CIDP

Newly diagnosed with CIDP from back in June as I’m learning to navigate CIDP on a day-to-day basis with monthly infusions. My days are filled with a lot of progress but still lots of symptoms. Everyday is something new.  Back in June, I was sick and then a couple weeks later started losing feeling throughout…

In 2018, I was 44 years old, I had been working in construction. Strong, healthy, and just starting a new career as a site manager at the company where I had been employed for 18 years. It started with a strange feeling in my left foot. As if I were wearing a thick sock. Later,…

After experiencing severe weakness in my lower extremities for several years, I sought out a diagnosis for my continuing decline after feeling that my mobility issues were impacting my lifestyle. My early symptoms were: difficulty climbing stairs, getting up from the floor, being unable to get up from a stooped position, and frequently falling (due…

My name is Eli, and I was diagnosed with CIDP in July 2021. In June of that year, I fell outside for an unknown reason. Over the next few weeks leading into July, I fell nine times and lost the use of my arms and hands. Since this was during Covid, it took a while…

I was born and grew up in the coastal city of Durban, South Africa (SA) in 1967. The British indentured Indians in the late 1800s to work the sugar cane fields. Despite the oppressive Apartheid Laws affecting Black South Africans, I was able to study a Bachelor of Science degree with majors in Geology, Geography…

In February 2023, my life took an unexpected turn. A searing nerve pain and crippling muscle weakness engulfed my body, leaving me bewildered and helpless. Each day became a torturous struggle as the insidious symptoms of CIDP progressed. The relentless burning sensation tormented my nerves, and my muscles had no strength, rendering me unable to…

My decline came rapidly, I am one of the rare acute cases of CIDP that was originally diagnosed as GBS. At 35 weeks pregnant, I started getting tingling in my hands and feet followed by that rapid decline I mentioned over the course of 9 days. At 36 weeks pregnant doctors diagnosed me through a…

I was diagnosed with atypical CIDP in March 2022 following a horrible case of COVID that resulted in being hospitalized for a couple days. I can’t begin to eloquently describe what it felt like when my symptoms started. Like sharp pins and needles all throughout my legs that made me think my legs were falling…

Once the prednisone regime was begun I soon became able to start moving my arms and legs a little at a time and slowly build strength in a recovery program.  After a total hospital time of 90 days I was able to leave Rehab and return home to continue recovery on my own, with wheelchair,…

On the weekend of July 4th, 2014,  while on a camping trip on Fire Island, I woke up one day and my right foot was numb,  I worried it was a spider bite, but nothing was visible on my foot. It dissipated a bit during the day but the next morning I awoke and both…

In early 2022, the bottom of a few of my toes on both feet was going numb.  While this was odd, I did not pay this the credence I should have and simply went about my life.  Stranger still, as the weeks and months would progress, that same numbness would begin to spread.  In addition…

May of 2022, our 2 year old began walking oddly. It was such a slow decline, I thought I was going crazy. After a few weeks of realizing there has to be something wrong, I called June’s pediatrician in tears. She trusted me and sent me straight to the Seattle Children’s Hospital ER. After a…

Early 2016, I noticed numbness in the soles of my feet, someone suggested “cool laser “treatments. After 15 appointments with no results, I gave it up. I was kayaking, riding my bike along trails, playing with a band. I was 81 years old. My wife and I celebrated our 25th anniversary on 8 August 2017…