Dr. Peter Donofrio, Chairman, Global Medical Advisory Board, GBS|CIDP Foundation International, Receives AANEM Distinguished Physician Award
The American Association of Neuromuscular and Electrodiagnostic (AANEM) has awarded the 2020 Distinguished Physician Award to Peter Donofrio, MD, for his distinguished service as a clinician, educator and his overall support of AANEM.
Your Donations in Action
In 2016 The GBS|CIDP Foundation awarded a research grant to Eduardo Nobile-Orazio, MD, PhD, FAAN, Professor of Neurology Neuromuscular and Neuroimmunology Service at Milan University. Dr. Nobile-Orazio’s 2016 study titled: An Italian Multicenter Network for the diagnosis and therapy of chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and of its variants, contributed to the 2019 article: Risk factors for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP): antecedent events, lifestyle and dietary habits. Data from the Italian CIDP Database., published by the EAN (European Academy of Neurology). Update: GBS|CIDP Foundation Research 2016 Grant Recipient, Dr. Eduardo Nobil-Orazio, published in Journal of Neurology, Journal of Neuroimmunology, and Wiley Online Library, and EAN.
Announcing 4 New Centers of Excellence, including first in Pediatric Care
Our Global Medical Advisory Board has set standards for what they consider to be excellent medical centers for the diagnosis and treatment of GBS and CIDP, MMN and related neuropathies. Based on levels of expertise, available treatments, facilities, and research capabilities, these are the medical centers that we can unequivocally recommend as “Centers of Excellence”….
Join 100 Fundraisers, this August, for the Raise Well 30-day Challenge!
On August 1, 2020, we will be launching the Raise Well 30-Day Wellness Challenge, a fundraising and wellness challenge open to everyone and anyone. Our goal is to reach 100 participants! We are encouraging fundraisers from around the globe to raise money for GBS|CIDP research, learn and share wellness tips, all while raising awareness for…
NEW! 2020 VIRTUAL SUMMIT – October 3, 2020, 10am-2pm (EST)
Although our in-person event has been postponed, our plan to offer extraordinary presentations, programs and opportunities to connect, has not! Please join us for our New (FREE) Virtual Summit 2020 on October 3rd, 2020! Mark your calendars for an inspiring LIVE and FREE online event featuring the very same medical & wellness experts that host…
2020 Symposium Update
We are working diligently to secure a new official date for the Fall of 2021. An Announcement will be made in the coming weeks with the new Symposium date. We are committed to hosting this event in its full capacity on our new date.
GBS|CIDP Foundation Announces New Chairman of GMAB
On June 1, 2020, Dr. Ken Gorson officially passed the leadership to Dr. Peter Donofrio as Chairman of our esteemed Global Medical Advisory Board (GMAB). We thank Dr. Gorson for his leadership and many contributions in the past three years including the leadership of the US International Guillain-Barre Syndrome Outcome (IGOS) program, the Zika Virus…
A Message of Support from the Foundation Team
In response to the tragic events this past week, we wanted to share the following thoughts with you, our treasured community. GBS, CIDP, MMN, and all the variants do not discriminate.
Results from CME Program: Differentiating GBS & CIDP in a Hospital Setting
Join us on May 28, 2020 for a panel discussion on Results from CME Program: Differentiating GBS & CIDP in a Hospital Setting.
Questions about Multifocal Motor Neuropathy? Save the date!
On Wednesday, May 20, 2020, at 3 PM ET, head to NeuroCareLive to hear a conversation between medical specialists, advocates, and a patient who lives with MMN. Multifocal Motor Neuropathy (MMN) affects about 1-2 in every 100,000 individuals worldwide. When people develop MMN, their motor nerves are attacked by their immune system. This results in…
May is GBS|CIDP Awareness Month
May of 2020 has brought unprecedented challenges and changes, the world over. We hope you find comfort in knowing that the GBS|CIDP Foundation has made every effort to continue to Educate our patients in new and innovative ways.
What is Convalescent Plasma?
By Dr. David Saperstein Antibodies (also known as immunoglobulins) play an important role in health and illness. Many of you regularly receive intravenous immunoglobulin (IVIG) to treat your autoimmune disease. Flooding a person’s system with antibodies from normal, healthy individuals can reverse problems caused by abnormally overactive immune systems. However, providing antibodies that fight a specific infection can…
Join us for Virtual Ask the Experts
As we have postponed spring chapter meetings, fundraising walks and activities, and in the theme of “working together in new and innovative ways,” we have developed a virtual “Ask the Expert” educational series featuring medical experts from the Foundation’s Global Medical Advisory Board. Our educational series will be pre-recorded, and hosted by members of the…
Life after GBS for Youth and Teens
By Diana Castro, MD Despite recovery of muscle weakness in most children, many patients experience persistent fatigue, pain and anxiety/depression. These symptoms can be incapacitating and can affect academic and social development. The mechanism underlying post-GBS fatigue is unclear. Fatigue can be secondary to stress and psychological factors. Other possibilities are deconditioning due to the…
Celebrating a One Year Anniversary this Rare Disease Day!
Rare Disease Day 2020 marks a very special anniversary for the entire GBS|CIDP community. The Foundation is pleased to report that is has been one year since the launch of our GBS|CIDP Patient Registry!