[CONSHOHOCKEN, PA] — GBS|CIDP Foundation International, January 24, 2022
February is Multifocal Motor Neuropathy Awareness (MMN) Month. The GBS|CIDP Foundation International will bring focus, research funding, and ways to for patients and caregivers to raise awareness locally as well as connect with others in the MMN worldwide community. An international grassroots fundraising campaign will also launch on February 1, 2022 – Ride for MMN. The purpose of the campaign is to raise awareness and funds that will specifically support the first MMN research grant, offered by the Foundation. To learn more, a month-long calendar of events can be found.
ABOUT Multifocal Motor Neuropathy (MMN)
MMN is a rare disorder in which focal areas of multiple motor nerves are attacked by one’s own immune system. Typically, MMN is slowly progressive, resulting in asymmetrical weakness of a patient’s limbs. The clinical course of MMN is chronically progressive without remission and the prevalence of this very rare disease is estimated to be 0.6 cases in every 100,000 people, which makes it even rarer that GBS and a spontaneously self-limiting disorder in which 1-2/100,000 cases occur each year in North America and Europe. More information on MMN can be found here.
About the GBS|CIDP Foundation International
The GBS | CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected by Guillain-Barre’ syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related conditions through a commitment to support, education, research and advocacy. The Foundation supports patients by nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide them with critical, timely, and accurate information. Additionally, the Foundation educates doctors, clinicians, patients and caregivers to increase awareness of these rare conditions. As well, the Foundation funds research through grants, establishing fellowships and other appropriate avenues to identify the causes of the conditions and discovery of new treatments. The Foundation advocates at the federal, state, and grassroots levels to educate policymakers and help them make informed decisions that benefit our patient community.
For more information contact Maureen.Neville@gbs-cidp.org or call 610-667-0131.