Advocacy is when a person or a group of people communicates with a government official or their staff to influence bills and laws that reflect the needs, wishes, or wants of a certain community. Learn All About Advocacy.
How A Bill Becomes A Law (in the US)
By Chelsey Fix, Advocacy Manager It’s been over 20 years since Schoolhouse Rock released its last video, which makes me think that we all need a refresher on the process by which a bill becomes a law! As a throwback, enjoy everyone’s favorite Schoolhouse Rock civics lesson by clicking here. As a recap, that I…
We Have The Best Advocates!
By Chelsey Fix, Advocacy Manager This May, the GBS|CIDP community took Awareness Month to a whole new level! Patients and caregivers were encouraged to be their own best advocate by joining a congressional letter writing campaign (perhaps you read about it on our lively social media channels?!). As the last day of GBS|CIDP awareness month…
Awareness Month is All About Advocacy
May is GBS|CIDP Awareness Month, and we are getting ready to celebrate all month long! I can’t help but wonder where 2019 has gone, but that thought is overshadowed by my excitement for our 2019 Awareness Month Plans – Government Advocacy. If we haven’t met yet, I should probably introduce myself. My name is…
May is GBS|CIDP Awareness Month
Be your own best advocate. Did you know that Medicare part B can restrict your location of care for your IVig treatments? Or that each year, your voice can influence Congress on important issues such as funding the National Institutes of Health’s research into GBS and CIDP? Whether you are a patient, caregiver, friend, or…
GBS|CIDP Foundation Launches Rare Disease Day Campaign
Teach One. Be One. Be a Champion for Rare Disease. February 28, 2018 will be the eleventh international Rare Disease Day. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities. This year the GBS|CIDP Foundation is encouraging you to join the cause and TEACH someone about GBS,…
Graham Cassidy Legislation Action Alert – We Need Your Help!
Dear Friends, As you are well aware, healthcare reform is constantly evolving. Advocacy is one of our four mission pillars and we are committed to representing the patient voice while keeping our community informed. While the Foundation remains non-partisan, our primary focus remains on patient protections and insuring access for necessary treatments. This current proposal…