Coronavirus (COVID-19)

The Foundation is committed sharing the most accurate information from the world’s leading experts, many from our Global Medical Advisory Board. The COVID-19 situation changes daily and we will continue to share updates that are vetted by the experts in GBS. In addition we are in regular contact with the FDA representing the patient voice in the top-level decision making. We understand that there are many opinions creating confusion so please consider the source of your information before drawing conclusions.  As always, all decisions should be made with your personal physician based on your own health.  Please continue to check our website for updated information.

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about A Statement from Executive Director, Lisa Butler, with regard to COVID-19 and Planning Ahead

An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH

(Please see the following open letter statement authored by members of the GBS|CIDP Foundation International medical community as referenced.) As clinician/scientists who have spent careers studying GBS, we are concerned that your statement on the “New Normal” television show about GBS and the COVID vaccine will have unintended consequences. Your statement is already all over…

Read More about An Open Letter to Dr. A.S. Fauci, Director NIAID, NIH

FDA approved package insert for Pfizer-Biontech COVID-19 vaccine, no mention of GBS as risk

This information is a public document and has been forwarded to the Foundations by our key opinion leaders in the GBS medical community. Of note, there is no mention of GBS in the vaccine insert, not as a risk nor as a vaccine to avoid for those who have had GBS or CIDP or are…

Read More about FDA approved package insert for Pfizer-Biontech COVID-19 vaccine, no mention of GBS as risk