Given these disorders are so rare, it can be challenging to find news stories, blogs or other online information. As part of keeping our community informed and up-to-date, we continually gather news-worthy information and share it here.
We also like hearing from you about the types of stories, articles, etc. that you are interested in reading. Feel free to send us feedback or even articles that you suggest would be appropriate and helpful for others.
One-Day Regional Meetings Are Back for 2019
2019 Schedule of One-Day Regional Conferences including at dates and locations.
Special Symposium Discount Extended to September 1, 2018!
Join Us! November 1-3 2018! Symposium 2018 will feature a wide array of presentations and workshops led by our best medical professionals, and will offer a unique opportunity for those affected by GBS, CIDP, and variants to meet with other patients and families from around the world. Register Now
Infusion Nurse Joins 2018 Symposium Team of Presenters
Infusion nurse, Amy Clarke will be joining our roster of 2018 Symposium presenters with a brand new session, All About Infusion. She will be discussing the infusion process from A to Z, and is happy answer all of your questions. You will leave the Symposium feeling informed and comfortable with treatment options, plans and procedures,…
Where Do Walk Donations Go? Research!
The GBS|CIDP Walk & Roll program is a great opportunity to raise awareness, build a local support network, and get involved with GBS|CIDP community. This year we are pleased to announce that funds raised through the Walk & Roll program will be used to support research studies focused on the treatment and diagnosis for GBS|CIDP…
2018 Symposium Update – Keynote Speakers Announced!
Richard A. Lewis, MD Please join us in welcoming our 2018 Symposium Keynote Speaker, Richard A. Lewis, MD, Professor of Neurology at Cedars-Sinai Medical Center, Los Angeles, CA. Dr. Lewis’ research interests include electrodiagnostic findings in demyelinating neuropathies—both acquired and inherited. As a leader in the GBS|CIDP community, he has participated in numerous patient support…
GBS|CIDP Foundation International Named 4-Star Charity Navigator Charity for Sixth Consecutive Year!
Dear Lisa Butler: On behalf of Charity Navigator, I wish to congratulate GBS|CIDP Foundation International on attaining the coveted4-star rating for demonstrating strong financial health and commitment to accountability and transparency. The nonprofit sector is advancing and expanding. As our organizations evolve, so do the desires and interests of our…
CSL Behring Announces FDA Approval of Privigen®
CSL Behring Announces FDA Approval of Privigen® [Immune Globulin Intravenous (Human), 10% Liquid] for the Treatment of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) in Adults KING OF PRUSSIA, Pa., Sept. 14, 2017 /PRNewswire/ — Global biotherapeutics leader CSL Behring today announced that the U.S. Food and Drug Administration (FDA) has approved Privigen® [Immune Globulin Intravenous (Human), 10% Liquid] for the treatment of…
Regional Conference Fort Lauderdale
Brand new to our Foundation! A little spirit of a chapter meeting & a taste of a symposium – these one day conferences will bring together local physicians, members & their caregivers and loved ones.
2016 Walk & Roll Announcement!
Our 2016 Walk & Roll season is officially in the beginning stages! We are so excited for what this year has in store for us! One major announcement is the addition of a new staff member – our new Walk & Roll Coordinator! Please give a big, warm, Foundation welcome to our new Walk & Roll…
Foundation Advocacy Update
In March, the GBS/CIDP Foundation International hosted our 2013 Advocacy Capitol Hill Day. We were joined by patient advocates and their family members from throughout the United States, from Maryland to Hawaii.
IVIG Access Critical to Those With Neurological Disorders
This article is written by Ed Gdula, the director of advocacy for the GBS-CIDP Foundation. It discusses IVIG access and its importance to those with rare neurological disorders, including GBS and CIDP. Read full article.
Nobuhiro Yuki’s Study
Read more about Nobuhiro Yuki’s study to understand the pathogenesis of GBS in “Guillain-Barre Syndrome and anti-ganglioside antibodies: a clinician-scientist’s journey.”
Privigen Shows Improved Function for CIDP Patient
CSL Behring reports that data presented from the Privigen Impact on Mobility and Autonomy (PRIMA) trial at the Peripheral Nerve Society Inflammatory Neuropathy Consortium Meeting in Rotterdam, Netherlands, suggests that treatment with Privigen®, an intravenous immunoglobulin (IVIg), may lead to improvement in function in CIDP patients. Click here to learn more.
New Treatment for MMN Patients
Baxter International Inc. announces that the U.S. Food and Drug Administration has approved the first immunoglobulin treatment for Multifocal Motor Neuropathy patients in the United States. Click here to learn more.
Outcome and Its Predictors in GBS
The Journal of Neurology, Neurosurgery and Psychiatry published an article for GBS patients and families on who is most likely to improve after treatment for Guillain-Barré Syndrome. Read the full study or the lay summary.