Research Surveys and Studies
It’s been proven that research is more successful when patients give their input early and often! By taking surveys, participating in focus groups, or testing devices that are being made, you are helping to ensure researchers create something that actually matters to the community. The more people who participate, the better! Check out the opportunities below and help researchers stay on the right track with their work in GBS, CIDP, or variants such as MMN.
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Your Voice Matters- Take part in our research!
Your Voice Matters- Take part in our research! RTI Health Solutions (RTI-HS), a non-profit research organization, to recruit adults to participate in a focus group. You and fellow participants will be asked about your experiences with chronic inflammatory demyelinating polyneuropathy (CIDP) and your opinions about CIDP treatments. If you have been diagnosed with CIDP, you
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Opportunity to Share Your CIDP Treatment Experience
Inspire Research, working with a pharmaceutical company, is conducting a research survey tobetter understand the experiences of people living with Chronic Inflammatory DemyelinatingPolyneuropathy (CIDP) who currently use immunoglobulin (IG) therapy If you qualify, you will be invited to complete a one-time online survey that takes about 20–30minutes. You may first be asked a few brief
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CIDP Treatment Survey From Yale University
A researcher from Yale University is conducting a short, anonymous survey to learn more about how patients with CIDP have responded to Efgartigimod (also known as Vyvgart hytrulo). Your feedback will help us better understand its effects on symptoms, side effects, quality of life, and the overall treatment experience. This information will be invaluable in
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Your Voice Matters- Take part in our research!
Your Voice Matters- Take part in our research! If you have chronic inflammatory demyelinating polyneuropathy (CIDP), you may be eligible to take part in our interview. RTI Health Solutions (RTI-HS), a non-profit research organization, is recruiting people to participate in an interview to help researchers understand the aspects of treatment that matter to patients with
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Help Develop a meaningful MMN-Specific Measure
Do you have Multifocal Motor Neuropathy (MMN)? Clinical Outcomes Solutions, a healthcare research company, is conducting research about the experience of living with MMN. We are looking for adults with MMN to help fine-tune an MMN-specific patient reported outcome measure (PRO) that can be used in clinical trials and clinical settings. The newly designed PRO
