Coronavirus (COVID-19)

The Foundation is committed sharing the most accurate information from the world’s leading experts, many from our Global Medical Advisory Board. The COVID-19 situation changes daily and we will continue to share updates that are vetted by the experts in GBS. In addition we are in regular contact with the FDA representing the patient voice in the top-level decision making. We understand that there are many opinions creating confusion so please consider the source of your information before drawing conclusions.  As always, all decisions should be made with your personal physician based on your own health.  Please continue to check our website for updated information.

Stay connected with the GBS|CIDP Foundation community.


about A Statement from Executive Director, Lisa Butler, with regard to COVID-19 and Planning Ahead

Wrap Up With A Win – Awareness Month’s Advocacy Week Brings Legislative Victories

Our 2020 May Awareness Month went digital this year, but that did not stop nearly 100 advocates across the US from participating in virtual advocacy through the Advocacy Action Center. THANK YOU to everyone who took the time to create a letter for Members of Congress. Together, we make our voices heard by lawmakers and…

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The COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund from The National Organization of Rare Disorders

The National Organization of Rare Disorders (NORD) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the current pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs.  The COVID-19 Critical Needs Non-Medical Assistance Fund provides eligible individuals impacted by the…

Read More about The COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund from The National Organization of Rare Disorders