My name is Crystal and I have CIDP. My journey with CIDP started a year before I was diagnosed with memory loss and severe fatigued. At the time, I was working a job that required a lot of energy and I was finding myself really struggling with my everyday tasks. I chalked it up to…
It all started when I thought I was diagnosed with Guillain-Barre Syndrome many years ago. After making a reasonable recovery, I continued on to live my life to the fullest only to find out that my health issues had just begun…Fifteen years later, I started falling and experiencing severe pains in my back and legs….
My journey with CIDP begin in 2006 when I returned home from a trip in South America. Two months after returning, I began walking a little strange and noticed I was getting weaker and more tired. I soon saw a neurologist, which began the 10-month diagnosis of CIDP. I did all the routine tests and…
Growing pains was my first diagnosis after I was experiencing weakness and tingling in my feet. I was shocked that growing pains was the reason behind the pain I was experiencing. After going away for a weekend, the pain become unbearable and I was beginning to not be able to walk. I was rushed to…
“When you love something you do it until you can no longer do it.” After enduring a young adulthood (1996 -2001) of spinal stenosis, back surgeries (including a laminectomy and spinal fusion), and multiple knee surgeries, alongside many painful periods of recovery, Alex Biagi was back in shape and back to his old normal –…
Recently we had the privilege to connect with Trent Fielder and learned why and how he continues to challenge himself both physically and mentally, and why he believes, “We all have the ability to inspire if we live our lives with our spirit first.” Here’s what he had to say: When were you diagnosed? 12/16/2011…
By Arthur Gause My ‘Honor Your Hero’ story is about my wife Dee. She is my caregiver. By the time I was diagnosed with CIDP in 2015, I was wheelchair-bound. Getting an appointment with a Neurologist was a challenge. It took 5-6 months after onset of the symptoms to see one. Because of her hard…
By Robert Neuenschwander My hero is my wife, Kathleen, who has also been my caretaker. CIDP hit me in September of 2013 and within two and a half months I was almost totally paralyzed. I could move my head and neck but nothing else. Kathy got a lift and slings and every morning got me…
By Chelsea Ray My Hero is my Dad. He is a hard working police officer and Christian man. He has always been by my side supporting me and taking care of me whether it’s driving me to the doctor, picking up my medications, or helping me with anything else that I need. When I was…
Meet GBS member Nancy DiSalvo, a tireless international volunteer for the GBS|CIDP community, and learn why she feels “each small accomplishment is a major victory.” We sat down with Nancy at our 2017 International Liaison Meeting in Amsterdam. Here’s what she shared about her experience with both GBS, and CIDP. The morning of November 8,…
My name is Corbin. I’m fifty-six years old, I’ve been married for thirty-three years, have two grown and successful sons, a successful daughter in law, two grandchildren and a dog named Luke. In May of 2012, I was an executive engineer in charge of a global team of scientists, engineers and technicians who developed technical…
Hi, my name is Christa and I am 27 years old, and my journey started in 2013. I had started a new job and noticed intense fiery pain in both my arms. Instantly I thought, “maybe it’s carpal tunnel” and so my long arduous trips to the doctor began. Eventually I was sent to a…
In my time at the Foundation I have had the honor of compiling & sharing your stories of unwavering strength & resilience in your personal journeys. If it’s okay – today I’d like to share mine with you. How do you measure the quality of your life? Is it in the experiences? Your monetary value…
One morning in June I woke up and the last two fingers on my right had were numb. Like most people I thought that my fingers would “wake up”. The next morning the last two fingers on my left hand were numb, again I thought they would “wake up”. Unfortunately they did not. I called…
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