GBS/CIDP Community

A HEARTFELT WELCOME TO THE COMMUNITY

There might not be many positives experiencing GBS, CIDP or any of the variant disorders, but we can think of at least one. We have a dynamic and growing GBS/CIDP community.
We offer support to anyone interested in or dealing with GBS or CIDP.

Join the conversation on Facebook, Twitter and our Forum.

Become an Advocate
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not. More >>

Services
The GBS/CIDP Foundation International has been and continues to be very concerned about the health care reform law (Affordable Care Act – ACA) passed in 2010. Many of its’ parts have been implemented yet many more very critical components have not. More >>

Patient Stories
In a room full of GBD/CIDP survivors, the majority of the conversations you will hear pertain to patient stories. “I was intubated for 40 days and was in a coma for 28 days.” Or, ” I took that medicine and it did absolutely nothing for my pain, but another one my doctor prescribed did the trick.”
One of the many potential side effects of our particular nerve disorders is that we get to talk about things most wouldn’t have guessed possible in their lifetime – granted not always stories we’d prefer to have to tell. That’s why it’s not only healthy to share our stories, but it’s helpful for those who need information and experience from others have have really been there. More >>

In the News
Even though the internet has opened up a world of knowledge at our finger tips, finding both interesting and informative news and research online can be challenging.
Part of our mission is to help spread awareness and to provide the materials that support those who need it. Our responsibility is to make sure we pass along information that is accurate and helpful. You will see some of that content in our In the News section.

Community Events
The GBS/CIDP Foundation International is proud to host many events on a regular schedule. Everything from local chapter meetings to our upcoming 12th International Symposium in late October of this year.
Another exciting event is the big GBS/CIDP 5K & Miracle Mile run in Charlotte, NC. Make sure to mark your calendar for that on this coming Mother’s Day weekend. We have folks from Canada and Europe already letting us know how excited they are to have booked their tickets early. Now that’s commitment.  More >>
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    Upcoming Special Events

    The GBS/CIDP Foundation of Canada is hosting the Canadian Eastern Conference in Halifax, Nova Scotia. This is your chance to learn about all aspects of GBS, CIDP and its variants from initial diagnosis to treatment and rehabilitation. Be sure to check our Community Events page for upcoming chapter meetings in a city near you.


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    CSL Behring Announces Trial for CIDP Patients

    CSL Behring has announced that the first patient has been enrolled in the PATH study, an international clinical trial designed to evaluate the efficacy, safety, and tolerability of two different doses of subcutaneous immunoglobulin (SCIg), compared with placebo, in maintenance treatment of chronic inflammatory demyelinating polyneuropathy (CIDP).


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    May is GBS/CIDP Awareness Month

    During the month of May, in an effort to increase awareness in each of our communities, we encourage everyone to organize activities that highlight GBS, CIDP and their variants. Throughout the world, individuals and groups have organized fundraising events such as walks, runs, bake sales, fashion shows, cocktail receptions, and art shows.
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