Sharing Stories Can Help the Healing

“The destiny of the world is determined less by the battles that are lost and won than by the stories it loves and believes in.”

-Harold Goddard

Tyler's Story

Tyler’s Story

Friday, March, 2, 2013 was my last normal day. I had been for a run on my lunch break that day. Saturday, I noticed some weakness/soreness in my legs and didn’t think much of it. On Sunday, my legs were noticeably much weaker. We took a trip to Costco that day. I had my wife […]

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Peggy's Story

Peggy’s Story

From early adolescence, I knew that my destiny in life was to be an independent woman. As a child of the Fifties, that meant, for me, not being dependent on a man for my livelihood or my definition of self. My first summer job was at 14 years old, and I left home for college […]

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Alexis's Story

Alexis’s Story

Alexis was 2 years old when she was affected by Guillain Barré syndrome a/k/a “GBS.” GBS is an inflammatory disorder of the peripheral nerves outside the brain and spinal cord. Alexis started out with an ear infection and a few days later was unable to walk. We rushed her to the ER where, after a […]

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Kyle's Story

Kyle’s Story

On August of 2013, on the 18th, Kyle was engulfed, suddenly, in a fight for his life. An illness that we could not pronounce laid claim on him, and with a velocity and a determination that numbed us, he staggered…staggered….and descended far below the earth. He came to a standstill. Within four days those lungs, […]

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Laurie's Story

Laura’s Story

The old adage “when life gives you lemons, just make some lemonade” has been a byline for Laura Dodd almost her entire life. At the young age of 12, Laura was diagnosed with a rare neurological disorder, CIDP, a condition similar to multiple sclerosis. The result was several years traveling from a wheelchair, to a […]

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Julie's Story

Julie’s Story

My journey begins in October 1967, the year I was born. I was a child of two college students who wanted nothing but the best for me. Their love for me allowed me to be put up for adoption. Twenty-eight days later, I had a permanent home. My life with CIDP began in December of […]

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Hailey's Story

Hailey’s Story

“I’ve never seen anything like it,” her daughter’s pediatrician said. Holly was at once shocked and frightened by what she heard. Testing was inconclusive, but a neurologist had a hunch… When your trusted family doctor doesn’t know, anxiety can stop you in your tracks, or it can push you to action. For Holly, she sprang […]

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Kim's Story

Kim’s Story

Once upon a time, there was a woman who used to live a normal everyday life. Then in November 2008 after my daughter received the flu shot, (at her 9 month check-up) everything came crashing down. Two weeks after her receiving the flu shot, my arms were so weak I almost dropped her down the […]

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Sibylle’s Story

My story started while I was vacationing in Thailand. I was 26 years old and it was my first trip all alone. Peter, an old college friend of mine, lived there, so I was going to visit him. I wished to see the world and to prove to myself my independence.   I arrived in […]

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bob shea

Bob’s Story

BREAKING OPEN Bob Shea’s Story Life can break you or it can break you open. It is one of my favorite sayings, and it is something everyone who has suffered from Guillain-Barre Syndrome (GBS) knows well. I was diagnosed with GBS on September 19, 2002, and I endured a series of physical challenges: total paralysis; […]

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ann brandt

Ann’s Story

Guillain Barre in 1996  By Ann Brandt Things in the world of GBS have changed since my adventure in 1996-97. I had been grading papers all afternoon, rubbing my neck and right shoulder every few minutes. Thinking I needed some exercise and time away from my desk, I set out on a brisk two mile […]

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Widy’s Story

My name is Aledawi Figueroa, but everybody calls me Widy. I am from Isabela, Puerto Rico. I’m currently 34 years old.  I am happily married with my husband Obeth Soto.  We have 2 children, Alanis Valeria who is 7 and Obeth Julián who is 1 year old.  I studied Business Administration, majoring in Industrial Management […]

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