International Events

Rare Disease Event in Agrigento, Italy

The beautiful city of Agrigento, Italy – nominated as the Italian City of Culture 2025 – became a hub of history, art, and hope as it hosted the Rare Disease event: “Innovation in Research, Culter and Care.” Patients, caregivers, patient organizations, researchers, and expert physicians came together to share knowledge, enhance collaboration, and envision a…

2023 International Regional Meetings

2023 Barcelona, Vienna, and Copenhagen Regional Meetings Join us this March for an EU Regional Meeting Near you! Have you, or a loved one, recently been diagnosed with Guillain-Barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) or Multifocal Motor Neuropathy (MMN)? Or, perhaps you have been coping for some time but would like more information…