Paige Duffy’s Story
A New Outlook on Life 2016 was the most memorable year of my life. I had finally finished high school, I had gotten my first car, my first job, and my mum’s business was thriving. This year was also when I had been diagnosed with GBS. What had started as an amazing year ended as…
GBS|CIDP Research Report
Summary of GBS/CIDP Grants to Date GBS|CIDP Research Report [PDF] 2004 Prof K.A. Sheikh, MD Johns Hopkins, Baltimore, MD Determination of anti-ganglioside antibody affinity in patients with GBS Antibody affinity and nerve injury in GBS is a complex issue. Our work points out at least 3 issues: Anti-ganglioside antibody affinity/avidity is likely not related to…
Foundation Funded Research
To date, the GBS|CIDP Foundation has awarded more than $7.3 million in grants meant to advance the knowledge of GBS, CIDP, and variants. Read on to learn about the projects that were chosen based on recommendations from the Grant Committee of the Global Medical Advisory Board. All grants awarded before 2021 were awarded in amounts…
Advocacy Action Alert–Contact Your Representatives Today!
Action Alert Support Congressional Efforts to Advance and Expand Research into Peripheral Autoimmune Neuropathies, including GBS, CIDP, and variants Background Each year, Congress decides how much federal funding should be applied to medical research activities and provides guidance to the National Institutes of Health (NIH) on what conditions legislators are particularly interested in. They also…
Ask Your Senators to Keep GBS on the DOD PRMRP
One of the cornerstones of our legislative efforts is securing funds for more research into Guillain-Barre Syndrome. The Department of Defense (DOD) maintains a Peer-Reviewed Medical Research Program (PRMRP) that funds research exclusive to topics or medical conditions on a list created by a committee in the Senate. Help us keep GBS on the list…