Foundation News

The Secret Is Out!!  San Diego, here we come! We can’t wait to see you there in 2018! ________________________________________________ Announcement! Introducing One Day Regional Conferences in 2017!! Brand new to our Foundation! A little spirit of a chapter meeting & a taste of a symposium – these one day conferences will bring together local physicians,…

  Access to Marketplace Insurance Act (H.R. 3742) This bill amends the Patient Protection and Affordable Care Act to require health insurers to accept, on behalf of individuals enrolled in qualified health plans, payments made by certain third parties, including state and federal government programs, Indian tribes, tribal organizations, urban Indian organizations, and certain tax exempt…

GBS|CIDP Foundation International announced it has earned a flawless score of 100 from Charity Navigator for Financial Health, and Accountability and Transparency. Charities with these distinctions execute their missions in a fiscally responsible way while adhering to good governance and other best practices that minimize the chance of unethical activities. These two 100 ratings translate…

NARBERTH, Pa., May 6, 2016 /PRNewswire-USNewswire/ — GBS-CIDP Foundation Int’l, Narberth, PA, is the preeminent global non-profit organization supporting individuals and their families affected by Guillain-Barré (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and their variants. The Foundation provides support, education, research and advocacy and is proud to announce May as National GBS-CIDP Awareness Month. GBS,…

Action Alert Support Congressional Efforts to Advance and Expand Research into Peripheral Autoimmune Neuropathies, including GBS, CIDP, and variants Background Each year, Congress decides how much federal funding should be applied to medical research activities and provides guidance to the National Institutes of Health (NIH) on what conditions legislators are particularly interested in. They also…

Congressman John Garamendi, recently honored as our Legislator of the Year at our 35th Anniversary Gala, continues to be a Champion for GBS and the GBS|CIDP Foundation! Congressman Garamendi recently released the following “Dear Colleague” letter to help raise awareness and support of our conditions and the services we provide in the wake of the…

As many of you know, the GBS|CIDP Foundation International is actively involved in political advocacy within the United States to help improve the lives of our patients. We are currently working on getting GBS included on a list of conditions deemed eligible for study under the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP), which…

Susan Donaldson James TODAY.com  Bridget Hamilton was 10 weeks pregnant when Guillain-Barré syndrome struck in 2012. The Dubuque, Iowa, mom spent 84 days in the hospital, much of the time paralyzed and in severe pain, away from her three other children. Guillain-Barré is a rare neuromuscular disease, affecting about 1 in 100,000, but higher rates…

The GBS|CIDP Foundation is constantly working with our legislators on Capitol Hill to pass legislation that both directly and indirectly improves the lives of our patients. Here’s a snapshot of what we accomplished in 2015, and what we have on the docket for 2016: Consistent with the community’s request, NIH received an additional $2 billion…

Neuropathy Community Applauds Enactment of AB 339 Following advocacy by the public health community, AB 339 was recently signed into law, which will help Californians with chronic conditions, like neuropathies, access healthcare by containing certain out-of-pocket costs. The vast majority of Covered California patients will see their specialty drugs capped at $250 per month, per prescription….