How do you respond to change? If you are interested in embracing change and growth, then consider these strategies for helping you to build resilience.
Join us on May 28, 2020 for a panel discussion on Results from CME Program: Differentiating GBS & CIDP in a Hospital Setting.
Dr. Amy Baxter presents: Bee Needle Fear Friendly This program will present options to assess and reduce needle fear, pain, and vasovagal syncope with Ig therapy, including topical anesthetics, cognitive interventions, and Buzzy best practices. After this program, the participant will be able to: Describe how differences in pharmacology and physiology influence analgesic choices for Ig procedures Cite…
COVID-19 Ask the Experts with Dr. Ken Gorson, part of our educational series featuring medical experts from the Foundation’s Global Medical Advisory Board.
The National Organization of Rare Disorders (NORD) launched a COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the current pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs. The COVID-19 Critical Needs Non-Medical Assistance Fund provides eligible individuals impacted by the…
Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19
By Dr. David Saperstein Antibodies (also known as immunoglobulins) play an important role in health and illness. Many of you regularly receive intravenous immunoglobulin (IVIG) to treat your autoimmune disease. Flooding a person’s system with antibodies from normal, healthy individuals can reverse problems caused by abnormally overactive immune systems. However, providing antibodies that fight a specific infection can…
The Plasma Protein Therapeutics Association (PPTA) has provided a statement specific to plasma protein therapies in light of the COVID-19 pandemic. CLICK HERE to read the statement. The PPTA notes that their Pathogen Safety Steering Committee continues to monitor the situation and is currently working on a broader update for the community. We will share these…
The coronavirus COVID-19 situation is evolving rapidly. In the interest of concerns and questions that the Foundation is receiving regarding the spread of the coronavirus COVID-19, the GBS|CIDP Global Medical Advisory Boards offers the following statement: GBS, CIDP and variants will not put patients at any higher risk of contracting the COVID-19, but those who…
By Diana Castro, MD Despite recovery of muscle weakness in most children, many patients experience persistent fatigue, pain and anxiety/depression. These symptoms can be incapacitating and can affect academic and social development. The mechanism underlying post-GBS fatigue is unclear. Fatigue can be secondary to stress and psychological factors. Other possibilities are deconditioning due to the…
By: Chelsey Fix Medicare is confusing – that’s a fact! Add the confusing Medicare system on top of a complex treatment for a rare disease, and it’s easy to feel overwhelmed. The Foundation is here to help all of our patients navigate health insurance headaches! For now this article explains the current Medicare situation for…
In 2019, The GBS|CIDP Foundation International was honored with a membership to the National Health Council (NHC). The Foundation joins over 140 other organizations, including major pharmaceutical companies, well-known patient support foundations, and respected professional societies, in their Membership. The mission of the NHC is to provide a united voice for the 160 million people…
Clinical research studies are scientific evaluations in people, led by researchers and physicians. They can help advance the understanding of a disease and are the most important way for researchers to find out if potential new treatments are safe and effective. Studies like these are needed to be able to make new treatments available to…
Diagnosis and management of Guillain–Barré syndrome in ten steps Portuguese Spanish Chinese Nature Reviews Neurology: https://www.nature.com/articles/s41582-019-0250-9; Published Sept 20, 2019. Explanation of the above referenced article below.https://creativecommons.org/licenses/by/4.0/ Authors: Sonja Leonhard, Melissa Mandarakas, Francisco de Assis Aquino Gondim, Kathleen Bateman, Maria Lúcia Ferreira, David Cornblath, Pieter van Doorn, Mario Dourado, Richard Hughes, Badrul Islam, S Kusunoki, Carlos Pardo, Ricardo Reisin, Jim…
Free online program for patients and caregivers Date: Wednesday, December 11, 2019 Time: 3:00 PM – 4:15 PM ET (Support for this patient education program provided by Grifols and coproduced with NeuroCareLive) Intravenous immunoglobulin (IVIG) is a treatment for Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Over the course of several hours, naturally occurring antibodies from healthy…
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