Foundation Co-hosts Open House with Bryn Mawr Rehab
In July of 2023, the Foundation co-hosted an Open House with Bryn Mawr Rehabilitation Hospital in Malvern, PA. GBS and CIDP patients in attendance received a guided tour of the facility from the PT and OT’s, as well as a demonstration of adaptive devices and recreational therapies. The feedback from our community has been very…
Volunteer spreads awareness in local hospitals
There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play an active role in our community by raising awareness of GBS, CIDP, MMN, and the Foundation resources. Ray Lopez, Boca Raton Liaison, has made it his mission to visit local hospitals and share…
Taking Volunteering to the Next Level
Taking Volunteering to the Next Level The Foundation volunteers are taking volunteering to a whole new level! Don’t miss a chance to tune into what our current volunteers are doing in the community. There is no greater force than like-minds joining together for a common mission to change lives. The Foundation volunteers continue to play…
Research Poster Opportunity for GBS, CIDP, MMN Patient Symposium
We Invite You to Participate! As valued members of our medical community, we would like to inform you and your colleagues in training, residents, and fellows of a special opportunity to participate in the 2023 GBS|CIDP Foundation Patient Symposium, October 5-7 in Alexandria, VA. Poster Request Drs. Jeffrey Allen and Bart Jacobs, as Chair and…
Statement regarding GBS alert in Peru
Statement regarding GBS alert in Peru July 10, 2023 The Foundation and its Global Medical Advisory Board are aware that Peru has issued a statement of emergency due to an increase in cases of Guillain Barre Syndrome. Please know we are here for you and the GBS|CIDP Foundation International is committed to addressing your concerns…
Dr. Jeffrey Allen, New Global Medical Board Chairman
Please join us as we recognize Dr. Peter Donofrio, MD for all of his hard work and dedication as chairman of our Global Medical Advisory Board. As Peter steps down, we welcome Dr. Jeffrey Allen, MD as the new Chairman. Congratulations Jeff! We are honored to have your leadership and vision! Jeffrey Allen, MD is an Associate Professor in the Department of Neurology…
A one-year Research Update from the 2022 Benson Fellowship Awardee
A one-year Research Update from the 2022 Benson Fellowship Awardee, Elba Pascual-Goñi MD, PhD. Our 2022 Benson Fellow, Dr. Pascual-Goñi, carries out patient care and translational research tasks in the field of inflammatory neuropathies in the Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau (Barcelona). She is responsible for…
Pamela Franks Transitions to New Role at the Foundation
Pamela Franks Transitions to New Role at the Foundation Please join us in congratulating Pamela Franks, as she transitions from Foundation Walk & Roll Manager to her new role as Manager of Volunteer Engagement. Through the challenges of the past 3 years, Pamela has played a critical role in our Walk & Roll program, enthusiastically…
GBS CIDP Foundation International Earns Coveted 4-Star Rating From Charity Navigator
Conshohocken, PA (June 2022) – GBS|CIDP Foundation International’s strong financial health and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator. This is the 11th consecutive time that GBS|CIDP Foundation International has earned this top distinction. Since 2002, using objective analysis, Charity Navigator has awarded only…
Congress Recognizes the month of May as GBS|CIDP Awareness Month
On May 27, Congressman Garamendi, recognized the Month of May as GBS|CIDP AWARENESS Month and introduced the Medicare IVIG Access Enhancement Act to the House of Representatives. Read full script here Download (PDF)
Announcing 2022 Benson Fellowship Awardee
Announcing 2022 Benson Fellowship Awardee, Elba Pascual Goñi MD, PhD The Benson Fellowship is a three-year fellowship that provides an opportunity for scientists to engage in peripheral nerve of study. The Fellowship provides funds of up to $150,000 for three years, but only one Benson fellowship is awarded every three year period. We are pleased…
Press Release: February is Multifocal Motor Neuropathy (MMN) Awareness Month
[CONSHOHOCKEN, PA] — GBS|CIDP Foundation International, January 24, 2022 February is Multifocal Motor Neuropathy Awareness (MMN) Month. The GBS|CIDP Foundation International will bring focus, research funding, and ways to for patients and caregivers to raise awareness locally as well as connect with others in the MMN worldwide community. An international grassroots fundraising campaign will also…
16th Biennial Patient Symposium
Join us on October 20-22, 2022 in sunny Ponte Vedra, Florida! The Sawgrass Marriott Golf Resort & Spa will be our home for the weekend! With extraordinary amenities and a terrific location, Sawgrass Marriott Golf Resort & Spa offers an unforgettable destination for work and play. You’ll find our hotel in Ponte Vedra Beach, just…
“You Can’t Have a Disorder, You Look So Good” Coffee Chat
On June 22, 2021, we held our monthly Coffee Chat with over 26 of our members in attendance. The discussion was centered around the theme of “You Can’t Have a Disorder, You Look So Good,” whereby members opened up about the struggles of living a life with an “internal” illness, that is not always visible…
Adapt. Adjust. Accept.
Highlights from Adaptive Devices Ask the Experts Videocast “My devices enable me to attain self-sufficiency and independence” – Victor Sheronas The recovery process from GBS, CIDP, MMN and other variants can be a long, even sometimes life-long process. When patients leave the hospital, they are transitioning into a space that in most cases is not…