2022 GBS|CIDP Awareness Month

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May is GBS|CIDP Awareness Month

May is GBS|CIDP Awareness Month around the world!  This year we spreading awareness and support through new and innovative programming, including the Be the Bridge Awareness Campaign directed to Healthcare Professionals. Additionally we are launching a New Advocacy Training series, and an Ask the Expert Presentation, you will not want to miss, regarding adapting to a New Normal with GBS|CIDP & Resilience through most challenging of times.

Be the Bridge Awareness Program for Healthcare Professionals

Patients and caregivers around the world have reported that finding a local medical professional who specializes in treating and offering ongoing support, is one of their top challenges. This May we encourage you to join us in our continuous commitment that no one travels this journey alone, and that everyone receives the best possible care.  On May 1, the Foundation will launch Be the Bridge for GBS|CIDP, a new and on going Foundation awareness program, designed for professionals in the field of healthcare including, but not limited to:

Be the Bridge for GBS CIDP

Neurologists (muscle & nerve focus)
Physician Assistants
Physical & Occupational Therapists
Primary Care Physicians
Nurses & Nurse Practitioners
Infusion Nurses
Social Workers & Community Health Workers
Specialty Pharmacists
Hospital Case Workers
Mental Health Professionals
Alternative Health Care Professionals

The Be the Bridge program will provide healthcare professionals with a web portal that includes educational materials, webinars, and virtual meetups for their patients as well as opportunities for medical professionals to connect with members of the Foundation’s Global Medical Advisory Board.

Be the Bridge Volunteer Opportunities

If you are interested in participating in our volunteer program, including the opportunity to “bridge” awareness of Foundation resources to local medical professionals, please fill out our volunteer web form and we will be in touch as soon as possible!  https://www.gbs-cidp.org/volunteer/

May 10, Dr. Dan Gottlieb – Living with a New Normal

On May 10 family psychologist, author and radio host (WHYY Voices in the Family), Dr. Dan Gottlieb, Ph.D., will present a heartfelt message of hope and offer positive ways to stay resilient while adapting to a new normal. Dr. Dan’s presentation will be shared via email and social media, and will be published on the Foundation’s Ask the Expert videocast portal:  https://www.gbs-cidp.org/ask-the-expert-videocast/

About Dr. Dan Gottlieb

In 1979, Dr. Dan Gottlieb was in a near fatal automobile accident that left him paralyzed from the chest down. As expected, there were years of despair and depression. He has learned valuable lessons about what it means to be human and how adversity can teach us how to live better and love better. We are pleased to have him join us this May and share his message of resilience and hope in challenging times.
Click here to learn more about Dr. Dan Gottlieb.

May 24 – Advocacy Training Series Kicks off!

50 to Forward is an advocacy training series for volunteers across the country. Our goal is to have volunteers in all 50 states advocating for the GBS|CIDP and variants community. Whether you are an experienced advocate, new to the advocacy world, or somewhere in between, there is always something new to be learned. Learn how to effectively use your voice and advocate for our community by joining 50 to Forward! Walk away with useful skills and knowledge that will help you succeed in the advocacy world. Anyone can be an advocate – why not start today? If you would like to register for the series or have any questions, please contact Ellie Herman at ellie.herman@gbs-cidp.org.