Taking Volunteering to the Next Level

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Taking Volunteering to the Next Level

The Foundation volunteers are taking volunteering to a whole new level! Don’t miss a chance to tune into what our current volunteers are doing in the community.

Clive Phillips, MMN Patient, created the Making the Most of Now Podcast to bring together the Multifocal Motor Neuropathy (MMN) community to discuss this rare neurological condition and related ones. He connects with medical experts, patients, and their supporters in the hope of informing and inspiring our community.

Crystal Sada, CIDP Patient, was featured on iHeart Radio, Untold Stories: Life with Myasthenia Gravis, The Realities of Life with CIDP and share how her life has been drastically impacted by this rare condition.

Rick Forney, the Mid-Atlantic Regional Director for the Roanoke Chapter and GBS patient, hosted a chapter meeting during May Awareness Month, which brought together several patients and care partners. This support meeting was featured in the WFXR Fox news article called,A community finding comfort living with a rare disorder.”

There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play an active role in our community by raising awareness of GBS, CIDP, MMN, and the Foundation resources. Ray Lopez, Boca Raton Liaison, has made it his mission to visit local hospitals and share the valuable resources the Foundation has with nurses, doctors, and staff members. Continue reading…