roll season! See Fresno Bee Video and Article
New GBS|CIDP Patient Registry Launching on Rare Disease Day!
This Rare Disease Day (February 28), the GBS|CIDP Foundation will be launching an online Patient Registry for patients with GBS|CIDP or variants of the condition
GMAB Member Elected President of NY State Neurological Society
We would like to congratulate Gil I. Wolfe, MD, dedicated member of our Global Medical Advisory board for his election as president of the New York State Neurological Society (NYSNS). He assumed the presidency following the society’s annual graduate medical education conference held in New York City on Jan. 5. Read Full Article
In Response to NY Times article, “What is the Blood of a Poor Person Worth?”
Imagine the shock and helplessness of seeing your child’s body suddenly growing weak, clumsy, and unable to walk, or even stand; the fear that they may never live a normal life, or even survive this terrifying, disabling disorder.
Research in CIDP: Are we making progress?
By Jeffrey A. Allen, MDMember, GBS|CIDP Foundation Global Medical Advisory Board CIDP as a named disease entity is now about 4 decades old. The laboratory data that helps define the disease, nerve conduction studies and in some cases cerebral spinal fluid and nerve biopsy, is even older; and the initial description of what has now…
A 30th Celebration to Remember
Cheers to 30 Years! It was the best of all worlds this past November at the 2018 Symposium in San Diego where a record-breaking 575 attendees gathered for 3 days of GBS|CIDP patient support, education, research and advocacy! Thank you to our presenters, sponsors, volunteers and every member of this amazing community for the moments…
GBS CIDP Foundation International Earns Coveted 4-Star Rating From Charity Navigator
Conshohocken, PA (December 4, 2018) – GBS|CIDP Foundation International’s strong financial health and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator. This is the 7th consecutive time that GBS|CIDP Foundation International has earned this top distinction. Since 2002, using objective analysis, Charity Navigator has awarded only…
One-Day Regional Meetings Are Back for 2019
2019 Schedule of One-Day Regional Conferences including at dates and locations.