The beautiful city of Agrigento, Italy – nominated as the Italian City of Culture 2025 – became a hub of history, art, and hope as it hosted the Rare Disease event: “Innovation in Research, Culter and Care.” Patients, caregivers, patient organizations, researchers, and expert physicians came together to share knowledge, enhance collaboration, and envision a…
Advocacy Policies The GBS|CIDP Foundation International is committed to advocating for policies that enhance the lives of individuals affected by Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions. Our policy engagement focuses on key areas that directly impact our community. Policy Priorities To achieve these goals, we will:…
GBS is a rare immune disorder that damages peripheral nerves (that is, nerves outside of the brain and spinal cord). In most people GBS is triggered by exposure to an infectious illness, and the most frequently encountered infectious illness is a gastrointestinal infection known as Campylobacter jejuni. Campylobacter jejuni is commonly transmitted through food, particularly undercooked poultry and…
CIDP Financial Assistance Fund NORD’s CIDP Patient Assistance Program offers eligible individuals diagnosed with CIDP financial support (Premium, Copay, and Medical Assistance) to pay for out-of-pocket healthcare costs directly related to the care and treatment of this diagnosis. Contact info for NORD’s CIDP Program: Phone: 203-267-9005 Email: CIDP@rarediseases.org The quickest way to apply is on…
The GBS|CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected by Guillain-Barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN) and related conditions through a commitment to support, education, research and advocacy. The steadfast commitment to improving lives of patients impacted by these conditions propagated the responsibility…
GBS|CIDP Foundation International Welcomes New Congress and New Administration, Additional Opportunities for Advocacy This month, GBS|CIDP Foundation International sent its introductory and welcome letter the 119th United States Congress, expressing the needs of our patient and caregiver community. In the letter sent to all current US Representatives and Senators, we outlined our vision for convenient…
To read the Nature Reviews article on Guillain–Barré syndrome, please click here.
Respiratory syncytial virus (RSV) is a highly contagious virus that causes severe respiratory illness, leading to approximately 177,000 hospitalizations and 14,000 deaths annually among adults aged 65 and older [1]. Individuals with weakened immune systems are particularly at risk for severe complications from RSV [2]. RSV vaccines have proven to be highly effective in preventing…
“To our family and friends in the community affected by the California wildfires, our hearts and thoughts are with you during this devastating time. If you are living with GBS, CIDP, MMN, or variant conditions and are facing difficulties accessing medical treatment or need support, please do not hesitate to reach out to the Foundation….
Michael Ring, a determined GBS warrior who has turned his personal struggle into an inspiring journey of resilience. Diagnosed with Guillain-Barré Syndrome (GBS), he faced incredible physical challenges that could have ended his marathon dreams. But instead of giving up, he pushed through, reclaiming his strength step by step. Now, he’s sharing his story with…
Speaker Series – Episode 12 Summary In this Speaker Series episode, Dr. Jeffery Allen educates us about the current treatments for GBS, CIDP, and MMN as well as explain current trials and their findings. Dr. Allen is an associate professor of neurology at the University of Minnesota, adjunct faculty at Northwestern University, and the chairman…
The Critical Medicines Alliance The GBS|CIDP Foundation International recently joined the Critical Medicines Alliance, an initiative launched by the European Commission for the next 5 years. The objective of the Alliance is “to serve as a consultative body to identify priorities for action and propose solutions to strengthen the supply of critical medicines in the European Union,…
This statement is provided by the GBS|CIDP Foundation Global Medical Advisory Board. We also encourage you to contact your healthcare provider about whether it would be a good idea for you to have a COVID-19 vaccine. There has been much discussion about COVID-19 vaccines for individuals who are “immunocompromised.” GBS and CIDP and immune-mediated disorders….
CIDP Assistance Funds – Now Open for Enrollment! The GBS|CIDP Foundation International is excited to announce funding opportunities for individuals living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). A special thanks to the generous supporters of these funds. If you’re interested, please review the eligibility criteria below. We encourage you to apply even if these programs…
An Interview with Ralph G. Neas, GBS and CIDP Written by: Ellie Herman, Advocacy Coordinator Thirty-Four years ago, the Americans with Disabilities Act (ADA) was signed into law. We decided to celebrate the anniversary of this monumental piece of legislation by sitting down with Ralph G. Neas, a key civil rights leader in Washington, who…
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