Patient Empower Hour Coffee Chat
Finding support from others in a similar situation can sometimes be the best medicine, particularly within the rare disease community. Do you have an inspiring thought, tip, or experience to share with our community? This coffee chat will be a one-hour chat featuring patients and care partners sharing an “inspirational moment” along their journey with GBS, CIDP & MMN! Register Now!
End-of-Year Appeal Donation
These empowered moments happen because of the generosity of our donors. Help us continue to make a positive change in GBS, CIDP, and MMN patients’ lives by donating today.
A Message from Lisa Butler, Executive Directo, and Corbin Whittington, Board of Directors President
The Foundation wants to offer each patient in our community an empowered moment – a time when they recognize that a diagnosis does not define them. This moment sparks an action that results in advocating for their doctor to connect with a member of the Foundation’s medical advisory board consult, sharing their story on Capitol Hill, fundraising for research, and more.
To empower our patient community, we need you. These inspiring individuals have come together to transform their personal battles into powerful missions of hope, encouragement, and change. And they need your support to make it happen.
When I found out that no one was specifically fundraising for MMN research, I knew I had to act. When I was told by people no one would be interested unless I had at least $ 1 million dollars, I decided I had better raise a million. At that point, I took my ideas to the GBS|CIDP Foundation and thankfully, they embraced them and have encouraged, supported, and empowered me ever since.
At a very young age, I was taught that talking about your challenges is a sign of weakness, so I’ve always kept them to myself. But the Symposium gave me the strength to embrace and open up about my own struggles.
Once I was diagnosed, I searched all over to find support directly for my condition. Unfortunately, there was nothing, and I decided to volunteer with the Foundation to be the missing piece for people like me to find support, friends, and hope.
